posted
I know I sound like a broken record, but can anyone remember when you first had hope that you weren't crazy or a hypochondriac and discovered there may be a diagnosis that explains all your symptoms? I've had days of pain so horrendous that death really seemed like the best treatment. I have only recently found this site and the help herein. With all the controversy it seems some truly helpful posters have migrated to other places. Desperation sometimes leads to bad decisions and I appreciate both sides of this treatment issue. I think naysayers on both sides just makes me pause and not rush into anything headlong. I view all posts as cautionary and not a direct slam against the info presented. Just wondering if I can still count on help here? Posts: 111 | From Pa | Registered: Oct 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Blackpowder,
I hope that you can always count on some help here.
I do.
I remember when I finally found a doctor who would do a Western Blot on me (not Igenex- didn't know enough yet)
The waiting for 10 days for the test results thinking if it is not Lyme then
Maybe I have a brain tumor or maybe I really am losing my mind.
When the call came that I had some positive bands on this test I cried.
Cried with relief. I knew there was something wrong with me.
I didn't know exactly what having Lyme meant, I was just glad to have something.
Hang in there. Don't worry the greenhorn status will pass quickly.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
BP-
I know how you feel. In the first 2 months I really contamplated suicide. Not so much that I would have done it, but maybe if I got hit by a mac truck it wouldn't be a bad thing.
The only thing that kept me going and still keeps me going are my kids and hubby. If they were not here I dunno~
I can say that I did make improvements. After being on my LLMDS protocol, I saw improvement. Right now I am having some sort of set back of super long herx.
I have to admit that this setback kind of upset me as I was making slow steady progress.
I knew it would be a rollercoaster but it is discouraging.
I know the message board is loaded with bad vibes and drama now, but yes you will still get help. This will all blow over and that will be that.
So please post whenever you need to. You can always PM me if you feel you are not getting the help you need.
To be honest I still feel like I am looney lol.
I don't know as much as a lot of folks here but I can be a shoulder to lean on.
Melissa
Posts: 3905 | From USA | Registered: May 2007
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YES, I believe you can count on help here. I'm not sure what the back story is to all of this controversy going on here on the board, but I'm choosing not to add to the uproar.
This place was a lifesaver for me! Please stick around! I hope that things settle down soon.
I would love to return the favor and help someone feel that same overwhelming peace of mind that I experienced when I found the people on this board.
It's so nice to feel validated and understood by others who are going through this same journey........and to be able to gain such valuable knowledge from people who are at various stages in this Lyme-world. We need to support one another!
There is so much to say to you, but the best advice I would offer right now is to READ, READ, READ all you can.
You will learn an enormous amount of information and you will see all sorts of viewpoints. Just research, but also use your discretion.
I'm a firm believer in the phrase "Knowledge is power!" I think it takes some of the fear away, at least for me. Welcome to the board!
Take care,
terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
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posted
I've only ever posted on two message boards regularly ... this happens every so often on both boards ...
There are still people here to help.
I think I remember a full moon out there recently
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Don't worry, this forum will not be abandoned. There are a lot of good people here who will not leave.
As sixgoofykids noted, this sort of things happens on internet forums. I've only been on one forum where this type of problem was tightly controlled and it took a LOT of time from the forum owner. Just not possible for most forums to have people who can dedicate so much time. I try to view any internet forum as if I'm sitting in someones living room and conduct myself as I would under those circumstances.
It's helpful to continue researching and learn as much as you can for yourself so that you can make reasonably well informed decisions on your own since as you know, there are many pros and cons of various treatments, both abx and alternative.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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