randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i went to see my favorite gastro this morning. told him all my symptoms. he was very concerned about the burgundy colored stools. he ordered a new stool test and blood work for celiac, put me on flagyl (which i start after i do the stool work), and elavil at night.
i told him my primary did the stool work at the beginning of september for c. difficile and it was negative. well, guess what?? he had the lab results and my primary did not order any test for c. difficile. so here it is, almost two months later and i've not been treated!!! i'm furious at his office as they told me they tested for it and all results were negative.
he said he thinks it's c. difficile and antibotic induced colitis.
said absolutely NO antibiotics, nothing until this clears up.
here's the bad part. i came home and told husband. he started yelling at me, tellling me i was a hypochrondriac and that i went to dr's to get drugs and i was a drug addict. that i told people i had all these diseases to get attention.
he just went on and on. i sat there and didn't say anything.....talk about making me feel worse.
so at least we're taking action to improve things.
he wanted to do a colonscopy but i said no, let's try the flagyl first and see what happens first.
right now i just think i'll go to bed........
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I'm praying for your husband!!!
And blessing you with all the blessings I can think of*)!*!! Rest and take your Flagyl*)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
Thank you for letting us know how today went. I'll be praying you get good lab results back and the flagyl sits well with you.
I'm so sorry about your husband. Feeling crummy is hard enough even with a good support system...yours is downright hostile.
Ignoring him (as best you can) might be the healthiest thing you can do for yourself right now. Just know there are many people who understand what you're going through and are feeling your pain too. You're not alone...even if we're not there with you physically. Posts: 136 | From North Carolina | Registered: Apr 2007
| IP: Logged |
posted
So glad u posted about ur visit. I have been watching for it.
Glad u followed up on this!
Hate what u have to go through at home. Only makes matters worse when those closest dont get it.
Your not alone though!! In spirit for sure!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Hang in there!!
Sure glad you got the tests you needed.
Hopefully your hubby will come around. Perhaps he's just frustrated.......this illness can sure make people that way.
Take care!
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
posted
I am going through a similar situation for last three months. So far all the stool culture and C. Difficile tests are negative but abdominal pain and diarrhea are still there. My doctor is giving me Flagyl in a few days because we don't know what else to look for.
Make sure you get your potassium checked. Mine dropped to 3.2 from this ongoing problem and I am taking supplements because low potassium is very dangerous. Sorry about your husband-mine has no comment when I talk about this because he is so burned out.
Posts: 425 | From NY, United States | Registered: Mar 2005
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I would send a letter to your primary doctor stating that you were told you were tested for c. dif but that you just visited a GI doc who said the test was not in the records. Ask if you can please be sent the test results for the c. dif or informed if the test was never run.
Keep a copy of the letter, and if the test was not done, keep a record of the response. In case you have c. dif and it becomes serious, you want a record of the doctor's failure to test.
As far as your husband goes, any chance he would go to a therapist with you? How about a support group meeting? Or even your next GI appointment? Sometimes it takes a third party intervention.
I wish you the best.
-A
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am so glad that you found some things out.
The least being that you have never been tested for c. diff
I have a frying pan with your husbands name on it (I already have one for mine).
It is a heavy duty one.
You try very hard to block him out.
You need to get better for you and not listen to his (probable) Lyme induced rantings and ravings.
Sending you hugs and prayers.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
bettyg
Unregistered
posted
randi, sorry to read everything that has been going on physically, mentally, and emotionally at home.
c difficile are expensive; i'm sure this was 1 of "exploratory" tests bcbs refused to pay for.
also check celiac disease out as well. i never knew i had that for 35 - year!
hubby, tere becomes a time for all of us where spouse becomes that way all they hear from us is complaining about the many DUCKS WE CONSTANTLY SEE and ge nothing out of appt.
he meeds tp be in support group for SPOUSES so they can share what helps them so the remain SUPPORTIVE TO US. GOOD LUCK.
IP: Logged |
posted
I'm so sorry to hear this, but very glad that you now have some answers. I hope the Flagyl starts to straighten you out soon.
I'm also sorry about what you encountered when you arrived home. Everyone needs support in this disease. I hope you have someone close to you other than your spouse who you can share these types of things with. Honestly, if it were me, I would stop sharing my health problems with my spouse if I received the kind of treatment that you described.
The spouse needs support too, and not from us, but from others. If they don't seek it out, then it is not our fault. All we can do is suggest it ONCE or maybe twice and then drop it.
For me, I know that it is not good to "go to the hardware store for bread". In other words, it is not good for my recovery and health to try to get caring and support from someone who cannot currently give it. I realize this could create an area of your life that is not shared with your spouse, but it may not be forever, and it could very well be better for both of you.
You have the right not to be berated in your own home. That was out of line in my opinion.
Find someone else to share (including us) your experiences with. I think you will be much happier.
Robin
Posts: 276 | From Maryland | Registered: Dec 2006
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm sorry your husband had to act that way. It's depressing. It scares me that spouses can do this even after living with us and seeing how badly this can be for us. It's just mind boggling to me. I guess they think we enjoy wasting our life "acting" like we're in pain or hurting. I just don't understand.
It scares me because I always want my spouse to be supportive. I don't know what I'll do if he, at one point, is not supportive.
I'll be thinking about you and praying for you to feel better!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
![[Mad]](mad.gif)
![[Eek!]](eek.gif)
Printer-friendly view of this topic