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» LymeNet Flash » Questions and Discussion » Medical Questions » Why is LYME such a hard target across the board?

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Author Topic: Why is LYME such a hard target across the board?
cjnelson
LymeNet Contributor
Member # 12928

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I continue to read on this site and others that LYME is under diangnosed and not dealt with appropriately by MD's, ID's, CDC, Health Depts, Governement, etc.

Why?

Call me naive...I dont mind. It just doesnt make sense to me.

Why the overlook? Why isnt there more recognition? Funding? Treatement? Testing? BELIEF?????

It is puzzling to me. As stated in other threads they put so much into WNV and so much coverage on news, alerts, Medical watches...what it is about LYME??????

--------------------
Seeking renewed health & vitality.
---------------------------------
Do not take anything I say as medical advice - I am NOT a dr!

Posts: 830 | From TN | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
billclo
LymeNet Contributor
Member # 12939

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The situation really reminds me of the early days of AIDS/HIV. Insurance companies don't want to pay for extended, ie expensive, treatments, so they get some tame docs on their payroll (or with serious conflicts of interest) to make the criteria for "officially" having Lymes so difficult that few qualify.

The sick folk who don't test "positive" then get told their crazy, here's some antidepressants,and don't forget to send in your insurance premium check. I had a CDC-positive test, which is really hard to get, got the standard 3 weeks of Doxycycline, oh boy, you should be fixed right up. Oh you're still sick? That's just Post-Lymes, we don't know how to define it, treat it, it just is, and you just need to man it up and deal with it.

Foolish, really. If they'd adequately treated me with oral abx at the start, they've have avoided 4 additional doctor visits, 4 sets of tests, and 8 months of abx. I've paid OUT OF POCKET over $600 a month just for abx, office visits, etc for 9 months now. Probably cost the insurance companies over $10,000 in tests, etc. Versus a few hundred $ of abx at the start. Penny-wise, pound-foolish.

What happens then is that people stay sick, progress into really interesting and expensive diseases, and cost the insurance companies even more down the road.

Posts: 131 | From PA | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Marnie
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Member # 773

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Triage.

The diseases that kill the fastest and are sexually transmitted (for certain i.e., "proven") get the attention and dollars first.

That is the reality.

We KNOW lyme leads to other diseases...we deal with THOSE diseases when they occur...to the best of our ability...which isn't much.

Anyone know what is in the Army's "H16" kits?

Posts: 9424 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
   

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