posted
Hi was wondering if anyone has twitching on the body either the arm leg face everywhere that come and go. I have been on mino for almost 3 months. Was diagnosed in July and on doxy 4 months. Was bit somethime late may saw rash early june. experiences anyone???
Posts: 18 | From New Jersey | Registered: Oct 2007
| IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Yes, I DEFINITELY get the twitches off and on and I have no idea what is triggering them. I was on bart and babs treatment so didn't know if it may be herxing from some meds, although I did have this going on before we even knew it was lyme.
It's definitely bothersome and I do wish I knew what I was doing to trigger it to happen, since I'm getting no pattern, so will be interested to hear how others interpret this. But you are definitely NOT alone.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
YES!
I have twitching:
-fingers/arms, wrist area. -legs (is more like RLS type of feeling to me, keeps me up some nights or wakes me up). -eye twitching/jaw twitching (though I haven't had this since being on Rifampin).
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
posted
I had body wide twitching for one full year. It started in different areas but in no time I had every major muscle twitching.
I take a tea drink at night with magnesium in it. It's called Peter Gilham's Natural Calm. It's supposed to help with the twitching. It can be found at many health supplement stores.
I have not twitched at all now in about eight full months.
I never thought I'd get rid of them.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
| IP: Logged |
thanks for replying. So there is hope in the twitching going away. I really hate it. soooo annoying. Anyone out there with twitching that has gone away. I still get some mild joint pain here and there. Have been on meds altogether about 4 months. So someone here had it for a whole year and then went away. Good for you.
Posts: 18 | From New Jersey | Registered: Oct 2007
| IP: Logged |
posted
oh yeah..I hate these! I get them in my arms, legs, face, neck - after beginning tx I started getting in my chest and stomache even! My biggest one was in my ankle and it made me "kick" my leg!
I hate these!!!!!!!!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
| IP: Logged |
posted
The bad news: one year later, still twitching.
The good news: they are so much less frequent, and so much 'smaller' than they were one year ago.
I had them before I was ever diagnosed or medicated in any way, so I'm going to say mine are a flat out symptom of LD (not a result of any meds).
Magnesium was also suggested to me for this, which I have started to take because the 45-day-old, left eye twitch is making me nuts. So far, no dif for me, but I do understand magnesium can be very helpful.
I'm assuming (hoping,praying) this will all continue to improve as I continue treatment. I've been on 400 mgs doxy for 10 months.
Good Luck. Be well.
otm
Posts: 314 | From east coast | Registered: Oct 2007
| IP: Logged |
posted
Here's my cure for the muscle twitches - found it 8 yrs too late, but grateful they are finally gone. Yes, mag. is good for them - as much as your bowels can tolerate (separating the doses throughout the day helps this...) But I can't tolerate what I see many taking here - 3 100mg's is my max...usually only 2.
BUT - it was a combo of the mag & lots of B-12 that got rid of them for me. I always took 1 sublinglal B-12 (500mcg) because that's what the bottle says is dose. Never noticed a difference. Not until reading Buhner's book did I realize that was not enough for Lymies. Upped the dose to 3 500mcg, as soon as I read it - w/in 20 min's 8 yrs of twitching stopped. I twitched all over - legs - mostly calves, all day every day. Eye - 8 yrs straight - w/ occasional periods of reliefe after babs TX - but would always return a few weeks later. Upper arms less frequently, but a bigger twitch - like a mexican jumping bean. Even the muscle between thumb & forefinger would go a mile a min. Upper lip - twitch, twitch.
I did 3 per day for about a week or 2 - then lowered it to 2. If at any point throughout the day I get any twitch anywhere, I take the 3rd one. This is only required maybe once every 2 or 3 weeks - 2 pills usually does it.
The B vitamins are very important, so I have since added B-6 100mg, and a B-complex. Plus a good multi vit w/ B-12 as cobalamin - read labels. Note though that twitches were already gone when I added these others.
Hope this helps all of you be twitch free - IT'S WONDERFUL!! Admitedly the least painful symptom of Lyme/co's but absoultly the most annoying. Let me know how it works for you! (((hug)))
Posts: 176 | From Tenn | Registered: Jul 2004
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
YUP- had that all gone-
had tiny twitches eye twitches face twitches leg twitches arm twitches full body twitches rippling twitches myoclonus hue body jolt twitches
ALL GONE with abx therapy*)!)*!) YAY*!)*)!!
no more twitches*)!*)!*!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
That's interesting about B vitamins. I always thought magnesium deficiency caused it. But I can't tolerate too much of it. My doctor said that it is neurological, so B supplementation would make sense. I'm going to try that! Thanks GardenLymer!
Posts: 418 | From NJ | Registered: Sep 2007
| IP: Logged |
posted
Wow soo many of us from NJ or east coast. Thanks for the input im going to do the b vitamins every way I can. Thanks guys. Wishing everyone a healthy recovery. This stinks but there is hope. We just now half to be more on top of our health than the average person. question: Why is the B vit/. make sense if it is neurological????
Posts: 18 | From New Jersey | Registered: Oct 2007
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I twitch when I am bad about taking my B-12. B-12 should always be taken with folic acid.
My B-12 numbers have increased tremendously since starting to take them. So there is some absorption happening (I've heard people claim you can only absorb IV).
I take Perque brand B-12 (from doctor's office or wellness works website) and Folirinse for folic acid. One drop of folirinse on each b-12 tablet.
I take 3 tablets, 3 times a day. But I started at 5 times a day.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
posted
Please let me know how it works for you all!
Funny - I am originally from NJ - but definatly infected here in TN, as was daughter. Mercer County will always be home. You know you can take the girl out of Jersey, but you can't take Jersey out of the girl, lol.
Well, CalifLyme, I am so glad abx got rid of them for you - not true for me.I was only infected 2 yrs prior to diag; in 8 yrs I have ingested more abx than I care to think about - 6 yrs worth - many different kinds. 12 rounds of various babs TX - twitching would sometimes go away for a week or 2 - but returned rather quickly. I have for the most part (except when I forget vit's) been twitch free since late Aug or early sept. A first for me.
So for those who are still twitching - again, I say, take mag tbt, and add sublingual B-12!(Hey, if you can get the shots, get em) I think I gave abx enough time & a fair chance to make em go - didn't happen in my case.
I have also heard about only IV B-12 working...Well, I'm sure it does work well; however I do not have access to that. Cuz, you know, I'm on the Lyme budget, lol. That said, I have never tried reg B-12 tablets - ONLY ever took sublingual - cheap - from wal-mart, or any pharm offering buy 1 get 1. They do get in the system sublinglally- my twitches have been gone since 20 mins after reading that chapter in Buhner's book. Thank God is all I can say!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bow]](graemlins/bow.gif)
Printer-friendly view of this topic