Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
EDIT- It's come true!!!!
I am SOOOOOOOOOOOOOOOOOO happy! You will be too! See page three and break out the party hats!
We're gonna dance tonight!!!
In the sea of pollution that we are forced to wade through... I believe there is finally some relief on the way.
I think we will see it this week.. but don't throw me in the septic tank if we don't... ok?
Please be ready with pen and paper.. or key board if you prefer... as we will need to put on our dancing shoes and do a real nice rendition of the funky chicken when it is announced.
And IF I was able to announce it now.. you know I would.. so don't ask! It isn't MY place to do so... and I need to be respectful. I HATE secrets.. why do people tell me stuff I can't share! grrrrrrrrrrrrrrrrrrr...
But I am sooooooooooooo excited. And right now I see so many disappointed folks here.. and it breaks my heart. So I wanted to let you know there is some good stuff on the way.
We all need some hope... and I think the tide is turning in our favor.
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
You know Tinny I hate it when people do this Especially when it looks to be good news!!! Are you less likely to pop now? Now I want to pop, but don't know why!
Posts: 1251 | From california | Registered: Apr 2005
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I obviously don't know what this is about, but I have to admit that it made me smile and give a positive vibe flowing through me.
And coming from YOU makes this very very credible, so thank you for the hope. Will look forward to hearing some good news for a change.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Thanks, Tinny. I'll have to apologize now for referring to you as "Goofy."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yes.. do the dance dear ones. Please enjoy.
As I said I don't like having to say I can't tell... but it wouldn't be proper to let the cat out of the bag.. as it isn't MY bag and it was years in the making.. so those responsible should have the pleasure.
I just KNOW how depressing it can get with bad news popping up all around... so MAYBE this will lighten your hearts and keep your spirits up.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am anxiously waiting with baited breath....
How wonderful it must be to be the one who can brighten other people's days....
TinCup-Your cup surely runneth over.
You always make my day anyways.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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CaliforniaLyme
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Member # 7136
posted
I hope so. We need something.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Even the IDSA can't hold back the tide... of truth.
I hope it has something to do with the IDSA eating crow.
Then again, I also hope it has something to do with Dr. J.
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
It will be so nice to hear the good news! Are we guessing for now? If so...here is my wish-list!
1. Dr. J in CT was cleared of all charges, and a full apology is on the way?
2. Blumenthal has won the anti-trust suit, and the IDSA will be forced to withdraw their guidelines?
3. Dr. J in NC is opening a new clinic in a state that has more sense?
4. Dr. F has finally published his ground-breaking study that necessitates long-term ABX usage?
Posts: 7052 | From Colorado | Registered: Mar 2003
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
OK, not to be too pushy....but....
Are we talking hours, days weeks, months?
The anticipation is killing me....a rough estimate would be dandy...
I'm not very good with suspense...
Carol Ann
Posts: 1062 | From CA USA | Registered: Jan 2001
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Michelle M
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posted
Truth WILL win.
I just can't wait!!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Cobweb
Unregistered
posted
quote:Originally posted by Melanie Reber: It will be so nice to hear the good news! Are we guessing for now? If so...here is my wish-list!
1. Dr. J in CT was cleared of all charges, and a full apology is on the way?
2. Blumenthal has won the anti-trust suit, and the IDSA will be forced to withdraw their guidelines?
3. Dr. J in NC is opening a new clinic in a state that has more sense?
4. Dr. F has finally published his ground-breaking study that necessitates long-term ABX usage?
5. All of the above plus
6. CanLyme has a booth in San Diego?
7. LDA has a booth in San Diego
8. ILADS guidlines supplant IDSA guidlines
9. ALL LLMD's are given immunity from prosecution.
10. Long term consumption of ice cream cures lyme disease.
posted
I'm soooooo new to all of this, but I find I can share in the excitement of the anticipation of good news with all of you that I know have been suffering for so long. I've had the symptoms for a long time, but am still waiting on a diganosis...pending igenex results. I don't know much, ok, nothing about all the "political" aspects of lyme...I'm reading though through my brain fogged memory...but can I enter a vote for the one thing I DO understand? The ice cream cure???????
A) Wonder pill that cures the nightmare of Lyme B) Wonder pill that makes the IDSA go away?
Of course, A would also make B go away.
Posts: 984 | From San Diego | Registered: Nov 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
good news? YAY! we could use some of that flavor.
to add to the hope-it-is-this list;
1. at least a dozen other AG's have signed on to sue IDSA too, so it is not just poor Blumenthal duking it out with those bad guys all alone.
2. Some rich patron has given Dr. J. a million dollars so he doens't have to worry about dwindling monies in his legal fund anymore.
3. The White House is going to issue a press release saying Pres Bush has chronic Lyme, that he is being treated by one of our LLMD's,and that by executive order, henceforth in the kingdom everyone with Lyme will be treated with antibiotics until they are well, no matter how long it takes and whether or not they have insurance.
But you know what, TC? Any good-good news would be good enough.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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17. the federal and state lyme bills being signed off; PRES. BUSH MAKING IT OFFICIAL!!
18. LYME BILL WILL MAKE SURE WE DO NOT HAVE TO PAY OUT OF POCKET FOR OUR LYME DISEASE APPTS., TREATMENTS, MEDS, ETC.
19. insurance companies will have a GRANDPARENT clause and will REIMBURSE US BACK FOR ALL MONEY SENT OUT OF POCKET!
well, tincup said we'd get the NEWS SOMETIME THIS WEEK....will be a long 6 days!!
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sometimesdilly
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posted
aw shucks, toot-toot- you;ve made me blush.... Posts: 2507 | From lost in the maze | Registered: Aug 2006
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trueblue
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Member # 7348
posted
quote:Originally posted by breathwork: OK, not to be too pushy....but....
Are we talking hours, days weeks, months?
The anticipation is killing me....a rough estimate would be dandy...
I'm not very good with suspense...
Carol Ann
I'm with Carol Ann! (but am also smiling)
I like everyone's guesses and wishes but would the ice cream cure override the chocolate cure? I hate these 2 standards of care things.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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5dana8
Frequent Contributor (1K+ posts)
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posted
Thank God...some good news
I can't wait to hear, would a bribe do it? How about a years supply of icecream?
Thanks a head of time Tinnie
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Alright, alright everyone!!! Enough talk about ice cream!!! Especially chocolate ice cream!!!
I'm sitting here with a qt. of bunny tracks ice cream in my freezer, that has learned my name!!!
I'm trying so hard to be good!! I only took my abx an hour ago!!!!
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
ok- so logic leads to only one or two places already named.
and since in any case any one of the possibilities already named would be deliriously happy news, aaaahhhhh..
thanks, TinCup...
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
It must be one of these per Tincup's post which was: (This is MY personal favorite.. although any of the others would be PERFECT too.
"Long term consumption of ice cream cures lyme disease."
Hint? You want a HINT?
Ok.
ONE hint only!!! I already feel bad I can't say.. so don't make ME feel worse.
I don't know how many guesses you all listed.. but it is listed on the post).
These are listed on that post that I (think) Tincup is referencing...
6. CanLyme has a booth in San Diego?
7. LDA has a booth in San Diego
8. ILADS guidlines supplant IDSA guidlines
9. ALL LLMD's are given immunity from prosecution.
10. Long term consumption of ice cream cures lyme disease.
Any thoughts? #8?
-------------------- sunnymalibu Posts: 192 | From california | Registered: Jul 2006
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Not to sound greedy but can we have all those things AND ice cream?
Kidding, any one will do and I will do the happy dance. (Be afraid, very afraid... you guys have never seen me dance!)
Ok, I'll sing in the meantime...
