Topic: The CDC and IDSA has poisoned the brain of my nursing student daughter.
tailz
Unregistered
posted
What do I do? She's 20.
She reacted to two bands on an MDL Lyme test last year. She also had high strep titers back then and had her tonsils out earlier this year.
She called me this morning and asked me what was located about 6 inches up from her tailbone and 4 inches to the right, because it's been hurting there. I told her it was her kidney. She was also running a temp yesterday and hasn't been sleeping.
She's had kidney stones twice, too.
She is basically saying that long-term antibiotic use is why I am sick, according to what she is reading in her textbooks. I don't buy it though because I'd been on mino in my 20's, and it wasn't until I stopped the mino that I got sick.
What do I do? She won't listen to me, even after what she saw had happened to me.
IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
OUCH Tailz!!! That's a hard one. Unfortunately many people are in the same boat re family members, but your DAUGHTER- that is especially hard. I am sorry. I would not try to convince her of anything. I would just let her have her say and let her know you understand the way she feels and thinks and that is is NOT an issue where somehow you don't _understand_ what is said by IDSA, etc. And then I would say, if this was me, "I'm sorry you feel that way." and drop it and conduct myself as lovingly as possible until the end of time or until she loosens up on the subject a little, whatever comes first. If you try to press it in any way- heck, she's 20!!! Give her a few years. Also, she is in school, and likes to htink she knows everything like many young people. Sounds normal. Except in this case what the textbooks say isn't life, our lives, your life, mine...
Sorry to read it, Sounds painful, Sincerely,
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
my son just tested positive for lyme. he insists he isn't going to end up like me, he is 17, they are so invincable at that age. I am not even taking him to an ID, I decided to just go to the LLMD. I am so glad now that I decided against the ID, I would not want him to get the 2 sides of the story. although he has been sick every year with pneumonia and sick of being sick, so i don't know if he would believe them anyway. he is angry at his dr for not finding it.
make sure you tell her to keep herslef healthy, eat right, take vitamins. if she keeps her immune system healthy, she just may be able to beat this on her own. I went for 10 years without longterm antibiotics and managed to function OK some of that time. I believe in keeping an open mind, after all if we become so stringent in our views, doesn't that make us guilty of what we are acusing the other side of?
the other thing is, and this may sound mean, but whenever she gets sick or a pain or a cold, re-inforce that it is the lyme disease doing this to her. i find my son is much more open to my advice when he is feeling bad.
i know I dont have great advice, but I know how you feel, dont beat yoruself up, and dont feel guilty, this is NOT your fault.
Posts: 615 | From maryland | Registered: Oct 2007
| IP: Logged |
posted
What exactly does she mean that long-term abx are making a per son sick? I doubt that they are acknowledging yeast/candida which is a very real problem but that mainstream continues to ignore. C.diff. would be another one, but that is usually quite obvious. What is she saying? Long term abx cause arthritic condtions?
Kayda
Posts: 582 | From midwest | Registered: Nov 2006
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by tailz: She called me this morning and asked me what was located about 6 inches up from her tailbone and 4 inches to the right, because it's been hurting there.
I told her it was her kidney.
Tailz, that is not kidney. That spot would still be the bones in the pelvis.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
tailz
Unregistered
posted
I don't know what it is really for sure - I just don't want her to suffer like I did. She's not sleeping very well, and I can see it in her face. She's had bloody urine a few times in the past - went on abx for UTI's, and has had kidney stones twice already, and she is only 20.
She says that long-term abx are making people sick. The impression I got from what she was saying was that they were killing off all the good bacteria, so yes, maybe yeast was what she'd been referring to.
I thank God that she may actually change her major here soon before they brainwash her too deeply.
Every time she has been sick though, I've been telling her it's Lyme. Thanks!
IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
this happened to me too. very prestigious college-she's a chem major. if i bring up the "L" word she won't speak to me for months.
i help those who ask for it at support groups and just pray.
she's young. maybe there will finally be a real cure before it's too late.
it's like alcoholism. if they are adults and in denial...there really is nothing you can do until they decide to seek tx.
i think for me it's best to back off now...that way it will be easier for her to come to me for info in the future if she decides to. one of the other kids finally did come to me about it.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
My friend's 17 year old niece was just diagnosed with Lyme, I gave my friend all the information I've found here and told her that she needs to see a specialist, that 2 weeks of abx ain't gonna cut it.
The niece's reaction was that she does not need to see a specialist, that she will be fine now. I said ya, I thought the same thing 18 years ago when I was first diagnosed and here I am, barely making through each day.
They do think they're invincible at that age and there's no talking to them, so don't even waste your breath. My mother recently reminded me how stubborn and pigheaded I was back then.
They are in denial, nobody wants to hear that they have to see a specialist for anything or that they might have a long road of treatment ahead of them. Heck, even over the past several months when my mother kept telling me all my symptoms were probably Lyme, I kept telling her she was nuts.
On a more positive note, my twin sister is a nurse and I have her full support. She's the one who found Lymenet for me and told me to get my butt to a LLMD.
-------------------- Jennifer Posts: 266 | From Ocean County, NJ | Registered: Aug 2007
| IP: Logged |
tailz
Unregistered
posted
Thanks. I just can't understand how she could see me drop to 88 lbs like I did and hug a skeleton, and not believe that she, too, has Lyme.
She seems to realize she needs an abx. She went to the doctor because she had diarrhea and her throat hurts, and she called me because the doc she saw told her to take Immodium AD, that she had the flu, and didn't really care about her throat and allergy symptoms.
She called her dad for names of doctors. I really don't even think she believes I have something chronic, because according to her books, Lyme is curable.
I'm going to back off some, but it's going to kill me.
Oh - she had her dog tested for Lyme at my urging, but she didn't have him tested for any coinfections - so if it's her dog she seems to care more. He had something going on with his kidneys, too.
I demanded abx for my cat whose kidneys were FAILING several years ago and again this past spring. He recovered somewhat.
I kind of think even animals are suffering from these subclinical bugs, too. Why do abx help my cat and her dog, even though white counts are normal?
IP: Logged |
posted
Here's a nice solution for the young things who think they know it all, especially nurses in training. Give them some articles on Chinese herbs and encourage them to take lots of garlic and Ciruculation P capsules. This should fix their Lyme disease. A nice side effect is that they will smell like garlic and have fewer girlfriends/boyfriends thus remaining celibate a bit longer.
Paula Carnes
-------------------- Paula Carnes Posts: 23 | From Las Vegas, NV | Registered: Jan 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic