posted
Is there so much activisim,old,i mean old lyme,lyme abstracts,and etc. posted in medical questions.
This board should be free for medical treatment questions,esp. for newbies.
Newbies that are so ill they are depressed,they dont want to read they are not going to be treated due to the cost,they want help getting treatment.
The moderators sure need to straiten it out.
There is far to much activism being posted in medical.Thats why this site got the ranking it did.People coming to this board are ill,they want help.
And rather it be herbs,or antibiotics,it has been proven here both work,but should be stated that it should be talked over with there LLMD,before useing.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
| IP: Logged |
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Why is this rant posted in medical? It's not medically related either and is adding to the congestion of "Medical Questions".
food for thought.......
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My profound fatigue makes it overwhelming sometimes to think to look at all the boards.
I often wish it were all on one.
Sometimes I go to General Support, and think there is so much good stuff here....why don't I remember to come here more often?
I am so very grateful that so much gets posted in Medical, because I rarely think to look at the other boards.
It is so confusing to jump all around. I like the diversity of posts here.
There are lots of posts on the other boards that I think belong in Medical, for that matter.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by 8man12: There is far to much activism being posted in medical.Thats why this site got the ranking it did.People coming to this board are ill,they want help.
I don't think this site will be poorly "ranked" because of posting scientific, peer reviewed abstracts.
Quite the reverse.
Part of getting the "help" people need is also helping to educate them to the problems, attitudes they may encounter, hurdles to overcome.
The people posting abstracts are ALSO the same people pitching in and helping those who need help.
Did you notice that?
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
The biggest challenge when creating a structured environment is controlling the behavior pattern of the users. I know this based on my 30+ years experience working for IBM and my 10+ years volunteering for LymeNet.
If we create a structured environment using boxes A, B, C and X, label the structute and instruct the users to put A items in box A, B items in box B, C items in box C and all other items in box X over time users, based on their individual interpretation of what goes where, would end up putting items in boxes for which the original structuted environment did not intend.
Utimately, especially in a text based environment such as the LymeNet Flash BB, there is no viable way to control or modify the behavior pattern of the users.
As an example, this results in too many Activism topics being posted in Medical.
Therefore all we can do is ask users to be aware and create Topics in the appropriate Forums.
Thanks,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Also almost all the people that post have lyme - a disease that causes cognitive issues...
Making the right call of what goes where when ones brain isn't always working properly can be a challenging task for some.
I always try to keep this in mind when I read posts that i find disconcerting or find things out of place.
I literally try to keep from falling down when I try to do things around the house. Sometimes opening the cottage cheese, scooping it into a mug, getting a spoon, and eating it.... it exceedingly exhausting..
I know some poeple expereince this with thoughts and other brain functions...
One thing having to endure the symptoms of this disease for 20 years has done is give me more forgiveness towards the behavior of other people... because you never know what someone else is going through.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Aren't abstracts and things people post all medically based, anyway? It seems most things fall into medical in some way....it is all about a disease.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I guess everything gets filtered through what our biggest challenge is, LYME.
Its really a sub conscious reaction to a very real pain we all feel. We want everything to help our Lyme and when we think "Lyme" we think of pain, injustice and perhaps a glimmer of hope.
I for one cant think of anything that isint effected by my disease first. When I think of activism, I think of standing in pain and screaming in a fog to people who dont exist but in my mind!
How we all would like to bring the focus back to things that we actually enjoy instead of the problem.
In my opinion there are other boards for that, boards on cooking, spirituality, movies etc.
I know I frequent another board that has nothing at all to do with Lyme and has to instead contend with spirituality.
just my 2 cents.
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[hi]](graemlins/hi.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic