cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i have not had this done, but know others that have that post on the IC-network.com. Im sure you could post there.
Im not sure if your looking for general info or fellow lymies who had this done?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
cantgive up, thx for info; went there and did a search; beginning to read there.
someone asked why butt was used vs. bladder, here's an explanation from that board as i'm just starting to learn about this...
"so the test is to measure muscle activity of the badder and the surrounding pelvic muscles.
They put a probe in the rectum to measure contractions of the intestines. Without that, the intestinal contractions will be read as pelvic muscle activity (which has a clinical significance).
They put electrodes around the anus and one on my hip to measure the pelvic muscles. So, the computer picks up the contractions of the intestines and the pelvic muscle contractions.
Subtracting those activities will leave you will the bladder activity. "
*********
have other lymies had this done and were you then diagnosed with IC, interstitial cytosis
posted
I had it twice several years a go...not big deal.....it just hurts when the bladder is almost full and they keep pumping water to the max. The Dr measured too if there is left over/residual fluid after you void.
Posts: 983 | From The sky | Registered: Feb 2005
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bettyg
Unregistered
posted
lymeblue, thx for your input or shall i say OUTput? lol
have to get up 6 am to be there 8 am... uffda!
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quote:Originally posted by bettyg: LYMETOO/TUTU ... TIME TO CLEAN HOUSE; BOX IS FULL AGAIN. thx
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Cobweb
Unregistered
posted
Hey there Betty- being an expert on all things...incontinent, I will tell you of my experience!
First of all I assume someone will be driving to and from the procedure.
Secondly I must clarify that I have no experience with a URO Dynamics test being done rectally-so what I am about to tell you may be irrelevent.
You also may want to skip the next three paragraphs and jump straight to the real urodynamics test.
I did have a test where I was awake for phase one when they filled my bladder with water?air?fluid? anyway they filled it with something until I could "feel it"-to measure capacity, had me hold it and release it.
Then they knocked me out and did a kidney retrograde-which I think was to see if the cause of my pain and incontinence and bloody pee could be due to a kidney infection/abnormality.
The result of this procedure was- more pain, continued incontinence, bloody pee and louder screaming.
Finally another doctor recognized the clinical symptoms for IC and did a uro dynamics test-under general anesthesia.
No pain, all gain, and an 8 by 10 glossy of what the uro-gynecologist called a "rip roaring case of intersititial cystitis".
TA DA. It is my understanding they filled my bladder way more than it has ever been filled before but also snaked a camera in to the void(get it? VOID) and took a couple of polaroids.
My bladder didn't want to work for a couple of days because they also added a mesh hammock in to support it.
Apparently the bladder is not supposed to hang out in one's vah-jeye-nah. How's that for phonetic spelling?
Hope all goes well for you tomorrow. Take Care, Carol
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bettyg
Unregistered
posted
thanks carol for your personal experiences with the procedure. didn't know about a camera; candid camera look out!
i found a really interesting post above with more descriptions from the board recommended to me; had hubby read it tonight.
yes, our close friend who took me to des moines for my hip surgery is driving me monday to this, and tues. to hip 6 mo. checkup! i'll fill you all in when i recover and feelup to sitting.
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
betty-- havent had that particular procedure, butttttttt have had so many others and lived with urinary catheters for weeks on end last year and 8 surgeries in a row on urinary tract.
Let me tell you the BEST KEPT SECRET in the universe about urinary issues. it is called PELVIC FLOOR REHABILITATION and if you can find ANYONE who specialises in it in your area or in your state GO TO THEM. it will make a 100% difference.
I do not have incontinence issues like you and my heart goes out to you, but I have other issues and lots of nueropathic pain in the pelvis. Usually PFR is aimed at women like YOU not like ME so you should be able to benefit greatly from this. My PT has made so much progress with me -- it is INTENSE work. I mean really intimate and well, no words.....but it is WORTH IT.
I hope your procedure is pain free tomorrow. PM me if you want help to try to find a PT who specialises in pelvic floor rehab kay?
best to you, trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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bettyg
Unregistered
posted
trails, thanks for your comments and experiences.
TRAILS, YOUR PM BOX IS FULL; PLEASE CLEAN HOUSE MY FRIEND. nothing to say but thought you'd like to know so you won't miss anyone's important PM to you!
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trails
Frequent Contributor (1K+ posts)
Member # 1620
I have a refluxing ureter now so every time i pee it goes shooting up to my kidney. it is all so much fun i tell ya!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Trails- I agree with you pelvic floor physical therapy has really helped me as well. It is intense as you say and very intimate. I lucked out and had a great PT who was actually my age which made me more comfortable.
Betty- im glad that site was able to help you, i thought it might.
good luck tomorrow.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
trails and can't,
thx again for the links and additional info.
will find out results in PM; this was scheduled 1.5 months ago befre they had to reschedule due to funeral. later.
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posted
i have incontinence too (started a few years back when I was 24). i had a urodynamics test. it made me kind of queasy at first. maybe the idea of a doctor putting a tube up my bum. unfortunately it didn't lead me to any helpful treatment.
why does your doc want to have one done? sorry if you already said why i can't remember.
~catwoman
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
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bettyg
Unregistered
posted
tomorrow night i'll respond more; gone all day today; didn't get resultsdue to doc in surgery taking more longer than they plnned on.
tomorrow at 2 doc appts. different towns!
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bettyg
Unregistered
posted
up for me to type in more comments later today; too tired to do it now.
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bettyg
Unregistered
posted
9-23-07 am,
uro-gyno's rn called me with my results since they were behind in getting results to folks; they were working sat. morning to get the word out!
i do not have stress incontinence; could be helped by vaginal device or surgery which dr. thought would not be beneficial.
i have URGE incontinence caused by BLADDER SPASMS! *********************************************
old meds leave you w/dry mouth; mine is extensive so they are putting me on a new med...
ENAPLUEX, comes in 2 doses; starting me with lighests amount.
dr. recommends physical theraphy for this too. only adozen or less in iowa know how to do this for females. i'm lucky; we have one right here in town 1 mile from me!!! in the past i had her for something else where she discovered by tailbone had gotten dislodged and fixed it.
rn said it would take 6-12 wks. of doing kegel + exercises religiously to notice a difference.
ALSO GETTING MY BLOOD SURGARS DOWN MAY HELP TOO!
i'm t followup in 3-4 months about the meds/pt. followups are easier to get into than regular appts. she also has an email as of the day i saw her; that worked well for us both.
next week they are going to a weeks' uro gyno conference to learn more yet!!
i'm so looking forward to stop this major inconvenience to me!
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
i know--let's celebrate small victories shall we? You have a knowledgeable and helpful pt who KNOWs you!!! this is such great news--you WILL benefit from this.
DO NOT have surgery for this unless you get at least 3 opinions. AT LEAST. okay?
bladder spasms HURT-- i am surprised you havent talked about the insane pain they are causing? For my bladder spasms they rxed belladonna and opium suppositories which I call the STONER BUTT PILLS. they rock, but are intense.....opium up the rump.
I have never heard of the med they have you on....is it working for you?? it would be good know about.
glad this test is behind you...in more way than one---har har.....and that healing times are on! trails
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