LymeNet Flash: Can you go BACKWARDS in the testing?!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Can you go BACKWARDS in the testing?!

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Topic: Can you go BACKWARDS in the testing?!

terri3boys
LymeNet Contributor
Member # 12993

posted

I got a message from my doctor on her "lab line" today. She had the results of my IGeneX testing from 11-6.

Her voice sounds very surprised as she says "it shows no active Lyme." She goes on to say that IGeneX is the best way to test for Lyme.

Okay, so how did LabCorp show 4 bands on Aug. 16 and 3 bands Sept. 27.........?

Can you go BACKWARDS with this stuff?? Don't get me wrong, I don't WANT this Lyme crap, but my doctor was totally convinced it was Lyme.

I've got a call in to my doctor's office right now. I want to know which bands say what, and I need to get a copy of the results.

Any thoughts on this?

Thanks,

terri3boys

[Eek!]

Posts: 268 | From Texas | Registered: Aug 2007 | IP: Logged |

SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

posted

Get the results first. I think situations like this are widely open to interpretation.

Fewer bugs -> less antibody response
More bugs -> weaker immune response -> less antibody response

I think if Lyme has been confirmed, you treat until symptoms are gone. Would also be interesting to have CD57 scores to correlate.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005 | IP: Logged |

terri3boys
LymeNet Contributor
Member # 12993

posted

Thanks, Scott. That makes a lot of sense, especially when you factor in all of the other health issues.

I've been dx'd with Fibro, CFIDS, GI issues,and all of the goodies that go along with them. Off the top of my head, I can't even start to rattle off the names of everything.

Personally, I think that when I was dx'd with most of these issues almost 4 years ago, that Lyme was probably present. That's when I was probably the sickest for the longest period of time, and doctors were scrambling for answers.

The GI issues started almost 11 years ago, but then things started to become a roller-coaster. The "labels" started being added ever since......the CFIDS, Fibro, etc.

When this bulls-eye rash showed up out of nowhere in mid-Aug., that's when the word "Lyme" was thrown into the mixture and I was tested.

Now we've done 3 tests for it, and I've been researching the H&$$ out of it! There is so much info out there that we need to know!! WE have to be our OWN advocate, in charge of our health!

I can't wait to see these results and see what my doctor suggests for a tx plan. She knows that I DEFINITELY feel BETTER on abx. She still has me on doxy, but she was waiting on these IGeneX results.

Her intentions were to do IV abx based on the test results. Possibly an insurance issue, I'm not sure. This is puzzling, because she tends to treat SYMPTOMS and not base everything on LAB results........which I like.

I have an appt. next week with her, so this should be interesting. I timed this appt. to where the test results would be back and we could come up with some sort of plan.

When I get a call back from the doctor's office, hopefully they will give me some info about which bands were what, etc. I'll post whatever info I get from them.

Thanks for your insight!

Take care,

terri3boys

Posts: 268 | From Texas | Registered: Aug 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

You're learning!!! The best thing to do is what you did!:

Ask for the bands and a copy of the test!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

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