sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
My 5 year old DS with Lyme has had 6 "accidents" in the past week.
He wet the bed once, for the first time ever,the other times he did not make it to the potty in time. several of those times at least he seemed completely unaware that he had to pee before he actually did.
This must be Lyme-related. Has anyone with a Lymed kid had this experience? He is increasingly upset by this- is actually keeping count of how many times it has happened. I've explained to him that his Lyme is probably causing the problem, but don't have a clue how to make this stop, if that's even possible.
Any suggestions?
thanks- dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Take him to the doctor and don't assume it is Lyme related!!!!!!!!!!! Yes, it could be- but new onset of something new like that- always best to get it checked out-!!!
We had this one woman in our local group who went to a new LLMD and this one Lyme pain she had for years was back and leg related and the Lyme doc said, "It's NOT Lyme related."
And she was STUNNED, "WHAT?"
And the LLMD said, "Your one leg is 2-3 inches shorter than the other one- you need a special lift in your shoe."
NO DOCTOR had EVER noticed that before!!! And the LLMD was righT!!!!!!
Moral of the Story: You never know*)!!!
Hugs to your adorable one, must bruise his burgeoning healthy ego!)!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Could be an infection causing it. Yes, even though he's on abx!
Hope this is resolved soon for everyone's sake. Poor baby!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I'm so sorry you have to go through this. I think this may be a reason to call the LLMD. I've tried to look up some info for you, sweetness and it seems like it could be a lyme thing and could very well not be.
I think I would personally take this one to a professional. Here's some of the info I found (too much to post it all here):
Unlike other forms of functional incontinence, enuresis is characterized by a physiologically coordinated void that occurs at a socially unacceptable time.
It typically occurs while asleep (nocturnal enuresis). This disorder is extremely common in young children, with a reported incidence of 15-20% in five-year-olds.
It is characterized by spontaneous resolution, which occurs in 15% of affected children each year after the age of 5.
Approximately 2% of 15-year-old children will continue to have nocturnal enuresis
I really hope things get better for you & DS soon!
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Nothing else other than what's been suggested. It just upsets me so when I see a post on children and illnesses. I hope you are able to help him with this quickly and easily.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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bettyg
Unregistered
posted
another possibility; has he taken a bad FALL or someting to get his body out of wack where he would need a CHIROPRACTOR to snap things back into position.
i had 2 really bad falls from high slides, and fell off from the top onto concrete!
i wet the bed for years; finally mom took me to a chiropractor; i had pinched nerves in my neck causing this to happen to me! good luck.
i always think of michael landon's true story on tv about his bedwetting, and his mom hanging his sheets to air dry out of the FRONT bedrooms vs. in privacy! i sure miss that wonderful actor of the family, wholesome tv shows he starred in and produced!
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posted
I too have had severe bladder problems for eight months, although of a different kind from your son. Just massive, debilitating pain. I'd gone to four urologists and tried a host of remedies. While I've had lyme for three years I did not think the two were related.
A new LLMD I've been seeing told me he has seen a lot of bladder problems with bartonella. He tested me for bartonella and indeed it came back positive. I'd been tested before for bartonella and the results were negative. But this doctor, who said the tests are notoriously unreliable, sent it out to a special lab in Arizona called Fry Laboratories.
I'm not saying your son has bartonella but it would be worth exploring since I have subsequently learned of many people with bladder problems associated with this co-infection.
Good luck! I hope he gets better soon.
Posts: 6 | From New York | Registered: Jan 2006
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tailz
Unregistered
posted
Just a hunch, but I'll bet he has Lyme in the part of his brain that controls those muscles - though he could also be getting a UTI.
I can't find the link, but I know I was reading that cinnamon kills 100% of the bacteria that causes most UTIs. It probably wouldn't hurt to give him some applesauce with cinnamon.
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Sometimes urinary symptoms are caused by candida infections of the bladder mucosa following intensive antibiotic treatment.
You might want to have him evaluated to see if he may have a systemic fungal problem.
Here's what Merck says about it. Most of the write ups have similar info, but this one is concise and to the point:
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Both of my children have had accidents especially prior to treatment.
We still have them, but nothing like prior to antibiotics and right after beginning them.
I think it was Lyme related. Since it hardly ever happens anymore and
I don't do anything different (except treat them) .
I have to make my little guy (4 yrs old) go to the potty before bed.
He insists he doesn't have to go. I make him try anyways.
This helps too.
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
It could be Lyme related, but call the LLMD and see what they think.
A girl at my school (who doesn't have Lyme) has this problem where she doesn't feel when she has to go to the bathroom and she pees in her pants. So, she goes to the bathroom every hour to ensure that she won't pee in her pants.
You might want to try that in the meantime.
Good luck!
-------------------- "Life doesn't have to be perfect to be wonderful."
posted
My son has/had urinary problems - urinary hesitancy and urinary leaking.
It does get better when he is on antibiotics, especially Zithromax. He also can have it when his intracranial pressure is very high.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
thanks all, for so many thoughtful replies.
it sounds like there are multiple possibilities for what is going on, and it is very helpful to be reminded that not all of them are related to Lyme.
the pickle i'm in is that my son's pediatrician will not see us if we are having my son treated for Lyme, and my son's LLMD is out of state.
Reading here and thinking over the possibilities,it sounds like whatever is going on isn't so urgent i need him seen immediately (ie, taking him to an emergency room or some such thing).
Getting that sense from all of you really helps.
Worse case, we'll have to wait a few weeks until we go for his next LLMD appt (it will be 3 months into tx).
thanks again- dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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bettyg
Unregistered
posted
i've posted before about this for myself. since my new left hip replacement 3-07, it left me with 24.7 urine incontinence....a pain in the butt! and expensive for pads to boot.
had a urodynamics test done; spasms occurring.
bottom line...recently RX med ENABREX was prescribed for me. 80-85% effective! what a night and day difference. i can go almost all day/night without changing pads/clothes.
so a couple of you might inquire with your md...GOOD LUCK!
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posted
I agree with those who have already posted. It could be Lyme, but it may not be.
My 5 year old son has a similar problem, except it's BM accidents. It started a year ago, we explored all the options (constipation, behavioral, diet) all to no avail.
It wasn't until this summer when he was diagnosed with Lyme, and when he also disclosed that he can't feel it when he has to go, that I put two and two together and figured out that they might be related.
If you run a search on Bowel incontinence, you will find a posting on it from a few years back, where a number of people indicated either bowel or urine incontinence as an issue, in which all indicated that they could not feel it coming on.
My son, like others have indicated, improved tremendously on Zithromax. he went from 3 or more accidents a day to 3 a week.
unfortunately, his doc pulled him off the Z for a week to give his tummy a break (he wasn't eating much and losing weight).
The accidents immediately started up full force, along with behavioral stuff out the yahoo. He actually bit me and drew blood because he wanted me to buy him some candy and I said no.
(neuroto-mommy had to ask, can a bite from a blonde haired blue eyed boy pack the same wallup as one from a teeny-einnie tick??)As per doc, no.
Needless to say I called the doc that day and got her to call in an Rx for Zith, and we are hoping that with Z back in the regime, that he will start to improve in this area again.
(The behavioral stuff subsided in a week, thank God!!!)
From what I've deducted on my search for info, is that the issue is neurological in nature, similar to bell's palsy. (there's an article on Bell's palsy of the gut written by a Dr. Sherr) I think it was Tincup that forwarded it to me.
If you want I'll hunt it down and forward it to you.
TO tie up a long story, we don't know if Lyme caused the problem, but it most certainly has exacerbated it!!! And it does seem to improve with Zithromax.
Now if only some of those folks from way back then who had this problem would write to let me know how they got it to go away!!! I love my son, but you can only clean up someone's butt and undies so many times with a smile
posted
Sounds like you all have this covered and I agree. Just wanted to add that both my children have dealt with this especially prior to being diagnosed and during the first 6 mos. to a year on abx.
The zithromax seems to have been the key. My 11 yr old is almost 100% accident free until we change her meds. My 8 yr. old son has accidents at night every 6 weeks or so and our LLMD feels this may be due to the lyme replication cycle.
Either way just wanted to encourage you and Lymemommy that as upsetting and exhausting as it is, you've got folks like us who can relate and it will get better!
And, Lymemommy my 11 yr old had the same bowel issues and that seemed to improve on the Zithromax and Mepron and we only see an issue in times of extreme stress such a panic or anxiety attack.
Hang in there! Posts: 9 | From Clermont, FL | Registered: Dec 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
How are you & DS doing? Still hanging in there?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
hi ali- sorry to worry you- (check your emails)
let's just say the past week has involved 2 firetrucks & a living room full of firemen holding axes, a stepdad facing being helicopted 3 states away to dodge death by anorism, trying to help a father now in the very last stages of dying an increasingly painful and terrifying death,and a DS who is sliding downhill fast after making good progress with abx.
can't wait for the calendar to reset. love, dilly Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Hi Sometimesdilly, sorry about all the stuff that's happening to you right now.
I just had a question about your son. My 3 yr old daughter has also been on Lyme treatment. She started abx early Sept. She seems fine during the day, but some nights she cries because of aching feet or legs. I'm wondering if these symptoms should have gone away by now. She has been on Amoxicillin all this time.
You mentioned your son has backslid in his symptoms? Which ones came back? And which type of abx is he taking? I'm concerned that Amoxicillin isn't an appropriate medicine for Lyme.
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