posted
CENTRAL FLORIDA RESEARCH, INC. NEEDS YOUR HELP !!!!!!!!!!!! 245 North Seminole Avenue, Lake Alfred Florida 33850 863-956-3538
Our license to run the Early Detection Test for Lyme Disease by Flow Cytometry is being held up by the Agency for Health Care Administration (AHCA) in Tallahassee Florida. This was originally approved on February 19, 2007 and now AHCA is limiting our ability to run the previously approved test.
Contact information for Florida Governor Charlie Crist is: 850-488-7146 or 850-922-4991 (offices), or fax to 850-487-0801. Email to Gov. Crist should go to www.flgov.com .
Contact information for Dr. Andrew Agwunobi (Secretary of Health for Florida) is: 850-922-3809 (office) or 850-488-0043 (fax). The Chief of Staff for Dr. Agwunobi is Mark Thomas.
Both of these officials need to understand the overwhelming need for an early detection test for Lyme Disease. They have the authority to release this license immediately and let Central Florida Research get on with helping people.
You can contact President Bush through the following methods: Comments phone line: 202-456-1111 (The White House) Switchboard: 202-456-1414 (The White House) Fax: 202-456-2461 (The White House)
The patients suffering with Lyme Disease and the related co infections, including President Bush, need your help. We have a good test for early detection and AHCA in Tallahassee Florida is keeping us from helping people every day that our license is withheld. A strong show of united support may impress upon Governor Crist and Dr. Agwunobi how vital it is that this test be licensed immediately.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Have they given you any reasons for this, or is it just a continuation of the campaign against any lab that tries harder to find lyme cases, instead of trying not to find them.
Might get more attention if you put HELP in the subject line.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Thanks Lou....It is just a continuation as you mentioned..there were no deficiencies sighted and they were told they were approved....the rest is ....you tell me...anyone that can call write or email to help stop this injustice please do so
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
up
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Thanks Guys any support is greatly appreciated...
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
Thanks Lymeblue...I'll be burning them up too!!
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Do you have to be from Florida? I am not.
I will email and call everyone though.
Posts: 3905 | From USA | Registered: May 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
bub...
Are you connected to this lab in some way? I noticed you mostly post when this topic comes up.. and again when Igenex is asked about.
posted
Hey Merrygirl...you can still contact the Whitehouse...or I guess the Gov or the others ...they will at least know that it is not just effecting Floridians....Hi Tincup....you have spoke to me before in PM...and my connection to any lab is of no consequence...I just know what the staff of CFR has done to help me.....
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Bub said..
"Hi Tincup....you have spoke to me before in PM...and my connection to any lab is of no consequence...I just know what the staff of CFR has done to help me.. "
Oops! I'm afraid you must have me confused with someone else.. as I never PM at all. It's always been closed down and will stay that way.
So if I may ask... what did you think you told me before but it wasn't me? Did that make sense? HA! And what does no consequence mean? Sorry, you lost me there.
As a mostly sero negative lymie - EXCEPT thru Bowen, and one pos FISH out of 2 from IgeneX...I am especially interested in a good detection test.
I know nothing about this lab or it's test (I will check the link u provided tho...) However, I think that your letter writing/ call making campaign should include your local news paper & news stations.
Considering recent events which has brought Lyme & it's detection problems to the forefront, the time might be right for media attention to one of our REAL problems - political interference in our medical care just like this.
It sickens me every time I read about "early treatment is the key"...when we can't get early detection. Crap - we can't get ANY detection, much less EARLY detection. The GP's won't run the correct tests at the correct labs - then tout that their (useless) tests came back neg. ERRRR!
Time for it to stop! Maybe it's just me, but I want to see egg on someone's face - perferably in a public setting, lol.
Letter writing is all well & good - but easily ignored & buried. Having a newscamera in their face seems to shame them into actually doing something that is the right thing to do - because they know everyone's watching.
