posted
I change clothes, and dry my hair, and they just get wet, and I'm stil chilled. I can't stay in a hot tub all day long, and I can't change clothes all day long...is there something that can stop it?
I used to have it happen now and then. I'm on my 2nd day of mepron (also taking biaxin). I was hoping I would be one of those who wouldn't have any trouble--it would just go away. Vacation is less than 3 weeks away.
Hope there's good suggestions out there.
Thank you, all of you, for being such supportive people. I've been helped a lot by reading on this site.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Buy lot's and lots and lots of underwear, tee-shirts, and socks and comfy "pajamas" pants.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
James Case, Do you mean by 5 months in that you're being treated for babs for that long now? Or the whole lyme and co- thing?
I'm so glad my husband makes enough for me to stay home. Guess where all our expendable income goes to?
Thanks for commenting.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Apparently treating Babs with the Cowden (The specific ones for Babs) as well as Zhangs Artimisin, stops the sweats in a lot of patients. It helps control it, kill it -- from what I'm hearing.
Might be worth doing some research to see if you can add to your routine.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Thank you, Metallic Blue. I'll ask my LLMD about it at the next appt. Zhang's protocol is in my future.
I've been reading on this site about mepron. It seems that some people have not had a really bad experience until they added the artemisin, and then it got really intense--effective, but hard to go thru.
I'm all for gutting it out, and getting it over with--but after vacation, not during. Posts: 552 | From New Mexico, USA | Registered: May 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I can definitely relate to this. And it would also go over into the bed when I would soak the bed with these soaks so I was having to change sheets constantly too which is a real pain.
Wish I had some good advice on it, but all I can say is to keep the treatment going and eventually it does get better. In the mean time, stock up on laundry soap.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
just a thought...
since you just started this tx protocol you are probably herxing. my babs herxes are very regular, almost like clock-work.
they do get better as treatment progresses.
i am on mepron, biaxin, artemisinin, and plaqeunil now. have been tx for babs for 9 months, but i've been ill a l-o-n-g time!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Cathy, I haven't had that happen yet, I've actually only had one night sweats. All mine seem to happen during the day.
lymednva, 9 months, and still being treated! Babs just started emerging about 6 months into my lyme treatment, and I just started getting treatment for it. I wonder if I have a mild case, because it looks like my LLMD expects me to be on mepron for 3 months.
Thank you both for replying. Posts: 552 | From New Mexico, USA | Registered: May 2007
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WildCondor
Unregistered
posted
Make sure you eat fatty food when you take your Mepron and make sure you take 3 teaspoons per day, not 2. Keep that up along with Biaxin or Zithromax for 4-6 months, and add artemesia annua to the mix. Eventually, the sweats will calm down!!!
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posted
WildCondor, My LLMD wistfully told me he preferred that I took it 3 times a day (or even 4!), but understood that I take supps/meds about 12 times a day (and many times those need to be 2 hours apart), and so he knew 2 times would be a challenge.
It really is--my life is ruled by the clock, because I can't get behind schedule by more than a few minutes or there will be a pile up.
I think I'm going to get the artemesia annua added at the next appt.
I appreciate your input, and everyone else's who've got before. This is a confusing, scary illness, and it's good to know what to expect.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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WildCondor
Unregistered
posted
So stop some of the supplements, because the Mepron is more important and try that 3-4 X per day with Zithro or Biaxin and Artemesia.
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posted
Oh, Wow, WildCondor, I just remembered--it's the cholestryamine he wanted me to do 3-4 times a day. That one you have to wait a half hour after eating, and then not eat for 2 hours afterward.
He did go thru everything I take, and some things are now off my list.
I do take biaxin. I don't know for sure, but I'm thinking the Artemesia is going to be added later.
I can see you have a lot of experience, and appreciate your sharing it with me. I'll ask about taking mepron more often at the next visit.
I've been on mepron for 3 days now, and I actually am having a little less pain, and less drenching. This could be a good thing, if only it continues!
Posts: 552 | From New Mexico, USA | Registered: May 2007
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I need to add artemisisn to my malarone/biaxin combo. Whats the proper dose? and am I supposed to break from the art every few days?
thanks
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Babs just started emerging about 6 months into my lyme treatment, and I just started getting treatment for it. I wonder if I have a mild case, because it looks like my LLMD expects me to be on mepron for 3 months.
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