The waiting is the hardest part Every day you get one more yard You take it on faith, you take it to the heart The waiting is the hardest part...
(btw, my singing is only marginally better than my dancing)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Boomerang
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posted
OH my gosh!! I can't wait to hear the good news. Soon? Soon? Oh please, soon?
5dana8
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Member # 7935
posted
Hi Tinnie
"The hint is listed on the post"
On your first post or someone else's post?
Your post I got 3 references to water "Septic Tank" "sea of pollution" "the tide is turning in our favor" if it has something to do with water I am really clueless...
or just plain ole clueless
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by 5dana8: Hi Tinnie
"The hint is listed on the post"
on your post or the whole thread?
Your post I got 3 references to water "Septic Tank" "sea of pollution" "the tide is turning in our favor" if it has something to do with water I am really clueless...
or just plain ole clueless
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Boomerang
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posted
lol dana,
I think we are all clueless. After reading your post, I'm wondering about water also. Posts: 1366 | From Southeast | Registered: Sep 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Oh, fine, all this talk of water, now I have to pee!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
I'm betting on #8. Although it would be great if all LLMD's were given immunity from criminal prosecution there would have to be lenghty hearings and I don't think that has happened.
-------------------- sunnymalibu Posts: 192 | From california | Registered: Jul 2006
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Something that involves research would be years in the making. Melanie's last one on the list would take years.
quote:Dr. F has finally published his ground-breaking study that necessitates long-term ABX usage?
posted
[QUOTE]Originally posted by trueblue: I like everyone's guesses and wishes but would the ice cream cure override the chocolate cure? I hate these 2 standards of care things. Another AMEN!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
I'm betting Melanie has it on her Wish List.
And concerning ice cream - I believe it has curative powers, especially when it contains chocolate. My own personal research seems to prove it's true.
Tincup, we'll be staying on LymeNet a lot this week....checking for the big announcement!! Posts: 4638 | From South Carolina | Registered: Mar 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well you've got me laughing now.
Yes. Chocolate and ice cream. What a choice!! HA!
Sunny... and others who don't know I am not the brightest bulb on the tree...
PLEASE don't try to read into my posts for hidden clues. You give me too much credit (but thank you). I have to admit I am not nearly smart enough to plant hidden hints in them... but I am glad you thought I MIGHT have been!
Garden said.. "Is this so big that we might hear of it on the news before reading it here?"
It is big. It will be something YOU will want to put in the news and we will want you to put in the news.. so get your paper and pencils ready.
breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
After visiting my daughter at college today, I picked up a half gallon of cinnamon chocolate hand made ice cream at Mariannes, the best ice cream parlor in Santa Cruz, CA...or any where near abouts!
I think it has curative properties for sure!
Carol Ann
Posts: 1062 | From CA USA | Registered: Jan 2001
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posted
The Detroit tap water cure for Lyme mentioned by the IDSA in the NEMJ article this week actually has been found to work???
Posts: 13117 | From San Francisco | Registered: May 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Please tell me that it's something that means I don't have to have the IV jammed into my arm today.
I'd much rather have chocolate or ice cream or chocolate AND ice cream or chocolate ice cream.
I know if it was anything regarding easier Tx or cure you wouldn't hold that back.
I hope it's something that means less fighting with ducks and insurance companies.
Of course I also hope it means Dr.J is safe from persecution and they'll update that pediatric "Red Book"!
OH please!!!!!!!! I need good news today!
Did I mention in my post about not hearing from the infusion company that I DON'T HANDLE SUSPENSE VERY WELL?!
PLEASE tell me!!!!!PLEASE!!!!PRETTY please!!!! Pretty, pretty please with chocolate & ice cream on top!!!
What if I get taken out by a herx & can't crawl to my computer all week? Please tell me.
I NEED GOOD NEWS!!!!!!!!!!!!!
