posted
I know that Bell's Palsy is a common feature of Lyme but it seems like Bell's has a sudden onset. Has anyone had facial weakness with Lyme with a slower onset/resolution? I've had eye droopiness on and off for years and recently it's become the whole right side of my face. Feels droopy but doesn't look that way to other people. Currently on Bicillin 3X/week, Zith, and Rifampin.
Posts: 292 | From UT | Registered: Aug 2001
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posted
Yep! Mine came on, hit and was gone in a matter of minutes! FREAKED ME OUT!
Since I have had twitching and will get this weakened sensatoin like its going to happen again but so far it hasnt. That was 7 years ago.
Its a weird feeling, i know!
My daughter recently has been complaining of what feels like a swollen eye but its not swollen. I know what she is feeling and what she means I just cant bring myself to tell her that it might just freeze up and droop on her.
So far it hasnt and I hope and pray for her sake it doesnt....
but to answer your question, yes it does and can do as you described!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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A few times my eye would droop. Most of the time it feels numb, and feels as though it is drooping but look in the mirror and it appears fine.
I learned early not to mention this to a doc (until I found an LLMD) a quick way to be written off by most.
Mine also happens only on the right side. I know how annoying it is.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
When I was at my worst with Lyme four years ago, I got what I think was bell's palsy for about 2 days. I was so sick in other ways that I didn't go to the doctor for it.
It was on my right side and my right eye and corner of mouth drooped a little. Nothing too extreme...just somewhat noticeable.
After the second day it started to return to normal. Then for years after that the drooping would come and go.
After about 2 years the drooping stopped but I still have some weakness in the right eyelid sometimes.
I also had some numbness on the right side of my head (above the ear and spreading to my eye and cheek) that started at the same time and would come and go. This has also gotten alot better.
All this used to scare me when it would happen. But now that I finally got diagnosed with Lyme, I just know it's a part of it and try to not worry too much.
posted
I haven't had a classic Bell's Palsy, but I do have odd sensations in my face. I get a knifing pain on the left cheek, running a couple of inches like it's my nerve acting up.
Additionally, I get a feeling of numbness in my cheek, though there is no obvious sign of palsy. My jaw can also feel numb, or even painful for no apparent reason.
Remember, Lyme can get in the nerves and cause them to act up. It's my hope that these symptoms will go away when I find the right drug to knockout my invading bacteria.
I hope you find an answer soon.
Posts: 168 | From Delaware | Registered: Aug 2005
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posted
I don't have classic Palsy but I do have what others have mentioned. The strange sensations on nose, tongue and cheek.
I also had slight drooping of my left eyelid. It got really bad when I took Tetracycline. I wasn't seeing an LLMD at that point.
My regular GP had no idea what it was from. It never went away. It impeded on my vision for quite some time.
I eventually had it surgically corrected.
So, to answer your question. It can come on slowly because I had ptosis (drooping lid) for several years before it drooped down really far.
I wonder now if I had been treated properly at that point if I would not have had to have had it corrected.
Another thing is that I often feel like my eyes or the skin below them is swollen. I look in the mirror and it looks just fine.
I think these are common lyme symptoms.
Good luck to you...kit
Posts: 655 | From Pennsylvania | Registered: Jul 2006
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
In 1996, within a month, when I was infected by an insect, the left half of my face dropped down, one up, left dropped. My left iris became small and the eyelid no longer closed. It had to be taped down to prevent eye damage.
As I repaired my teeth and root canals, months later, and started to be treated for heavy metals and Lyme, my face corrected itself. That was about 4 years after the bite. From then on I had what I considered permanent nerve/muscle damage around the mouth until just recently when I did the Bionic 880 treatment for Lyme, by delivering photons into the body. With the first treatment, now in 2008, my face started to at first become very sensitive, gums hurt, slowly pulling my lips/mouth into a more normal position. So after all, it was permanent until the photons repaired the damaged cells and it is now almost completely normal. I will keep treating with photons/with Lyme nosodes until it is fully restored. My left eye also, for the first time is large again, matching the left eye identically the way it was in 1996, before I was infected.
It goes to show you that the body can repair itself when the right helper comes along. Photons for me have become an important part of life. I had never realized how important they are.
Though I never thought I even had a molecule of Lyme left in me, I was wrong. Energetic testing just before the photon therapy indicated that I was still carrying hidden Lyme, probably cwd's, by testing positive to one or two of the highest potency Lyme nosodes. That told me that I needed to be treated. Now, after a few photon treatments, all energetic tests are negative.
Be patient.
Posts: 9834 | From Washington State | Registered: Oct 2000
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