posted
I've tested neg for Bart on several occasions but have sole pain none the less. It got better for a time while I was taking the Rifampin but has lately returned. At times the cramping feeling in my feet can nearly bring me to tears its so bad. Doesn't happen all the time but if I exert myself especially using my feet it comes on and I have to stop whatever I'm doing until it passes.
Posts: 142 | From Florida | Registered: Oct 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
years ago that and fatigue were my worst symptoms. they got better with huge doses of amox and zith over a period of 3 yrs. some of it pulsing (switch zith to biaxin). detox continued recovery.
? bart or lyme
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I've had sore bottoms of my feet for several years. my doc at the time (doc B.) thought it was bartonella and i took levaquin for 60 or 90 days. during that time my sore feet ached incredibly. i took this to mean that yes i did have bart and the meds were exascerbating the symtoms. after i stopped levaquin the sore feet would come and go. i tested negative for bart, but dr. b thinks that bartonella is more prevalent in the NE than any other coinfection. i do have babs and lyme. now with a new doc i am on other meds for lyme and babs, but perhaps will go back to treating the sore feet (or bart) since nothing else has worked. i sort of decided that the bart was a lyme or babs symptom, but who knows. when my symptoms dissipate the sore feet go away.
Posts: 34 | From Colorado | Registered: May 2005
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posted
I've had sore bottoms of my feet for several years. my doc at the time (doc B.) thought it was bartonella and i took levaquin for 60 or 90 days. during that time my sore feet ached incredibly. i took this to mean that yes i did have bart and the meds were exascerbating the symtoms. after i stopped levaquin the sore feet would come and go. i tested negative for bart, but dr. b thinks that bartonella is more prevalent in the NE than any other coinfection. i do have babs and lyme. now with a new doc i am on other meds for lyme and babs, but perhaps will go back to treating the sore feet (or bart) since nothing else has worked. i sort of decided that the bart was a lyme or babs symptom, but who knows. when my symptoms dissipate the sore feet go away.
Posts: 34 | From Colorado | Registered: May 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What others say -
and - detoxing and massage helps -
If it also hurts under the heel (not the part on back but where your foot touches the floor) and deep into the tissue along the arch - and hurts more when you lie down on your back and stretch your foot up towards you face -
you might do a search on "plantar fasciitis" there are stretches and a good podiatrist can do wonders for treatments.
Orthodics, PT with untrasound, certain stretches or nighttime brace can help. Never walking barefoot without arch support is vital if this is the case.
posted
I thought at one time I had Bartonella or Babesiosis as a result of excrutiating foot bottom pain that stopped me from exercising. I treated for both anyways despiute being negative on testing and nothing changed. I worried it might have been a Lyme relapse but no, it was something else.
It was my chiropractor that pointed out that I had no ankle flexibility (plantar faciitis, gave me stretching exercises and showed my daughter how to massage that area of my lower calves, ankles and feet (a painful experience btw) but before long I could actually wear high heals again on stage!
I found one of the side effects of Lyme (or getting older) is losing a lot of flexability, as if I got rigormortis but forgot to lay down and die first? For me, I find I have to do a lot more stretching than I ever did but if I stay on top of it, I'm good to go.
Try finding a good physiotherapist or excellent physical instructor to help you do proper stretches, you'd be surprised how much it helps!
Massage is also a great aid for gaining some flexability back. Fortunately for me my daughter is now a spa therapist...but I still pay her.
Hope this helps?
Posts: 302 | From Kamloops, B.C., Canada | Registered: Dec 2002
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
ty for all your responses
Actually the arch is the least painful part of my foot. and if i wore shoes everyday for even part of the day i wouldnt be able to walk.
It feels like nerve pain that slicing kind of pain through my sole worse on the ball and heel of my foot ( the places that get the most amount of pressure when i stand)
... i also get pin point pain (like someone stuck a needle or pin in my sole)
Heating pads, no shoes, and avoid standing walking for too long seem to be the best things for keeping it at a minimun
posted
azure, have you had feet neuropathy testing? that showed i had it! they do shock testing.
also have had heel spurs and plantar fas....too.
presently, spurs gone, and feet comfy, but i can't walk far; balnace and endurance problems.
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Early on, I got out of bed a couple of mornings and the pain in the soles of my feet when I stood on them nearly made me fall down.
My LLMD had seemed to think some of my Sx may have been suggestive of Bart, but since I tested negative he ruled it out.
It went away & it hasn't happened again. It's over a year, I think.
I'm wondering if it may be a nerve thing also.
Do you take any calcium, magnesium supplements? I take them for muscle spasms. I don't take them all the time, just periodically when I feel I need them.
I don't recall whether it's the calcium/magnesium or the B-12+B-complex that's important for nerve conduction. If it were me, I'd try both.
Sorry you're hurting.
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I just posted a topic inquiring about Acetyl-L-Carnitine. I found a study stating that it helps with pain in diabetic neuropathy.
I'm checking to see if it's helped any fellow Lyme sufferers with neuropathic pain.
I also came across some info stating that calcium/magnesium and fish oils are helpful.
Since I know the Cal/mag helps with muscle spasms/cramps, I would definitely try some. I don't know why mine went away but it could very well have been a supplement I had decided to take at the time.
I think I may have also taken a few days of "Neuro-Optimizer", which has Acetyl-L-Carnitine back then, so again I don't know what may have been the resolution.
I think I might try some again & see if it helps with the parasthesias in my hand.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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