posted
Lyme can infect any part of the body. Is it your spine or your muscles, sometimes I think my joints or back are hurting when it is actually my muscles that are hurtng and not the joint/back.
I would suggest a chiropractor or a PT visit to see if they can physically tell if anything is wrong (misalignment, trigger points, tension, ect.)
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Citrus
Sorry to hear you are having so much pain
What Bryon said ~ Lyme can settle anywhere in your body. I have read in the symptoms list that herniated discs are one of the symptoms of LD.
Lyme may have attacked my discs & I herniated one of them and had to have surgury & had 5 bulging disc's too. It caused horrendous pain. Looking back I would not choose the surgury again though.
I think the only way to tell for sure if it is a disc problem is to have an MRI. I had countless x-rays & cat scans & it didn't show as much as an MRI ~ which shows soft tissue up better.
PT & water walking in a warm pool helped me to get stronger after surgury.
What didn't help & may have been the cause also, I was in bed for such a very long time my back muscles had atrophed & where not strong enough anymore to support my spine properly.
I just bend over one day & wham it blew like an old tire.
Didn't have much choice in the matter because I was so sick with LD & con-infections This goes back now 5 years. One year before my big relaspe.
I find moist heat works the best right now. I was told not to use ice because the ketes like it cold. I also have to lay flat & take muscle relaxers sometimes.
Hope you can find something that works for you & feel better soon Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
I agree....Lyme can do anything it wants to!
Are you herxing?? Sometimes backing off the meds will help. Ask your dr!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
That's where my daughter has the most pain.
Tonight, I think her spinal cord was inflamed and the pain was shooting down her legs.
Her knees where jumping up and down all night. She says it hurts, but keeping moving helps take her mind off the pain.
Vicodin doesn't cut it.
She is only on mino 50mg twice a week. It's really doing a number on her.
Posts: 2903 | From AZ | Registered: Feb 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Mylene on the nerve coverings and tendons cartilage are all prime targets . Mylene is like sugar too children.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I'm really fearing for my daughter now that it is so intense in her spine. Is there anyway to detox that area? Will the antibiotics eventually reach that area?
Nothing gives her relief for the pain. It hits in the late evening.
I do not want permanent damage in that area.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
A recent "Diagnosis X" program (on TLC channel) had a segment in which an ER patient's spine was infected by bacteria. The ER dr. explained that the bacteria was able to enter the spinal cord through degenerating disks and formed a cyst in the lower spine. This bacteria was particularly active, attacking nerves inside the spine and causing complete paralysis in a very short time. Lyme is a much less insidious bacteria, I'm sure, but still causes its share of serious neurological symptoms.
I was very interested in what was said on the show since I have told drs. for 13 years that I have an infection in my spine. Unfortunately, the answers I got were in the form of disdain and stifled laughter (before my LLMD diagnosed Lyme and coinfections 2 months ago).
Posts: 175 | From Colorado | Registered: Feb 2007
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posted
Have to agree strongly with cranio-sacral and acupuncture. Also have had extensive relief with infrared heat lamps and hot castor oil compresses. Just purchased an infrared heating pad - haven't tried it before today but am hoping that it works as well as an infrared lamp but should be more convenient. Good luck.
Posts: 175 | From Colorado | Registered: Feb 2007
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Ditto on the cranial Sacral Therapy. Very mild & very helpful for me.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Look into Bart, that can affect the spinal cord also. It can put people in wheelchair with Tranverse Mylitis (sp?) Posts: 315 | From USA | Registered: May 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Who do you contact for cranio-sacral therapy.
posted
Kelly: I know that some licensed massage therapists are proficient at cranial-sacral therapy, but be careful that you find a good one.
Posts: 175 | From Colorado | Registered: Feb 2007
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Has anyone with TBDs been able to get a diagnosis of Transverse Myelitis? If so, health insurance might cover the cost of cranial-sacral therapy treatments from a physical therapist or chiropractor. Unfortunately, it is virtually impossible to get insurance to pay for LMT (lic. massage therapy) treatments.
The info stated that TM is rare - 1 to 5 per million so it is doubtful that many Lyme patients have also gotten a TM diagnosis.
Any help is appreciated. And thanks, Littlesprout, for the link to TM. I have stated to drs., since I woke up with these symptoms overnight on 12/21/1994, that I wouldn't be able to walk unaided if I had not dropped from about 180 to 160 pounds.
Posts: 175 | From Colorado | Registered: Feb 2007
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