You're a big tease, Tinny Teaserpants!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Jellybelly
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Member # 7142
posted
TC, will it make the NATIONAL news or will it be something in a local news mostly?
Posts: 1251 | From california | Registered: Apr 2005
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Cobweb
Unregistered
posted
I know I know I know pick me pick me pick me OR
Watch the ABC news cast tonight-WJL out of Washington DC.
Tinny can't tell us until after the broadcast-and neither can I.
Gee, I'm getting my smarts and my good looks back all at the same time.
Just so no one gets their hopes up too high-it does not involve ice cream-
but there's still time for us to have an ice cream party before the broadcast-
everybody bring their favorite flavor-with toppings.
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
So who told you Webby? Is it a local news story in DC? or national? Will I be able to see it Cali?
Posts: 1251 | From california | Registered: Apr 2005
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
I have to wait?
Please know that this is very hard for me.
I've been known to use a single edge razor blade to cut the Scotch tape on my Christmas presents so I can slide the wrapping off and peek at my present BEFORE Christmas.
And then retape it.
I am driven to know...
What IS it?!
;-)
Posts: 9426 | From Sunshine State | Registered: Mar 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Webby will we know today?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
AliG
Are you going to have your pic line put in today?
I just wanted you to know I made great progress when I did IV 3/4 years ago.
You'll be in my thoughts & prayers today ~
Healing hugs Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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quote:Originally posted by Tincup: It is big. It will be something YOU will want to put in the news and we will want you to put in the news.. so get your paper and pencils ready.
And yes.. you might hear it on the news first.
You made my eyes water when I read this I can't wait to find out what this is all about! Thanks for giving me back some hope!
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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shazdancer
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Member # 1436
posted
The release of a certain movie, perhaps?
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Just in the nick of time TC. How'd you do that?
Thanks for throwing out this lifeline.....
I'm gonna guess the Lyme Research Bill being passed.
What do we win if we're right??
Chocolate in any form would be o.k. with me!!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6170 | From Columbus, GA | Registered: Jul 2004
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posted
I think... but I don't know... perhaps it's that a certain paper is finally going to be published. I hope I'm right... but I can't eat chocolate
I'll have to settle for a lifetime's supply of healthy, organic veggies??? Doesn't seem quite the same somehow... Posts: 194 | Registered: Jul 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Please, please post it here when it is announced.
I don't get local channels since Katrina.
I will probably miss it unless it is here.
I don't mind being the last to know as long as I know.
I am really wanting a quart of ice-cream from Baskin Robbins now.
Thanks you guys!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
There wasn't anything earth-shattering on the ABC affiliate. So you can forget that.
They talked about how Lyme is endemic in certain neighborhoods and how none of the local jurisdictions is doing anything about tick prevention. At least that's what I think they said!
We'll have to remain in suspense. I am clueless, but that's nothing new.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"You're a big tease, Tinny Teaserpants!"
Flattery won't get you anywhere. My lips are sealed.
And by the way.... you all are crazy! You make me laugh.
And I don't believe I started this post out for it to be 20 questions... just so ya know.
You keep chipping away at me.. and sneaking in little questions.. but I can't play that game cause I am too easy to read. I tried to sneak in the chat one night just for fun and our friend Beverly pegged me right away.
You all know me too darn well.
But I will say it isn't local news for just here... this would be more national related stuff... meaning good news for folks with Lyme everywhere.
You know you are making me feel bad not being able to say... but then I remember being the oldest of 5 kids.. and how FUN it was back then!
nah nah nah nah nah... hehehe
PS. I don't know how/where it will be announced.. but if I hear anything.. I will be here johnny-on-the-spot to share.. and you all do the same thing.
posted
*gets in line for ice cream* Posts: 526 | From NJ | Registered: May 2007
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by Marnie: I have to wait?
Please know that this is very hard for me.
