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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone had success treating neuroborreliosis?

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Author Topic: Anyone had success treating neuroborreliosis?
MayberryNut
LymeNet Contributor
Member # 16589

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Hi all,
I started back in May with headaches. By mid-June, I was having dizzy spells and moments of extreme lightheadedness. This included moments when it felt like my spinal cord was literally spasming in my neck.

Since, I treated with doxy alone, doxy and azithromycin, amoxicillin with azithromycin, doxy with biaxin, and doxy with tindamax.

Nothing seems to shake the tremulous feelings I get in my neck and head, mostly at night when asleep.

Can someone please recommend a treatment that has been effective for getting rid of these very annoying feelings? I am really getting discouraged after short periods when I seemed to get a little better, followed by periods where the tremoring comes right back again.

I will add that my Lyme test was positive, but my coinfection tests have been negative. I understand this doesn't mean much...surely I could have an odd strand of bartonella.

I really appreciate any suggestions and I'd like to hear what has worked for you.

Thank you!

Will

Posts: 131 | From MD | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Have you been tested for coinfections through Fry Labs?

Or .. would your LLMD be willing to try a trial run of meds for each coinfection to see how you respond?

You could easily have bartonella or babesia.

--------------------
--Lymetutu--
Opinions, not medical advice!

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MayberryNut
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My doctor would do that. What is the recommended treatment for bartonella?
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TF
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I believe you had your coinfection tests done through Quest because of the high cost of Igenex testing.

Why not reconsider Igenex testing and find out all the diseases you have. I think it is money well spent if it could be the key to getting your health back.

I know it is a lot of money, but the Igenex tests are so much better than Quest--no comparison.

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Lymetoo
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Quest? Useless, totally useless.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Wimenin
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pm sent...
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