randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
when i went to the llmd on friday, she gave me clonazepam for the muscle spams at night.
i cut it in half.
i had a terrible night. my body twitched all over, my head hurt, and the next morning i just felt weak and like my muscles wouldn't work. i absolutely hated it.
has anyone tried this adn did you like it?
another one down the drain. well at least it only cost 2 dollars!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Is that the same as Klonipin? My daughter loves it.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
I've been taking it for YEARS and love it. But after so many years you will probably have to up the dosage to get the same effect.
I'd check with your LLMD though, I never experienced any of what you described.
Good Luck.
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
yes, i think it's klonopin.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Rani
I have been taking it for years for sleep & it does help me fall alseep. I think the generic is called clonazepam.
Although, it is VERY addicitng over long term usage & hard to wheen off of.
I have to take it early in the evening , ( I can't take it after 12:00). If I take it too late it can lag over just a bit.
I would call your doc & tell him your reactions to 1/2 tab. There a alot of common sleep meds that actually have a negative effect on me but others say they like. So I guess it may depend on your personal CNS?
Hope you can find something that helps Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Be careful, it has a longer half-life than Ativan. Turned me into a Zombie.
Posts: 1010 | From Mars | Registered: Feb 2004
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
So far clonazepam has been the only drug to control my myoclonus (muscle jerks), but I have to keep increasing the dose for it to keep working. I don't know how much of my fatigue is lyme and how much is from this drug.
I do think it makes me a little off balance as well. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8900 | From Illinois | Registered: Aug 2004
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
As you know, many if not most people dx'd with Fibromyalgia actually have Lyme. I ran a Fibro support group for 10 years, and IMO, Klonopin aka clonazepam was by far the best all around drug for helping the condition. I wish I could take it.
However, it is addictive, and only 1/2 of the lowest dose pill made me stop breathing. I had already had the same problem with an over the counter drug called Q-Vel for restless legs, and my doctor told me to avoid all quinine drugs and related drugs forever, because both are quinine related. BTW, calcium fixed my legs.
The Rheumy said that even though Klonopin is a benzodiazepiene, it is also a relative of quinine, unlike the other benzos. Benzos really help with over stimulation problems, but except for Klonopin and Xanax, they all destroy stage 4 sleep, so I would not take any of the others, at least not at bed time. I now take a low dose of Xanax.
It sounds like you may be having what doctors call a paradoxical reaction..... In some people, a drug can act exactly the opposite of how it usually acts. I would talk to your doctor about it. You might also want to look at a drug interaction checker online, or call your pharmacist and ask, to see if it could be an interaction with some other drug you are taking.
Good luck,
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I took it for a week to try and get rid of tinnitus. Talk about DRUG HANGOVER!! Holy cow! Threw that stuff out the window.
Perhaps Flexeril (muscle relaxant) would be more effective. I've been on it for over 3 yrs - made all the difference in my quality of life.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I took clonazapam at bedtime for over 8 years for muscle jerking and constant night time wakening. It does give you a little "hangover" in the morning, but in 8 years I never changed the dosage (needing to increase), and I weened off the drug in 2 days. I know some people have a bad time getting off of it, but it wasn't a problem for me, and it was the only thing that helped me get any rest at all.
Posts: 393 | From Washington, DC | Registered: Jun 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
you describe it perfectly. yes, i had an "over-reactive" type of response. i felt like my muscles were jerking all night, couldn't sleep, my mind raced.
i hated it. and no i'm not on anything else so it could not have been interferring with another drug.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Randi, I am SOOOOO sorry this didnt work for you.
Most everything I take works opposite of how it supposed too ,,,for me too!!
Are you still dieting and excercising?? Connected??
Have you tryed just a common Ambien??
I wish I could 'will' you a good night of 'sleep'!!!mostly--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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