I've been known to use a single edge razor blade to cut the Scotch tape on my Christmas presents so I can slide the wrapping off and peek at my present BEFORE Christmas.
And then retape it.
I am driven to know...
What IS it?!
;-)
I'm telling Santa!!!!
I have a friend that used to do that, it was so funny and she was really good at it. You might know her. Do you guys have a club?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Ok, Tinny Teaserpants, hahahah, I missed that first read. (Funny Ali!)
Ok, so we know this much... It will be something national and involves either water, chocolate, ice cream or maybe even Lyme disease.
Am I close?
*goes scavenging for chocolate because the stress is too much* (hey, any excuse works for me)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
i think when we hear the good news.whatever it is, that the Queen of Chocolate, Cave 76 (or is it 67?) should shower us all with gobs of Godiva.
just a thought.
dilly (wickedly full AGAIN of local chocolate coconut almond ice cream) Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
I just got here, and the anticipation is killing me...or is that just the lyme? From which source might we expect to hear such news...Fox News? Heh. New England Journal of Medicine? HehHEh.
LM
Posts: 212 | From Eastern CA | Registered: Apr 2007
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bettyg
Unregistered
posted
is this what she is referring to that she sent me a litle whiile ago?
AfterTheBite wrote:Mon, 8 Oct 2007 23:24
PRESS RELEASE
Centreville, MD October 9, 2007 --
Members of the Lyme Disease Education and Support Groups of Maryland have joined national and International organizations in voicing concern over a recently published article in the NEJM, "A Critical Appraisal of Chronic Lyme Disease".
The article claims chronic Lyme disease is now a ``misnomer'' and antibiotics are not required to treat this complex infectious disease. They state the physician's role in dealing with patients who remain sick when the author's ``cost-effective'' treatment plan fails should be restricted to only providing ``emotional support and management of pain, fatigue, or other symptoms''.
Lucy Barnes, director of the Lyme Disease Education and Support Groups of Maryland strongly disagrees. ``Chronic Lyme disease has been described in detail in the medical literature by some of these same authors and many others for the past 27 years.
To suddenly say after 800 scientific articles have been published that chronic Lyme is simply now a ``misnomer'' and in turn eliminate all access to antibiotic treatment for patients whose doctors have prescribed it, jeopardizes the lives of all our residents.
Furthermore, their claims cannot be substantiated by the bulk of unbiased scientific medical literature or by chronically ill patient's clinical outcomes.''
In Maryland, more than 2/3 of the $430 million spent annually on Lyme related costs are attributed to those who are chronically ill and require treatment past the 2-4 weeks currently prescribed.
In fact, up to 60% of Lyme patients have been shown to relapse months to years later when using the short term treatment protocol recommended by these same individuals.
The author's rationale for promoting their new ``no-chronic-Lyme'' theory has not been officially determined; however, patients are concerned about motives since a number of the authors are facing possible charges stemming from the Attorney General's investigation into antitrust, exclusionary conduct and illegal monopolization practices directly related to some of the authors own Lyme disease treatment guidelines (Infectious Disease Society of America).
In addition, several of the NEJM article's creators hoping to wipe out chronic Lyme with a stroke on the keyboard and one journal article (Feder, Johnson, O'Connell, Shapiro, Steere, Wormser) have admitted conflicts of interest by having ties to the insurance industry and patents on Lyme products.
They also accepted Lyme related research grants and/or own equity in or have received funding from pharmaceutical companies.
Some have been paid to testify in civil, criminal and medical malpractice cases involving Lyme disease patients and have reviewed Lyme disability claims for insurance companies.
Three of the Ad-Hoc Group authors are reported to be from Johns Hopkins Medical Institution in Maryland.
One proponent of the no-chronic-Lyme theory, E. McSweegan, was demoted from his position as head of the NIH Lyme disease program after an incident involving the harassment of Lyme support group members.
