djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
anyone else see this or know about it? it seems it may become a rival with ILADS?
if not a rival, a partner?
so now we have fallon @ CU, dr b with this turnthecorner.org (i think thats what it is) and Ilads. Too bad they dont all come together, huh?
anyway, the thing dr B is trying to do looks like it is pretty cool, and if he succeeds, he will have a database on how to dx and treat lyme unlike ever before in history. (this will depend on response)
i assume many good llmds (including mine) will be hesitant to contribute to this, because of the liability concerns all llmds face.
who knows though, maybe they will get a lot of response.
Connor, i know youll read this, do you any more insight about this program since you have closer ties to dr b?
thanks guys, be well
humbly,
derek
ps- i read @ this in public health alert publication. scott and some others on here are aware of it and contribute to it. if you are reading this and have not had a chance to personally read it, i would suggest checking it out.
its an amazing publication that delves into lyme, tbds, and the liks in a manner that no other paper would ever dare to do. cheer and merry christmas
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
It's not a rival to ILADS. ILADS is a professional association. Dr. B is working on a research project, and it's very different than the research coming out of Columbia.
They are all necessary parts of the advocacy machine.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
thanks for your insight annie k.
can you supply us with some additional info that it seems you have?
i for one am curious.
thanks
humbly
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I don't have more information Derek. I heard Dr. B talk about his plans at the ILADS conference 2 years ago. But I don't remember all the details.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Hi Derek,
Dr. B spoke some more about it at this past ILADS conference. He is asking doctors to use his data sheets as a way to examine and diagnose systematically and to keep concise patient files. They also send the symptom and treatment data to him for compilation.
Hopefully, we should see some good data in the future, that can show things like symptom clusters in geographic areas, what treatment is effective for what symptoms, average length of treatment for certain symptomologies, and so forth.
He is funded in this effort by the Turn the Corner Foundation.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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