LymeNet Flash: Pennsylvania Department of Health To Hold Hearing On Lyme Disease

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Pennsylvania Department of Health To Hold Hearing On Lyme Disease

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Topic: Pennsylvania Department of Health To Hold Hearing On Lyme Disease

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

Pennsylvania Department of Health To Hold Hearing On Lyme Disease

The Commonwealth Lyme Disease Task Force formed in 2007 by the Pennsylvania Department of Health is holding a hearing on Janurary 8, 2008, in Harrisburg, Pennsylvania to solicit input from Lyme patients on their disease.

Copyright 2008 Lymehealth.com

anyone know about this? anyone going?

[ 08. January 2008, 09:04 PM: Message edited by: djf2005 ]

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"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

Curiouser
LymeNet Contributor
Member # 14128

posted

I don't know yet if I'm going or not. Its a 2-1/2 hour drive each way for me.

I have family out that way I can stay with, but its still a long haul.

Either way, I'm in the process of composing a letter that will be sent prior to the hearing.

If folks can't make it to the meeting, their letters can be sent to:

Dr. James Rankin,
Pennsylvania Department of Health,
Room 933,
7th and Forster Street,
Harrisburg, PA 17120

or fax to (717) 772-6975.

Questions may be directed to Dr. James Rankin by telephone at (717) 787-3350.

Letters/faxes will be accepted through Jan. 31.

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If you don't know where you are going, any road will take you there. - Lewis Carroll

Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007 | IP: Logged |

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

the hearing is tomorrow though?

how are they accepting through the 31st?

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

posted

I'm definitely going to fax a letter to them then!

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One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007 | IP: Logged |

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

there are not accepting any further info, documentation, stories, testimonies, for tomorrow's hearing. its already set, and they have "what they need" (i just spoke to his secretary)

the reason they are "accepting until the 31st" is because they will use any stories submitted from here on out for furture hearings, which, unfortunately are not scheduled.

even still though, if you have a story, and can fax it to the above #, it may prove to be of some use to the lyme community eventually.

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

let me re-iterate-

i think i may have not communicated this clearly.

if ALL of us on here sent OUR stories to this fax #, now THAT would start a ruckus and get some light shed on this disease...

Please, if you have your story or a story, print it, and fax it away.

thanks

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

BOEJR
LymeNet Contributor
Member # 1734

posted

Hi Derek,

I think that it would be a good idea to post this on as many "lyme sites" as you can. Even if they are not in Pa. It will still bring some attention..

Julia

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Please consult your LLMD before making any changes to your treatment regimen.

Posts: 641 | From NJ, USA | Registered: Oct 2001 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

Stargazette News Task force seeks input on Lyme disease

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Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

djf2005
Frequent Contributor (1K+ posts)
Member # 11449

posted

thanks julia, ill try [Smile]

miss you!

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007 | IP: Logged |

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