Two other employees from Hopkins (P. Auwaerter, JS Dumler) are listed as authors or editors on the controversial Infectious Disease Society of America's Lyme disease treatment guidelines which are currently under investigation by government officials for possible illegal practices. *************************
``Unfortunately, there have been major problems [other than the ticks] facing people with Lyme disease over the years,'' Barnes admitted.
``First of all, some of these authors claimed Lyme was a virus and needed no treatment. They also said only deer ticks that were attached for 48 hours could transmit Lyme and nearly everyone with Lyme had a bulls-eye rash. None of that was true.
Many doctors and patients were misled for years by erroneous information and many patients suffered serious consequences from their unsubstantiated theories.
In addition, the Lyme tests the authors recommend and which Maryland residents pay over 2 million dollars per year for, according to the authors own research and other studies, still miss 75-90% of the people who have Lyme disease.
I know of no other medical condition for which these set of circumstances and these inadequate diagnostic tests would be acceptable or tolerated. I can't believe these tests are still on the market and still being promoted by these authors."
"The continued use of their unreliable tests negatively affects studies they have conducted and their conclusions.
Their failed vaccine, based on these same types of questionable studies and lab tests, was pulled from the market after 1,000 adverse event reports were filed with the FDA and now their diagnostic and treatment guidelines are under investigation by the government for illegal practices.
With all of the author's incorrect theories floating around unchecked and their unwillingness to incorporate scientific or medical viewpoints other than their own into their recommendations, patients are the ones paying the ultimate price."
Barnes cautions, "At this point I would have to warn people with Lyme to consider credibility and motives when deciding if chronic Lyme disease exists and if it requires more treatment than a pat on the head and a lecture trying to convince people they aren't really sick.
Or better yet, take a look around at the increasing number of people who are chronically ill or disabled from Lyme, as well as those who have died from tick borne diseases after being treated with their protocols. That should tell the whole story.''
Contact person: Lucy Barnes, Director Lyme Disease Education and Support Groups of Maryland [email protected]
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
ahhhhhhhhhhhhhh.. Bad bad BettyG.
Now you KNOW you can't keep a secret.. so I wouldn't tell you the secret!!! If I HAD told you... you'd have blown it for sure!!! HA!
By the way...
No.. that isn't it.. but nice try.
MUCH bigger news than my stuff!
By the way.. I've been all night sending that press release to all the different state legislators. Wanted to say again the list over in Activism is SO helpful!
THANKS to all who contributed to it.
It helps me get the word out!
Ok.. you know the rules.. go to bed early so morning will come sooner.
That is always the SORRY line they would use on ME on Christmas Eve. It took till I was 35 before I figured out that wasn't true!
posted
Wonderful press release, TC, it carefully raises all the issues with the IDSA guys.
Including the failed vaccine, which I think is a key point.
I watched the "Medical Nightmare" videos yesterday (the two half-hour reports from the TV station on Long Island, now available on YouTube). The Burrascano part was great.
But the interviewer kept bringing up insurance companies as the major problem. I don't think so.
Of course insurance is not happy with endless IV antibiotics.
But if the "medical experts" said they were necessary they'd pay, just as they do with cancer treatment.
Our problem is that shoddy science and murky motives are running the show, but most people can't believe that the medical establishment can be that wrong, and that unwilling to correct itself.
Posts: 74 | From MA | Registered: May 2007
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Cobweb
Unregistered
posted
Triumph! I know why the caged bird sings... something something something wings
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Wow, some BIG good news coming our way..... wonderful!
So, maybe this means that Lymie prayers are working? Hey, sure can't hurt.....
anytime during the hour.......... 6 p.m. west US (Pacific Time) 9 p.m. east US (Eastern Time)
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Especially when it looks to be good news!!! Are you less likely to pop now? Now I want to pop, but don't know why!
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Please tell me.![[Frown]](frown.gif)
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pick me pick me pick me OR![[group hug]](graemlins/grouphug.gif)
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