Just my 2 cents. (((hug)))
Posts: 176 | From Tenn | Registered: Jul 2004
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Thank you GardenLymer ...your dead on with the early detection is the key ...but they won't allow us the test to do it...Yes the News media is a great Idea....To bad they are not interested....I guess since W was diagnosed it is a political hot spot...they said they would keep it in mind....but they really were not interested....but then of course there are many more out there to try. If you have any connections to get it out there...Please speak out
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Hi Tincup Sorry if I confused u with someone else that was here in florida for a few months and said they called CFR to try and get a tour and I thought it was on PM ...Lyme Brain..LOL...and by consequence I meant 3 a : importance with respect to power to produce an effect b : social importance 4 : the appearance of importance; especially : SELF-IMPORTANCE synonym see IMPORTANCE (Merriam Webster)
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Dear Lyme brain...
My name is Lyme brain too. What a hoot!
Yes, I was in Florida... and yes I did request to go to the lab to meet the folks and see what they do so I could learn and report back to patients. But they said no. So YOU remembered. I didn't.
BUT.. in all fairness to my Lyme brain.. it wasn't on PM.. so it must have been here on the board? Or you responded to my request directly from the lab? I don't know?
As for your dictionary reply to the word consequence.. thanks! But in plain English.. was that a yes or no? Are you connected to the lab in any way?
posted
Plain English...LOL All I did was post a release for HELP for a Lab that is trying to help the Lyme community and have wound up in banter that totally has nothing to do with the topic...I do not work for any Lab nor do I have any investments in any Lab...and I quit posting for a long time due to just such personal questions...I actually thought we were here to share info and help each other if we can....I really could care less who works for whom...because that is actually none of my business...
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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OK - I checked out the site - NOW I get the picture. Apparently someone at the state level approved before catching on to the connection - like me. Such a shame...
Sorry, I have no media connections - I barely connect w/ friends anymore
I still think it is an avenue that might get the job done. Do any of your local channels have a segment in their news where they "go after" injustices? I know many do & it seems like a good format for this. Maybe check out local news channels that u normally don't watch & see if they have such a segment.
Good luck!
Posts: 176 | From Tenn | Registered: Jul 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
bub..
As you know folks sometimes come here promoting things who have a connection to them.. in one way or another. Some things that are promoted are good but others are not.
I'd noticed you posted a big "HELP!!!!" as your topic.. and also noted you didn't say if you were posting FOR the lab or yourself... yet started out the request by saying...
"Our license to run the Early Detection Test for Lyme Disease by Flow Cytometry is being held up by the Agency for Health Care Administration (AHCA) in Tallahassee Florida."
Key words "Our license".
I also noted you mostly post when the topic of labs come up... and seem to be promoting them by having their website listed at the bottom of all your posts... and more than 1/2 of your posts relate to labs ... and you seem to have more technical knowledge than most about their procedures ... so I thought I'd ask.
You said.. "and I quit posting for a long time due to just such personal questions...I actually thought we were here to share info and help each other if we can...."
I'm sorry if you feel that asking if you are connnected to the lab in anyway is a personal question. But do understand...
If you are connected in any way... which I still don't have a clear answer about that... I do believe it is against LymeNet rules to promote the product.
And yes.. we are here to share information. But readers need to know if there are any ties to the product someone continues to advertise in one way or another.
And since we are sharing.. I like IGenex Lab.
I can say that till the cows come home because I have no connections to them.
I hope you see the difference and why I have asked if you are connected to them in any way. I am pretty sure most folks would raise that question if they followed posts in my "normal way" or had been here for a long while and seen this type of thing happen in the past.
posted
Fine Like Igenex ...I have nothing against them....I Like CFR....Enough said! and the reason it says we or anthing implying someone works there is because it was a press release from them that I recieved and the reason it said HELP was because Lou suggested I put it in there....at any rate I am through with this ...Health to you! Oh and in plain english I have no connection to them.....got it ....good
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Thanks GardenLymer I will suggest that to them and make a few calls myself..we do have one lady news caster who is Fierce....
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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I hope this exhange hasn't put you off. I share TinCup's passion for clarity and appreciate her persistance to find out that you were passing along a plea for help as a 'private citizen' with no business connection to the lab. On the other hand, I also appreciate your passion to see this lab stay open and hope you can get some traction with your local news station.
-------------------- When I lost my grip on Faith in the maze of illness, Hope gently clasped my hand and led on.
RuthRuth Posts: 478 | From California | Registered: Jan 2007
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Bub - glad you thought of another media person to try out...please let us know how it goes! I'll be keeping my fingers crossed for ur efforts.
TinCup - glad u asked - cuz quite frankly, I was wondering also...It was the "OUR" that was confusing.
Really didn't care if Bub was connected or not - just curious. Bub - thanks for clearing it up.
I also am passionate about the testing. The bad tests just keep this merry-go-round spinning, and it needs to stop. (Cuz I for one, want to get off! hehehe) Plus, sad as it is, many of our friends & loved ones need to take a ride, but 1st they need to get that positive test result - and that's not happening in most cases presently.
Oh yeah, ditto what Ruth Rith said...
Lets remember that we're all on the same side here... Posts: 176 | From Tenn | Registered: Jul 2004
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1Bitten2XShy
Unregistered
posted
Our local news channel in Jacksonville, Fl has just started doing pieces on "Mystery Illnesses" on Saturday mornings.
I just shot them an Email about Lyme as well as the Lab test being put on hold.
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THanks Guys....I appreciate all the input and supportive posts. If I hear anything else I'll let ya know
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
It would be nice to know the reason for the AHCA holding up approval..... it is difficult to complain if you have no clue whether the hold-up has some legitimate reasoning behind it or not.
I don't want any of us (or the Lyme community in general) to look like idiots if there is something we should know before we go storming in with complaints.
Perhaps it would be wiser to write and inquire about the problem first.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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1Bitten2XShy
Unregistered
posted
This was written by a LLMD here in Florida. CFR is the "old Bowen"
While this may not apply to the specific test that started this post, it may shed some light on who CFR is.
AMAZING SPECIAL DARKFIELD IMAGES OF TICK DISEASE USING FLUORESCENT ANTIBODIES
I have been curious about the ability to see Lyme and Babesia from blood testing. I found it very curious that this research lab, run by a doctor's doctor with more experience than 20 physicians, finds positives which are then confirmed by actually growing the organism! Dr. Mattman, a prominent microbiologist, was nominated for a Nobel Prize for her work on stealth pathogens in 1997. Borrelia burgdorferi (Lyme) is a stealth pathogen. Dr. Mattman is one of the few scientists who have been able to successfully culture the Lyme bacteria from its cell wall deficient form, (cystic or L-Form) to spirochetes in a laboratory.
I would like to thank the Bowen Research & Training Institute, Inc., located in Palm Harbor, Florida for the material below, and especially Dr. JoAnne Whitaker, Sandi Lanford, and Dr. Whitaker's kind assistant, Phillip Ruer.
Also, I want to thank Sandi Lanford for her work and service to Florida citizens as an advocate for Lyme education. She can be reached at LIFE Lyme - North Florida Lyme Support Group (Email: [email protected]).
On another page we offer some photo's from Bowen actually showing interesting pictures of Tick Borne Infections. Link to: SPECIAL IMAGES OF LYME AND BABESIA
LYME TESTING At Bowen Research & Training Institute, Inc., located in Palm Harbor, Florida, ongoing research is being conducted using the Bowen Q-RIBb (Quantitative Rapid Identification of Borrelia burgdorferi) test developed by Dr. JoAnne Whitaker.
Originally a CLIA approved lab until April of 2003, the institute, lacking in vital grant funding, changed its status from that of a clinical lab to a research facility under the State of Florida Health Department.
Since its inception, the main focus at the institute has been the development of an accurate test for the Borrelia burgdorferi (Bb) antigen, the causative agent of Lyme disease.
Bb is difficult to detect by most laboratory methods in use today, and a little known fact is that there isn't currently a test approved by the FDA for Lyme Disease.
