CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My LLMD Dr. C suggested that I take Alli, an over the counter diet supplement, for biotoxins. He thinks my continuing symptoms and herxing on abx is due to the fact I can't excrete biotoxins fast enough.
Has anyone hear have any experience with this supplement?
Thanks for your input.
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
I have not heard of this for biotixins, but I looked it up because I was interested.
"Just as Xenical, Alli contains a drug called ``Orlistat.'' In really simple terms, orlistat absorbs the fat from foods you eat every day, from fast food to ice cream."
So I am guessing that its binding properties are what the doctor thinks will work for biotoxins --similar to cholystyramine?
That is very interesting! Has your LLMD seen success with other patients using this? I know that cholystyramine has a lot of side effects, so much so that a lot of people can't tolerate it even with the Actos. I'm interested in the Alli if it might be easier to tolerate than the cholystyramine.
My one worry is that I seem to recall that there were major problems with Xenical, although I can't remember what they were. Of course, another problem I have is that one of the possible side effects of Alli, I read, is uncontrollable explosive diarrea!
Up for anyone else who has info ....
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Alison (love your towels!)
You have the right of it. I hear bowel leakage is a problem with the Alli, and I'm scared to try it. I don't have a problem now. I'm a regular girl. I take 2 magnesium malate pills a day, and I'm good.
Dr. C. said that biotoxins are fat soluble and the Alli would help exrete those toxins. I guess I have a problem releasing the biotoxins from the ABX.
Doxycycline is the only ABX that I can tolerate. It actually gives me an energy boost an hour after I take it. Herbal cumanda does the same thing now after I herxed my way up to the therapeutic dosage.
I've been going in a hot tub as often as I can hoping to eliminate toxins. The trick is not to stay in too long.
Dr. C said he did have patients on it. Take it 2 hours apart from meds.
Hope this helps.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
Up for anyone else on Alli....anyone?.....Anyone? Helooooo......
Al(l)i
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
any more responses?
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Wouldn't charcoal be just as effective?
And, remember, any binder will also take out the good stuff.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
bowel leakage!!! yikes. that's risky business. is that the drug that advises wearing dark pants???
Posts: 1173 | From USA | Registered: Nov 2007
| IP: Logged |
posted
Wouldn't Alli bind to the good fats as well? If you are on this long-term, I would think that could be very dangerous.
Posts: 117 | From Chicago, IL | Registered: Jan 2006
| IP: Logged |
posted
kelmo- I seem to recall in the dark and dank recesses of my mind, Shoemaker talking about -- ah yes, I think it was one of the videos on his website maybe -- anyway he made passing mention of the fact that they had tried charcoal and bentonite clay and it just didn't do the trick as far as binding to the toxins.
LZO - good point about the good fats. The amount I spend on my super duper krill oil, I'd dang well better be getting my money's worth and I'd be really ticked off if it got all sucked up by another med!
A.
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
o GOD NO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/