Topic: 2008 Shapiro: short course of orals= long-term cure
CaliforniaLyme
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posted
Murderer. *********************************** 1: Adv Exp Med Biol. 2008;609:185-95.
Lyme disease.
Shapiro ED.Department of Pediatrics, Yale University School of Medicine, New Haven, CT 06520-8064, USA. [email protected]
We now have more than 30 years of solid, scientific research about Lyme disease, a relatively common, vector-borne illness in parts of the United States and of Europe.
Although there is still widespread misunderstanding of and misinformation about the disease among the lay public, its clinical manifestations as well as how to diagnose and to treat it are now well understood.
In the vast majority of cases simple treatment with a relatively short course of orally administered antimicrobials results in long-term cure with no adverse sequelae.
PMID: 18193666
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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treepatrol
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To top it off he in pediatrics children!!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
CaliforniaLyme
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posted
The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.
Know thine enemy. They are working overtime- and have no problem getting published.
THIS murderer is considered an authority.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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jamescase20
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And we left the old world to come and deal with this new world?
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Michelle M
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quote:Originally posted by CaliforniaLyme: Murderer. *********************************** 1: Adv Exp Med Biol. 2008;609:185-95.
Although there is still widespread misunderstanding of and misinformation about the disease among the lay public, its clinical manifestations as well as how to diagnose and to treat it are now well understood.
Let me dissect just this one retarded sentence:
"Widespread misunderstanding of and misinformation about the disease among the lay public" means: People with lyme keep disagreeing with us loudly, and other people are listening, and we don't like that.
As to the other part, "its clinical manifestations as well as how to diagnose and to treat it are now well understood," this means: 9 out of 10 doctors still don't have a freaking clue, but if your doctor says you don't have it, you should trust him because this is now so 'well understood.'
Recently, even my YOUNG doctor (orthopedic) exlaimed, "Lyme disease? In California?"
The 'best' neurologist in town couldn't figure it out despite every textbook symptom and objective finding and even a recitation of a bite and rash, preferring instead the "MS" diagnosis. He doesn't even know what co-infections are.
This kind of drivel from Shapiro flies in the face of reality. I wonder if he realizes how stupid it sounds? Even people without lyme know this is silly. He ought to be embarrassed to publish such garbage.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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AliG
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It would seem that he lives in his own alternate reality.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
If he is so sure, he should be willing to demonstrate this for the rest of us. Why not allow himself to be bitten by a few infected ticks, allow ample time for the disease to really manifest and then treat for 2 weeks. Let's see if he relapses and then make sure he can't obtain anymore antibiotics because he's been successfully treated.
Granted this wouldn't represent Chronic Lyme but still.....
So frustrating!
Posts: 561 | From mass | Registered: Jul 2007
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quote:Originally posted by CaliforniaLyme: The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.
Yes, and he was the prosecution's 'expert' witness against Dr. J. This is the man the CT medical board chose to listen to!! while ignoring the other expert testimony.
We have to get the truth out wherever and whenever we can.
Posts: 621 | From US | Registered: Jun 2006
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David95928
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posted
I'm sure he would be willing to take a blood transfusion form me (not).
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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TerryK
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Thanks for posting this CALyme!
The IDSA now include information on human granulocytic anaplasmosis (HGA) and babesiosis in the 2006 treatment guidelines. How can they state that they have 30 years of history to justify their stance when it is clear that even if a person were treated for lyme, they will still be sick if they contracted babs because lyme treatment does nothing to treat babs?
Oh yeah, they probably think it goes away on it's own.
Why don't they admit that a percentage of the people that they have doomed to hell with their label of "post lyme syndrome" could actually have a treatable illness - BABESIA? Then those people could get some treatment. Why don't they admit that the combination of one or more infections can change the outcome of infection to a much more complex infection? Why aren't they considering all of the other tick infections that are known to be passed with a tick bite??
I haven't seen any mention from these a$$es that prior to their admitting that there are other tick borne infections transmitted with lyme, patients would have been infected that have never gotten treatment! Those patients who have been diagnosed with so called post lyme syndrome should at the very least be evaluated for babesia and HGE!!! They obviously realize that some patients have it that have never been treated.