According to a clinical study presented at a Lyme Disease Association Conference in 2003, of the tests available, the PCR is only 35% accurate for blood testing, and the Western Blot is only 50 - 60% accurate for blood testing. Other Lyme tests like the LUAT and ELISA fall below these levels of accuracy when testing for Lyme disease.
These tests were originally "... devised to track a narrow band of cases for epidemiologic change and were never set up to be used as diagnostic criteria nor were they meant to define the entire scope of Lyme disease." This is stated in the 3/25/91 NIH report.
Recently, Dr. Whitaker developed the titration serial dilution method for quantitating the amount of Bb antigen in the blood. This may help to differentiate the carriers from the patients with serious disease by comparing persistence of fluorescing structures.
In this part of the test, whole blood is diluted and fluorescent antibody added. The solution containing the antigen is progressively diluted down until a count of the antigen in that particular blood sample remains. Bowen research has found the Bb antigen in whole blood, breast milk, urine, placental tissue, semen, eye fluid, teeth, foot nodules, shoulder fluid, spinal fluid, finger joint fluid, and African dust.
Findings are documented with digital photography using Darkfield microscopy. The Bowen Lab receives blood specimens for Borrelia burgdorferi (Bb) from forty-six states, including Alaska and Hawaii. In addition, the Bowen lab receives blood from doctors ordering the test from Canada, Brazil, Denmark, Scotland, The Netherlands, Ireland, England, France, Spain, Germany, Switzerland, and the Canary Islands.
The recent database numbers for those tested is approximately 6,000. According to a recent poll of patients clinically diagnosed with Lyme disease whose physicians had ordered the Bowen Q-RIBb test, 100% of those patients tested with the Bowen reported their tests were positive for Bb.
Outside critics of the test believe the Bowen has "too many positives." Not so, if you consider that the people taking the Bowen Q-RiBb test could be 'clinically diagnosed' with Lyme just by evaluating their symptoms.
Most had received negative or equivocal test results with the other Lyme tests ordered by their physicians. When negative or equivocal test results are interpreted by their physicians, it is determined that it is unlikely that their patients are infected with the Lyme bacteria. Physicians are hesitant to 'clinically' diagnose Lyme based on the symptoms alone.
Patients pro-actively seeking an answer to their continued symptoms and suffering eventually learn about the Bowen Q-RIBb test. A positive result with the Bowen test helps these people finally get a proper diagnosis and get properly treated for Lyme disease and co-infections. The Bowen Q-RIBb test just recently received its preliminary US Patent approval. Although the Bowen Q-RiBb Test is not presently approved by the FDA for Lyme disease; an application for FDA approval is now pending.
Before the Bowen Research project offering the Bowen Q-RIBb test to protocol physicians was approved, the Bowen Q-RiBb test had to be duplicated by two outside FDA approved laboratories.
Dr. Lida Mattman's lab in Michigan did one of the duplications. Mattman, a prominent microbiologist, was nominated for a Nobel Prize for her work on stealth pathogens in 1997. Borrelia burgdorferi is a stealth pathogen.
Dr. Mattman is one of the few scientists who have been able to successfully culture the Lyme bacteria from its cell wall deficient form, (L-Form) to spirochetes in a laboratory. In the duplication of the Bowen Q-RIBb test, Dr. Mattman used her culturing method which has been considered the 'gold standard' for testing.
From the Bowen literature the Bowen lab statement is ..." Of 316 same draw blood samples, 316 cultured specimens grew out the organism Bb, and our Bowen Q-RIBb test was positive on all 316. The culture method is considered the 'gold standard' for making a definitive diagnosis of an infectious disease."
As stated in the third edition of Dr. Lida Mattman's book, Stealth Pathogens, the Lyme bacteria, Borrelia burgdorferi, is a pleomorphic bacteria, and it can change form from a spirochete to a cell wall deficient form and back again.
By doing so, it can evade the immune system. The immune system doesn't always produce antibodies against the bacteria, and therefore, Lyme testing for antibodies can produce False-Negative results.
