I am *very* grateful for the work you are doing, but I'm wondering why you are not talking more about researching Lyme Disease. I'm sure you are well aware that so many of the symptoms of Lyme are similar to the other chronic diseases you have identified.
Lyme disease is the fastest growing infectious disease besides AIDS in the USA, and perhaps in Europe as well. I assume you have heard the various suspicions surrounding the origins and spread of Lyme in this country.
I have had friends who have been positively diagnosed with Lyme and then diagnosed by you with mycoplasma. I am confused about the connection between the two bacteria, if there is any. There is so much disinformation about Lyme disease being fed the American people. There is such an effort to cover-up the true nature of this terrible disease, and not to find a cure for it.
Doctors licenses are being revoked for treating a disabling disease of the order of syphilis. Why? In two recent studies, a very high percentage of people previously diagnosed with Fibromyalgia Syndrome were found to be positive for Lyme disease.
And yet, doctors are made to feel more comfortable diagnosing people with a 'syndrome' like Fibromyalgia with no known cause, than with Lyme Disease which has a definite cause. Considering all the suffering, disability, and even death caused by Lyme Disease, I am wondering if you are interested in the fight against it?
I am curious why it is not even mentioned on your website? I thank you for your time and consideration. I know you are doing important and difficult work for which you have sacrificed much.
RESPONSE:
WE ARE TRYING VERY HARD TO DO ALL THAT WE CAN ON LYME DISEASE AND OTHER CHRONIC INFECTIONS. WE NOW OFFER PCR TESTING AND ANTIBIODY TESTING FOR LYME DISEASE MICROORGANISMS.
WE ARE COUNCILING PATIENTS WITH THESE AND OTHER INFECTIONS ON TREATMENT, DIET, SUPPLEMENTS, ETC. AS YOU CAN SEE FROM THE PCR TESTS THAT WE OFFER (WE ALSO OFFER SEVERAL ANTIBODY-BASED LYME DISEASES TESTS AS WELL), WE ARE CONSIDERING LYME IN THE CONTEXT OF ME/CFS.
WE HAVE FOUND THAT MANY IF NOT MOST LYME DISEASE PATIENTS HAVE BOTH BORRELIA AND MYCOPLASMA INFECTIONS. THESE COULD OCCUR AS A COINFECTION OR THEY COULD OCCUR AT DIFFERENT TIMES BUT OUR DATA SUGGESTS A COINFECTION WITH OTHER BACTERIA AS WELL.
THEREFORE, WE RECOMMEND TESTING FOR BOTH BORRELIA AND MYCOPLASMA INFECTIONS (SEE CLINICAL TESTING). OUR NEWEST UPDATE ON OUR WEBSITE WILL CONTAIN MORE INFORMATION ABOUT BORRELIA INFECTIONS.
PROF. GARTH NICOLSON
-------------------- sunnymalibu Posts: 192 | From california | Registered: Jul 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Thanks, SunnyM.
The only other thing that most regular doctors know less about than lyme is mycoplasma.
But, thanks to researchers like Dr. Nicolson, we can learn and hope for wellness. ========================
Other than his web site,
for some of his work from Immune Support's Libary go to:
quote:Originally posted by sunnymalibu: WE NOW OFFER PCR TESTING AND ANTIBIODY TESTING FOR LYME DISEASE MICROORGANISMS. PROF. GARTH NICOLSON
Does anyone know what primers Prof Nicholson's Lyme PCR is based on? It can be very important.
For instance, the Steere camp often use PCR primers based on plasmid genes like OspA. This is all wrong, because the plasmids (small, extra "mini-chromosomes" which can be traded between bacteria)are so variable.
Elena
-------------------- Justice will be ours. Posts: 786 | From UK | Registered: Oct 2007
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Based on what Prof. Nicholson has said for many years, mycoplasma was one of the first things I got tested for years ago..... only 4 types/species, but all were negative.
I don't often hear of people being tested for mycoplasma here on the board.... don't most LLMDs test for this when they test for other common TBDs?
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
Large number of Polish Lymenet board members has tested themselves for mycoplasms and found positive. Serology was used for testing.
The problem is huge.
Posts: 54 | From Canada | Registered: Feb 2007
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
I was given a prescription or order...by my lyme doc in another state to go get a test for mycoplasma fermentens. I really didn't expect much went I went to the clinic and I thought it would be interesting to see their respone.
Well...no one knew what it was so they called their superiors at the hospital and none of them knew either. A few years back we had Red Cross pathologist come speak at our support group meeting. He was to talk to us about the transmissability of bb and babesiosis through the blood supply.
He told us that babesiosis can be passed on but they were not sure about Lyme. I have since read studies that say lyme can survive blood storage conditons for like 45 days...something like that.
I then asked the pathologist whether the Red Cross tested for mycoplasma fermentens. He evidently knew what that was because he turned bright red. He said no. I asked if the Gulf War Veterans were restricted from donating blood. He said that for year after they came home they were restricted but after that they were allowed to donate.
I told that I thought it was odd because the army had patented this organism, knew that it is pathogenic and that antibiotics can treat it AND that it is found in those with CSF, Alzheimer's , sarcoidosis, etc. He didn't have much to say
Posts: 1176 | Registered: Oct 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Thank you for sharing your experiences and thoughts on this.
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