posted
I know this one has probably been dicussed before but i am new so here we go.
That one was for you bettyG.
the double space.
Does anybody have muscle twitching symptoms. I dont really have spasm (i consider them more severe.) but
i have sporadic muscle twitches. It will be my eyelid, then right thigh, then chin ,then calf,then left hamstring, and so on.
I also recently developed a sharp headace on the temporal region and it is followed by kind of a numbness or tingling in my cheeks.
Been diagnosed positive for lyme in may 2007. Both elisa and western blot positive.
went through treatment protocalls twice and still have funny things going on.
So I was just wondering if any other lymies had similar symptom. These are just recent to me along with joint pain.
Posts: 13 | From Granite Falls MN | Registered: Oct 2007
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posted
i just relized how bad of a speller or typer i have become.
Sorry about the type ooo's
Posts: 13 | From Granite Falls MN | Registered: Oct 2007
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
MANY lymies get the twitchies. Magnesium seems to help. Quite a few people here take it and may be able to make a recommendation as to specific oral products.
Dr. B. notes that many lymies are severely magnesium depleted. The dilemma is that the large doses needed to correct deficiency can cause diarrhea, further depleting magnesium. Injectable magnesium sulfate is pretty readily available (CostCo) and inexpensive (about $1.00 per dose) if you can deal with taking it by that route.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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posted
Yes yes yes!!! Big symptom of mine and i know how frustrating....
What were your treatments lengths, abx and dosages????
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
Well technically i am cured according to the internal med doc i last seen. The 200 mg of doxy i took for 2 weeks the first time and the 200 mg i took for 2 months when symptoms returned(which the internal med dr said was ridiculous and not needed because i dont have lyme any more)seemed to have done the trick. Now back to reality.
I am not currently on any meds now but do have a prescribtion for prednizone and darphaset at home. Courtesey of the last internal MD. I havent taken any yet.
Alternative to steroid injections in my knees.
My problem is that they know i have/had lyme. They know most of my symptoms seem to nuero but the spinal tap came back negative so the 2 weeks of doxy is what they prescribed.
I may not quite understand what nuero symptoms are i guess.
Long story short i still am having symptoms.
Could some of you explain nuero symptoms to me??
Posts: 13 | From Granite Falls MN | Registered: Oct 2007
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posted
Yes, It's been discussed here brfore ( search ). It really sucks. Can keep you awake at night.
Posts: 355 | From NY | Registered: Jan 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
YES YES YES*)!)*!)!
All gone with longterm abx*)!*)!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yep, I get twitches.
I used to get eyelid/eye twitching on both sides (I haven't had that for a while, I think due to treatment), leg muscle twitching, jaw twitching, arm muscle twitching, etc.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Research my friend before you move forward and find a LLMD (lyme Literate Doctor) before you do much more....just to be SURE!
Also have heard spinal taps are not that accurate!? Someone else may have to chime in on that one to be sure though.
But steroids, YIKES!!!!!!!!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
I've been told the accuracy of Lyme test via spinal tap is around 20%, due to the low 'harvest rate' - I understand the spinal fluid is completely cycled through the body each day, so chances of picking up Lyme in your exact sample are slim. Ask your doc for more exact explanation.
I have Lyme, which never showed up in two taps taken 9 mos apart.
You've got to go to an LLMD. Sooner the better.
Posts: 314 | From east coast | Registered: Oct 2007
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posted
Yes, I have total body twitching. It is my second major symptom following skin burning.
I take "Calm" mag. Take as much as you can until loose stools.
I have tried many meds, nothing worked until I tried Mag.
It works almost immediately.
I beleive there is a mag that comes in skin patches also. I have not tried them.
The powder is more affective than pill form.
good luck BJG
Posts: 468 | From IL | Registered: Oct 2003
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
There are lots of different types of neuro symptoms. Most doctors look for cognitive disfunction, which includes loss of memory, word searching and confusion and disorientation.
But in reality there is a whole slew of neurological symptoms. I think the muscle twitching is actually neurological. Mine gets bad when I don't take my B-12, and B-12 is known to help the nervous system. Rather than the muscle twitching because there is something with the muscle, I think the muscle is getting a signal to twitch.
A lot of pain can be neurological. I get motor tics, which are neurological. Other people get other forms of uncontrolled movements.
There is difficulty concentrating or "brain fog." Tinnitus, which is ringing in the ears.
The list goes on...
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
AZN- it sounds like you were undertreated with abx if you are still having symptoms. You should really consider getting yourself to an LLMD and continue to treat the lyme with a longer abx regimen.
I did have some twitches in various areas of my body but don't anymore. This is a very common lyme symptom.
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