The Bowen Q-RiBb isn't looking for antibodies; it detects the actual antigen - the L-Form (cell wall deficient form) of the bacteria in the blood. The Bowen Q-RIBb accomplishes this with the use of fluorescent staining specific for detecting Bb that attaches to the protein in the L-Form. They use green in the stain because the eye is more sensitive to green and it can easily be seen under the Darkfield microscope.
The Darkfield microscope is a high magnification microscope with a special lighting feature which allows for greater observation of the blood samples. Fluorescent staining for specific bacteria has been around for over fifty years. It is used to detect many pathogens in many diseases.
To discount the procedure one would have to discount all tests done in the last fifty years using this technique. It would mean hundreds of tests used everyday for detecting diseases like e-coli would have to be considered invalid.
Dr. Whitaker is an internationally recognized research and teaching physician and author of over seventy scholarly publications who has accumulated numerous awards and citations throughout her career. Dr. Whitaker has had numerous fellowship programs in pediatrics, hematology, oncology, nutrition and psychiatry. She taught in seven different medical schools and retired as a full professor of pediatrics. She spent nine years in Southeast Asia, starting a new medical school and nutritional laboratory in Thailand and a post-graduate program in Vietnam during the war.
After returning from Vietnam, she was director of the Florida Mental Health Center in Tampa. She helped start and developed the first hospice in Florida and initiated the Little Kids Program for Abused Children at the Chi Chi Rodriguez Children's Program. Dr. JoAnne Whitaker's curriculum vitae can be viewed at www.bowen.org/dr__whitaker's_cv.htm
Of over seventy published research papers Dr. Whitaker has written, several are listed below that clearly show how drawing from her experience as a scientist and physician Dr. Whitaker was able to develop the Bowen Q-RIBb test for Lyme disease.
Whitaker, J. A., Page, R. H., Stulbert, C. S., & Zuezer, W. W. (1958). Rapid Identification of Enteropathogenic Escharlchia Coli 0127: BB by the Fluorescent Antibody Technique. AMA Diseases of Children, 95, 1-8.
Whitaker, J. A., Zueler, W. W., Robinson, A. R., & Evans, H. (1958). The Use of Fluorescent Antibody Techniques for Demonstration of Erythrocyte Antigens. Journal of Laboratory and Clinical Medicine: 54
Donaldson, P., & Whitaker, J. A. (1960). Diagnosis of Pertussis by Fluorescent Antibody Staining of Nasopharyngeal Smears. AMA Journal of Disease of Children, 99, 423-427.
Whitaker, J. A., Nelson, J. D., and Fink, C. W. (1960) Rapid identification of Toxogenic Diphtheriae. Texas Reports on Biology and Medicine, 18 (3)
Whitaker, J. A., Nelson J.D., & Fink, C. W. (1960) Rapid identification of Corynabacterium Diphtheriae. AMA Journal of Children, 100 (4), 130-131.
Whitaker, J. A., Donaldson, P., & Nelson, J.D. (1960). Diagnosis of Pertussis by The Fluorescent Labeled Antibodies. Pediatrics, 27.
Nelson, J.D., & Whitaker, J.A. (1961). Diagnosis of Enteropathogenic E. Coli Diarrhea by Fluorescent Labeled Antibodies. Pediatrics 27.
Whitaker, J.A., Nelson, J.D., & Fink, C. W. (1961). The Fluorescent Antitoxin Test for the Immediate Diagnosis of Diphtheria. Pediatrics 27, (2).
Nelson, J.D., Whitaker, J.A., Hempstead, B., & Harris, M. (1961). Epidemiological Application of the Fluorescent Antibody Technique: Study of Diarrhea Outbreak in a Premature Nursery. JAMA, 176, 26-30.
Whitaker, J.A., & Vietti, T., (1959). A rapid Test for the Diagnosis of Lead Poisoning. The Society for Pediatric Research [Abstract].
Whitaker, J.A., Nelson, J., Fink, C.W., (1960). Rapid Identification of Toxigenic Corynebacterium Diphtheriae. The Society for Pediatric Research [Abstract].
Whitaker, J.A., & Vietti, T., (1960). A Rapid Test for the Diagnosis of Lead Poisoning Toxic Episodes in Children. Modern Medicine, 1 (1) 8. Whitaker, J.A. (1960). Diagnosis of Pertussis by Fluorescent Antibody Staining of Naso-Pharyngeal Smears. Modern Medicine.
Whitaker, J.A., Donaldson, P., & Nelson, J.D. (1960). Diagnosis of Pertussis By Fluorescent Antibody Staining of Pharyngeal Smears. American Pediatric Society. [Abstract]
Nelson, J., & Whitaker, J.A., (1961). Experiences with Fluorescent Antibody Clinical Laboratory. American Pediatric Society [Abstract]
Whitaker, J.A., Fort, E., Mattman, L, Hockstra, P. (2001) A New Whole Blood Method to Identify Borrelia burgdorferi, the causative agent of Lyme disease. Manuscript presented for Publication: Laboratory Medicine.
According to ILADS, the International Lyme and Associated Diseases Society, Lyme disease is a very serious illness worldwide. For more information, go to ILADS website www.ILADS.org and Bowen Research & Training Institute, Inc. at www.bowen.org
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1Bitten2XShy
Unregistered
posted
All I know is this is Dr. S in Florida who wrote the above, you can google and find it.
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Nimzo...Hey where did you get all the false info on CFR and Bowen...The test is not an IFA it is a DFA and is not bought from anyone...Also the company is CFR...the machine is a Flow Cytometer...Also how could have Bowen been found non compliant for useing the wrong dilutions when they didn't use IFA....Oh and also there is a Patent......I would love to read the propaganda that you get your information from....and also do you have a current Medical license? I sure don't but the people I talk to sure do. Anyway....I hope people research the facts for themselves....and not take prapaganda as gospel
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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quote:Originally posted by Truthfinder: It would be nice to know the reason for the AHCA holding up approval.....
Tracy
Hi Tracy I agree with you about trying not to look stupid....the AHCA inspected found no deficiencies ....told them they could open for business ...and then never sent the license ...there are time limits on how long the AHCA has to send letters for corrections to be made (if any are found) as well as a time limits Laboratories have to correct or address deficiencies...When you are told you have no problems...how do you go about correcting them....It all just seems very strange to me ....but give them a call if you would like to know more
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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THe sentence that made no sense was due to this part of your post
This guys buy the IFA kits and bought a CFR machine and now they run the samples after doing the IFA throught the CFR and this is supposed to be the new test.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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The statement you said makes no sense was from your post they bought a CFR machine....that is not the machine.....
This guys buy the IFA kits and bought a CFR machine and now they run the samples after doing the IFA throught the CFR and this is supposed to be the new test.
Bowen was investigated and found non-compliant with lab regulations. It was discovered that they were using the wrong dilution as specified by the IFA kit manufacturer that resulted in 100% positives for all blood samples submitted. [/QB][/QUOTE]
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Wow ...thanks for the personal attack....and you are the last person that needs to worry about my soul....thanks for all the info on the QRibb...which is not the test that Central Florida Research does....I can pull up babble all day long from reports from the UK to China. Believe what ever you need or want too....and yes I do know you can look up patent #s....Thanks for all the insightful info...
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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How come your quotes are not linked to their sources? How can we look in the public domain for confirmation of your quotes if you don't provide references?
How come all your posts come across as condescending and combative? Aren't we all on the same side here?
-------------------- When I lost my grip on Faith in the maze of illness, Hope gently clasped my hand and led on.
