LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Flagyl is doing a number on me! Any help is appreciated

 - UBBFriend: Email this page to someone!    
Author Topic: Flagyl is doing a number on me! Any help is appreciated
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
HELP!

Its happening.. I think the flagyl has gotten to my brain.

This is day number 6 of Flagyl. I'm up to 500mg 3x per day. I'm really having a hard time right now.

I have mini panic attacks that last around 5 - 10 minutes. I'm actually on the downward slope of one right now... it's what's prompting me to send this message.

Can anyone help me? What can be done to get through these rough times? I feel very empty inside. Impending doom... I know it's the flagyl doing it's evil, but it doesn't make this any less real for me.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215

Icon 1 posted      Profile for lymeHerx001     Send New Private Message       Edit/Delete Post   Reply With Quote 
Killing parisites and cysts and killing you.!!

Well just drink water and try some advil or aspirin. No alcohol please. Its contraindicated.

Posts: 2905 | From New England | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

Icon 1 posted      Profile for Michelle M   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dear Visual,

In the past, my LLMD has given me permission to back off on a med when it is about to do me in!!!

Flagyl is about the worst of the worst.

I don't doubt that your LLMD would do the same.

Especially at your EXTREMELY HIGH DOSE.

Call and leave a message like this with his office:

"Please tell Dr. ___ I am having a horrid time on Flagyl; cannot take it, need a two-day break at least, will take one unless he calls back and says I can't. Thanks SO much!!!"

Then detox like crazy with tons of water with lemon, warm baths with a bit of epsom salts, rest, and remember, it is going to relent soon....

It is a POWERFUL drug known to cause terrible depression.

This is NOT you!! It will pass!

Now, go do that -- maybe you'll get lucky and get a call back from your doc, but if not, I'd leave that message.

Hugs,

Michelle
PS This is just what I would do, and not medical advice, of course!!

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think I'll do that... see what he says.

This is terrible. I felt pretty good last night.. I felt a little bit manic...

I felt mellow this morning... and a bit sad.

This late this morning I got bogged down and stressed at work. It kicked off a bad panic attack. I feel pretty screwed up.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
Visual, have you done a search on this site about flagyl? It was the worst of the worst for me. I effected me mentally, emotionally and physically.

Sometimes one man's medicine is another man's poison.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6478 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have done countless hours of research on Flagyl on this site. It sounds like it caused all sorts of issues for those taking it.

However, since I was feeling somewhat better on the the flagyl, I thought maybe I was tolerating it well. I've been on this dose of 1500 mg per day for 3 days now.. I figured if it was going to hit me, it would have hit right away.

I guess I was looking for reinforcement from others that the flagyl is kicking in... and suggestions as to what helped them get through the rough times.

So far some pretty good ones.

I did call the docs office.. left a message. Not sure if I'll hear back from them. In the mean time... I'll suffer through my day.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

Icon 1 posted      Profile for Michelle M   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
MY doc says:

Do I WANT you to hang in there? YUP.

Is it gonna hurt? YUP.

Am I gonna be mad at you if you just can't? NOPE.

He has allowed me, in past, to decrease the dosage of a med, then try "sneaking back up on it."

I'm thankful your stint on Flagyl is a relatively short one.

We are with you in spirit, Visual...!!

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
Now comes the point in time where my second dose is due... and I'm unsure as to the direction I should take. (still no call back)

I just wish I could have peace set in my heart. The world seems so fast and feverish. There is no rest for the weary.

Staying the course and hoping for the best..

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
ASD
Junior Member
Member # 13308

Icon 1 posted      Profile for ASD     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just started flagyl too- Am in the middle of babs tx-mepron, zith & artemisia and my ND just added flagyl. I was doing so well so I said well lets get this part over with so...

I live in Europe-have NY lyme for 19 yrs-and the protocol of a Swiss LLMD is to pulse it for 3 days at 3x 500 mg, wait a week and then go back to the 3 days so that's what we're doing.

For those 3 days, I was ice cold and then when I stopped huge babs herx w/sweats & air hunger. Still strugling 4 days later and not looking forward to the next 3 days but it's pulling the bugs up and hope out.

Maybe you might want to talk to your doctor about pulsing rather then staying the course. Supposed to trick the bugs. Had heavy anxiety form the lyme et al so know -- must be time for you to contact your doc. Good luck, Andrea

Posts: 7 | From Amsterdam Nethrerlands | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yep..

It's offical. I am another Flagyl hater.

At first I thought it was going to be a piece of cake. I mean.. I was feeling pretty good when I started the drug.. Then day 4 hit and WHAMO.

I'm still red in the face from the emotional distress it has caused me. But.. gotta get through it. Only 4 more days of this. I can do that right??

What is 4 days? Just gotta try and stay busy and not act like a fool in front of my customers.

Makes sales calls when you feel the world is caving in on you is very difficult. (and my boss doesn't understand why I'm not 'getting it done')

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just don't land yourself in the hospital, OK? That would be counterproductive! [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the advice. Going to the hospital wouldn't be much fun.

I'm still staying the course... feeling better than when I started this thread, but still very much affected by the flagly.

Summary of my experiences with Flagly.
First 4 days (ramping up to 500 mg 3x per day) = Feeling pretty good.

Day 5 (first day of full dose) = Feeling almost great!

Day 6 = WHAMO!! Saw the gates of hell. (they arn't pretty)

Day 7 = Slowly climbing out of the dark pit of hell, better than day 4, but difficult.

Day 8 = Half way out of the pit of hell. Still feel lousy, but bettr than day 4.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.