disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Why does my body do this to me???
I had an LLMD appointment yesterday. After being on a month of Rifampin and Doxy and then Doxy and Biaxin on weekends, I started feeling SO much better. So many symptoms started to let up some. The best part was the dizziness was almost completely gone, etc.
But then today, the day AFTER my LLMD appointment, I start feeling so ill again. And no, we didn't change my medicine up or anything at all.
It's also crazy because at the LLMD appointment yesterday I told him how my blood pressure seems to have gone up steadily since being treated. My blood pressure is usually very, very low. When starting treatment it was as low as 80's/40's or so. It has gone up and I've noticed it being 90/55 or 100/60, which is a lot better than before. I told him all this and that it's been this way since being treated.
Well, of course, last night, I go to take my blood pressure as usual and it was 84/48. So basically everything I told him about my blood pressure going up went down the toilet last night!
It's like my body is laughing at me/joking with me. Or not my body, I guess, but Lyme and co's. I get better for a month and then the day RIGHT after my LLMD visit I start feeling like crap again. Sure, it's only one day, but today was pretty bad. Lots of heart palps and neck pain and soreness and dizziness and brain fog.
I just thought it was crazy that after a month of feeling good and RIGHT after my LLMD appointment I get a really bad herx or setback... It's just disappointing.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
besides it being a possible herx...
another thought occurs to me.
I know that since i have to go a distance to my llmd and then we go out to lunch and maybe visit a store ...
this is alot more exertion than my body can really handle ...
so that night and at least the next day my symptoms are worse.
- just a thought.
I know the roller coaster nature of this disease can be confusing and frustrating. Hope you start feeling better again soon.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by AZURE WISH: besides it being a possible herx...
another thought occurs to me.
I know that since i have to go a distance to my llmd and then we go out to lunch and maybe visit a store ...
this is alot more exertion than my body can really handle ...
so that night and at least the next day my symptoms are worse.
My LLMD is only 20 or so minutes from home. I am very lucky in that. But it can be tiring sitting in traffic (which gets really bad in this area) and whatnot (even though my husband is the one driving).
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"After being on a month of Rifampin and Doxy and then Doxy and Biaxin..."
posted
Do you get next-day symptoms other times? That's been a huge problem for me for many years, though has been getting less severe this year.
Several candidate triggers include travel, stress, exertion, and light exposure. You might watch for which of these, if any, make you feel worse the next day. If it happens with some regularity, it's not just coincidence.
Posts: 727 | From USA | Registered: Mar 2006
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posted
Esp. light exposure for me. I've noticed that, dguy.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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tailz
Unregistered
posted
Happens to me every time. It's probably the cell phone towers (and users) you pass on the way, along with the fluorescent lights in his office (or cell phone users).
I dread my upcoming appointment for that reason. In some ways, living with babs might be the better choice for me. I may skip it until my babs is going so strong that it's worth it to have to recover all over again. I cannot handle the microwaves in the area.
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posted
This has happened to me in treatment so many times-2 steps forward, 1 big one back. But it is still a general upward trend-hang in there.
Posts: 561 | From eastcoast | Registered: Aug 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Lyme has a 4 week cycle. Many people find they flare every 4 weeks.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Do you keep a day to day journal? a journal is really the only thing that helped me NOT flip my ticket and stop antibiotics when I had started them. I thought I was getting worse all the time, and it petrified me, and rightfully so! Even if
I wasn't getting worse, it was still no fun to try to ride that stuff out. So I know how you feel. It took me about three months though, of writing in a daily journal to find that I had a cycle
and it was a 28 day cycle at that. I was actually able from that point forward to circle a round= about time when I would start herxin again, and it never failed.
I hope you start to feel better soon, whether it be herx or exertion. Stay strong.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
28 to 34 days for me its a herx sorry.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Disturbed, one thing I had to learn to accept was the healing periods I would go into. I would get all hopeful that this nightmare was coming to an end. Then you know what happened? It would be a herx or period of feeling bad again.
This had happened over and over again. So many hopeful periods, then bam. Well finally I got smarter than the illness and decided I would accept healing periods and I would accept the fact when the bad days came.
It really seems to be a cycle with this. Sometimes it's how we react and approach that herx/healing crisis that is effecting it.
I know I say it alot on here, but patience really is a virtue when you have TBDs. I had absolutely no patience prior to this nightmare, but I sure have learned a thing or two. Sometimes it just takes a long time to heal.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I get better for a month and then the day RIGHT after my LLMD visit I start feeling like crap again. Sure, it's only one day, but today was pretty bad. Lots of heart palps and neck pain and soreness and dizziness and brain fog.![[Frown]](frown.gif)
It's just disappointing.
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