RuthRuth Posts: 478 | From California | Registered: Jan 2007
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THanks for makeing that point Ruth....I'm just trying to help people who helped me...I was raked over the coals and accussed of working for a Lab ...May I ask the same question of Nim.... Is he connected to any Laboratory and is that why he attacks.The report he sights lists several WELL known Labs in the US...not just Bowen.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
Aren't you funny! You know these people so well that you can pass judgement .... When you have not said anything correct about the test that they run.....redirecting conversation to other tests and documents from years ago ...which by the way ...I'm sure things could be dug up on your favorite lab too probably in the same reports. Anyway... I am through with you....Anybody else that can help or give some new insight ....I'm all ears
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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quote:hmmm... how about the Florida Agency for Health Care Administration and the Centers for Disease Control and Prevention (CDC) ... ?
Are you asking ME where your quotes were taken from? I'm sorry, you will have to name your sources all by yourself. I can't help you there.
quote:... since they did the inspection ...
As far as everything I have read, there has been NO INSPECTION at the CFR... not even by Tincup. Tell me does the CDC do inspections of labs?
quote:... and suspended their license ...
Whose license was suspended?
Are we still talking about CFR? I believe the topic here is about the AHCA declining to give a NEW license to the CFR. So how could a license that doesn't exist be suspended?
That IS the topic we are talking about, right? I am getting very confused reading your posts.
quote:... if you are for individuals that take advantage of sick people ...
Again, I don't see any references cited to support this new accusation.
What individuals are taking advantage of sick people? And how am I for them? I missed something here. The way you twist things around, you must be a lawyer!
[Edit: I spelled Tincup's name wrong the first time around! ]
-------------------- When I lost my grip on Faith in the maze of illness, Hope gently clasped my hand and led on.
RuthRuth Posts: 478 | From California | Registered: Jan 2007
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posted
Hi Ruth Ruth This has nothing to do with Bowen or the Qribb
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
No I don't.....feel free to call CFR and ask them anything you need to know about that.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
In some of my old notes I found where Bowen received patent approval for the Q-RIBb test in January 2005, but I don't have a patent #.
It seems to me the only REAL question here is whether the new Flow Cytometry test actually shows the Bb organism in a person's blood. No one has ever proven that it does not, and the same goes for the Q-RIBb test.
IMHO, the diagnostic tests of the future are going to have to detect actual organisms (or antigens), rather than the past trend of testing for antibodies. Lyme is just one disease of many where there may be little or no antibody response in many individuals.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
I found it (I think)!! I knew I had seen the patent # somewhere.........
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
This post is not about Bowen nor the QRibb.....and yes there is a patent ...give CFR a call....they cam give you more info...Hope you all have a nice day.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
I was wondering do you guys pull the patent #s on your toothpaste and such...I'm not trying to be offensive ...I just don't understand the big whammy on the Patent ...is'nt the Idea behind a patent so rhat people can not steal your idea,test or product....and what good is the # to us
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Nimz, your wording suggested that you were not aware that the patent on the Q-RIBb was actually granted.
Bowen never got 100% positives on all blood samples submitted, so I don't know where that info you cited came from. And if some lab did get all positives, that would not surprise me after being on this board for awhile. I think the Bb bacterium is rampant in the population and it may or may not cause a percentage of people to contract Lyme Disease (or some other chronic illness).
As has been stated before on other threads by people who know more about the Q-RIBb and the Flow Cytometry test than I do, the only `failing' of the Q-RIBb test was that it may have misrepresented the `quantity' of organisms present. Big deal. The bugs were still there. That was verified by electron microscope in early tests.
Regarding the `discredited Mattman culture medium', guess who supposedly ``discredited'' this medium? Yep, the good, old NIAID. And if you read the study, they NIAID couldn't even culture Bb from blood using their own, preferred Bb culture medium!! Bottom line: the NIAID can't culture Bb from blood, period, no matter what they use. But other labs can, so in my opinion it is the NIAID that is discredited here.
Culturing Bb from blood is very tricky. And according to Lyda Mattman, if you make one, tiny little mistake, the culture will fail. So what the NIAID has proven is that they aren't even smart enough to culture Bb in a medium known to work in another lab. Read it yourself. Study of MPM vs. BSK: http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=87571
And I agree, bubbear, I don't really care about a patent either. Let those who are interested in that call CFR and inquire themselves.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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