randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i don't know if anyone else has this but i have a very droopy eyelid on the right side. when i wake up it's much worse but seems to get a little better during the day.
it droops on the inside near the bridge of the nose and looks exactly like a swollen eyelid or something.
i'm positive it's lyme. what drug will make this go away?? or will it ever??
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I had the same problem for quite a while. Mine was left over from Bell's Palsy and it was so annoying. My mother in law took me to see an acupuncturist. I was skeptical but I went to appease her. Well, it worked! My droopy eye was gone after 2 weeks.
Posts: 36 | From Greenville, SC | Registered: Feb 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Both my eyes started drooping/and being swollen almost a decade before my Lyme diagnoses and treatment.
The allergist said I was allergic to "everything" so I started taking Claritin and Flonase and then it only happened randomly. It was another "mystery symptom".
During Lyme treatment and herxing, my eyes never displayed the weird swollen symptom (and that lasted 2 years).
However, after Lyme treatment, it happened much less but, now that I've discovered I have Bart and the biotoxin gene, it's back again.
I hate it and have no clue exactly what it is. My best guesses:
1) Bart symtpom 2) build-up of biotoxins which cause inflammation 3) leftover Candida? 4) all of the above
I now really only have it one eye and it's been morphing throughout my 2-month Bart and biotoxin treatment. I'm on Rifampin/Zith and cholestyramine.
I pray it's just one of those weird TBD issues that will clear when I'm recovered.
Anyone else out there with these weird swollen eye issues?
They did put a few needles around my eye but not on my eyelids. There were several other pressure points that they used as well. Several in my feet, ears, hands, and scalp. The needles are very thin so it really did not hurt and it was very relaxing. Best of all it worked for me.
Cricket
[ 12. January 2008, 10:09 PM: Message edited by: CricketSC ]
Posts: 36 | From Greenville, SC | Registered: Feb 2007
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Clarissa
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Member # 4715
posted
Cricket,
Thanks so much for sharing this information. It must have been so exciting when it worked! I'm in.
Was it really scary to have Bell's Palsy? How long did it last?
posted
I started having lyme symptoms in 1995 and the Bell's Palsy was in 1998. I woke up one morning and half my face was paralyzed. I freaked! I thought I had a stroke and rushed to the doctor. He told me it was Bell's Palsy but had no answer as to why I had it. He said I would have it a minimum of six weeks and it my or may not completely go away. I went from doctor to doctor from 1996 to 2006 and not a single one ever mentioned lyme to me. Finally in late 2006 I was tested for lyme and it came back positive. The Bell's Palsy finally made sense. I hope acupuncture helps you too.
Cricket
Posts: 36 | From Greenville, SC | Registered: Feb 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Lymetoo,
I think Randi has a droopy eye but not Bells Palsy. CricketSC was the one with Bells and had some repurcussions after treating it and got it fixed with acupuncture.
CricketSC: That was a horrifying story. I can't believe you went through that for ten years. My mouth is agape. You SO deserve to have your face be better...what a soldier you are! Thanks for sharing such a painful memory with a good outcome and a hopeful remedy for others.
Folks: anyone else with this swollen/droopy eye issue that Randi and I are struggling with?
posted
I had Bell's Palsy TWICE after I was into my treatment.
Each time IV and accupuncture fixed it and now it about 95% healed.
I really own my accupuncturist alot of credit. He sais if you get to one soon enough after it happens they can restimulate the nerve in order for it to get the oxygen it needs so as to be able to heal..or something like that.
I too have the swollen eye things in the morning.
Wander if it's bart too. Did'nt have it until Lyme and Babesia had been treated for awhile.
Posts: 111 | From San Francisco | Registered: Feb 2007
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posted
I have been having the drooping on my right eyelid too for the past couple of years.
Some mornings both lids are swollen and very puffy. A cold wet cloth helps this for me.
Sorry I am not of help with answers. Just letting you know your not alone. Take care.
-------------------- Take Care, DakotasMom01 Posts: 371 | From NJ | Registered: Dec 2007
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Clarissa
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Member # 4715
posted
It's comforting to know that others, with Lyme/Bart (coinfections) have experienced the swollen/droopy eyes situation.
This is the one mystery symptom I haven't "solved" in my mind yet.
JenChasingLyme: Have you tested for the biotoxin gene? If you didn't have the swollen eyes until you were treated for Lyme/Babs, maybe a build up of die-off/toxins and increase of inflammation happened/is happening?
So many of my symptoms (thankfully) went away with Lyme treatment but the anxiety, depression, pms and swollen/droopy eyes thing remained. I am now being treated for Bart and biotoxins and that's why I've isolated those 2 things for the swollen eyes diagnoses.
My LLMD said it's possible but that there are way too many variables to pin-point exactly. I guess only treatment of these two things, as well as time, will tell.
I can tell you that the morning after taking milk thistle for the first time, my right eye looked like someone had punched me. Milk Thistle hits the liver filled with toxins, so maybe it released something, causing inflammation?
Nonetheless, I never took that herb again. I now take NAC for the liver and it doesn't seem to "hurt" my eyes. The same thing happened (but with BOTH eyes) when I took prometrium one time (progesterone for my horrid pms).
LLMD said I was probably too inflamed with toxins and to put it to the back of my meds shelf until I get the biotoxin load under control with Cholestyramine (generic for Questran).
This is such a cruel disease. I'm sorry you had to endure Bells Palsy...I'm sure you needed that like a hole in the head!
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
thanks ya'll. i don't think it's bell's palsy as my face has never been paralyzed but i do have much more symptoms on my right side including my face.
nope, the eyelid just droops down on the inside near the nose. looks like i have "sinuitis" which is what the stupid doctor calls it, but i know it ain't.
i'm getting afraid to at least wear any eyemakeup at all cause i'm thinking it will cause problems.
my mom's is so bad it interferred with her sight and the eyelashes were scratching the eye. the dcotors scheduled her to have surgery to have an eyelid tuck or whatever but cancelled it because of her atrial fibrillation, and all. she has lyme, i'm positive.
i've tried everything and nothing works.
i'm not on anything right now because of the c. difficile and not having a doctor. i am taking a liquid cat's claw and that's about all.
i'm thinking i will start the cowden protocol. can't hurt...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Clarissa
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lymeinhell
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Member # 4622
posted
It might just be plain old muscle fatigue (as was my case). Your body so busy fighting infection that your cells easily run out of energy.
What worked for me (at recommendation of my LLMD) - take a drop of Peppermint essential oil and put it just above your eyebrow. Make sure to cup your hands and inhale the aroma. Really wakes up the brain and fixed the droop.
Easy and inexpensive.
Over time I no longer needed to do this.
Clarissa - I too had the 'punched in the eye look' early on which was why I got treatment for Bart (and was successful).
Just adding my 2 cents.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Clarissa
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posted
lymeinhell:
Thanks so much for your supportive and encouraging words. I really appreciate your posting your personal experience...my gut feeling was that it was Bart.
Yes, recently was tested for the toxing gene (was SOO sure I had it with how sick I am from antibiotics!!!) but I don't.
SO I am not sure why I have just gotten worse with treatment when I had this thing only 12 months and have now been in 15 months of treatment and still am on oxycotin and xanax now and when I started flexiril or a soma did it for me.
What is going on??
Posts: 111 | From San Francisco | Registered: Feb 2007
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