SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Yes, CD57 generally does not go down until you have had the infection for a reasonable period of time (maybe 6-12 months). I don't necessarily believe that the lower it has gone the more difficult the recovery is. I have seen people with low numbers do quite well. It is also just one marker and should be used as a data point not as a sole indicator.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Scott, puh-lease add a caveat to your posts that you are not a doctor.
I respect your level of research certainly but your posts seem to indicate experience with interpreting test results.....
Posts: 3528 | From US | Registered: Apr 2007
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Cobweb
Unregistered
posted
My LLMD has found out in her practice that CD57 is not a reliable indicator as to the degree of illness in a lyme patient. She no longer uses it as a barometer for wellness or illness of her lyme patients.
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
My daughter had CD57 scores of 2, 3 and repetitively, zero whenever she went off Mepron and would decline. She has been in full remission now for years & years.
I don't believe it is a consistent marker for Lyme or Babs- for my daughter it was a good marker for her state of heatlh and treatment for Babs, it was spot on with her but for me it was not useful at all... I do not believe, with how expensive it is, and how unreliable, that it should be a regular Lyme test- and the doctor who designed it is the one who saved my life and whom I absolutely adore-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
p.s. I've never heard Doc S say that ever btw-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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adamm
Unregistered
posted
It was in a (I think fairly old) study I found on CanLyme.
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posted
i asked both of my llmd's this same question (one is dr S), and they both denied that the test can distinguish b/w 1. who wil be chronic for life and 2. who will get better w. time.
I had a really low score ad was really freaked out but their explanation calmed me.
Posts: 390 | From Oakland, CA | Registered: May 2007
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posted
My LLMD doesn't use it. He says some people will have a high CD57 and still be highly symptomatic, so he will still treat ... but others will have a low score and no symptoms .... he treats based on symptoms/need.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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