posted
Okay, I learned that if I don't take malarone at night, the gut problems aren't so bad.
All I am taking is one little old pediatric dose and I can barely tolerate it. Wouldja say I have Babs?!
I was on 2 doses daily a month. Went off for two weeks for gut repair. Went back on one dose daily at LLMDs suggestion and have made it for one month.
Problem is that at the three week mark the headaches, neck aches, body aches, joint stuff, fatigue and nausea got so bad that LLMD suggested by week four to try one baby dose EVERY OTHER DAY.
So I have one day of unremitting herx and one day of mild rotten-ness rotating back and forth. The Herx days are so painful that I can hardly hold my head up on it's aching neck.
I guess my Babs-load is pretty high...BUT...How can I ever get up to a strong therapeutic dose at this rate?
Gosh, if Malarone is considered to be "Mepron-lite", I wonder if Mepron would have knocked me to Mars and back!
Any sage words?
Frustrated and aching,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
One pill of malarone per day made me feel horrible. My LLMD thought I couldn't tolerate mepron so I stayed on one malarone pill per day for a few months. I felt terrible the whole time. Immediately upon stopping malarone and going on mepron I felt sooooo much better. Air hunger gone and in fact I could breath better than I had in years. Sleep improved too.
I tolerate mepron much better than malarone. I had to stop mepron for about 3 weeks due to liver enzyme problems and now I'm back on full dose but even after a month, I'm not back to where I was when I stopped as far as sleep etc..
Malarone was brutal for me. Hope you feel better.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/