They simply don't care about the suffering that they have caused because here is one instance when we know for a fact that they know without a doubt that there are people who contracted babs that have never been treated. The thought that this infection simply goes away on it's own is ridiculous.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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quote:Originally posted by CaliforniaLyme: The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.
Who's Doc J? What is he/she screwed for? (Sorry if this is off-topic, I just want to understand.)
Posts: 7 | From WA | Registered: Jan 2008
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sizzled
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posted
Murderer.
Posts: 4258 | From over there | Registered: Jul 2001
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Tracy9
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posted
Momfromtexas,
SO WELL SAID.
I'm afraid his alternate reality is making it our reality; we are coming up against more and more people who have heard this and think we are fakers.
Momfromtexas, GOD I HOPE YOU ARE RIGHT.
Certainly, it is becoming more and more widespread and I can't imagine there could be any way that this will escape people much longer.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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CaliforniaLyme
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posted
Karuna- PMed you an explanation*)!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Basically, my opinion is . These individuals are involved in a long-term effort to cover up something called 'treatment resistant neuroborreliosis' which is the bioweaponized strain of Bb s.s. and which causes chronic lyme .encephalopathy. This effort is designed to basically screw over people like us. As time progresses and the diseases spread throughout the US, the chances are that the virulent, dangerous form of the disease will be bred out. Also the total numbers become so huge that it is true that most cases ARE NOT the bad strains.
For purposes of the military industrial fascist establishment, we DO NOT exist. Why? Because it is an incovenience to the establishment elite who want to keep profitting off of our backs. For every destitute and isolated lyme victim, there is an investment banker or defense executive residing in splendor because the status quo, politically and economically, is maintained by the cover up and fiction.
Remember what russ tice, the DIA/NSA whistleblower had to say when he claimed the secretary of defense, the NSA director, and an air force general were breaking the law, and then was told by the NSA that he couldn't testify to closed session of Congress because none of the congressmen were cleared for the program in question:
"this is not something you'd want to see in the times...the american people should never hear about this unless it is 200 years from now when it is declassified."
I don't know what exactly tice was referring to, but it could be this. Tice specialized in satellite telemetry for black ops, 'special access programs', for the US defense intelligence agency and for the NSA.
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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Tracy9
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I"ve been crying a lot today.
This post by Sarah sort of sums it us, I guess. I feel hopeless/helpless today.
I am really depressed that the motion for reconsideration for Dr Jones was not considered. I had such high hopes that it would be helpful. The motion was based on the fact that one of the panel members, Dr Senechal, was biased from the start. Affadavits were filed by Dr Jones legal team from "two parents" whose child was treated by Dr Senechal, and had heard him make very biased statements about Chronic Lyme not existing, and dismissing thier concerns about thier son.
Sometimes I guess as a parent you just fight so hard for your child and feel like no one hears you. My son is now 18, and for four years we have fought for him to get treated for chronic lyme, to no avail.
Both Dr. Zemel and Dr. Senechal were the reasons behind that, boy we sure hit the jackpot.
It was hard enough to have to hear Dr Senechal make these and other comments to our son and to us, hard to enough to run up against a brick wall in trying to get our son treated, hard enough not to be listened to..
It was shocking to see him on the Dr Jones panel on Dec 18 and try to absorb that this man was part of the Dr Jones proceedings.
We had hope that in stepping forward we might have made a difference for Dr Jones; then maybe all our son suffered wasn't in vain, that maybe our voices and experiences, identical to those of so many others, might just have a chance at turning the tide.
Maybe the reality is just sinking in. Maybe I didn't know it was going to hit me this hard.
It feels like just another instance of being invalidated, being helpless, being voiceless, and not being able to protect not only mine, but thousands of other children now as well.
It just hit me that this is a big reason why I've been crying all day.
To see these words of Dr Shapiro today just makes me feel like he is sticking his tongue out and saying "nah nah nah nah nah."
I'm so sorry our voices weren't heard. I'm so sorry for everyone, but mostly Dr. Jones. I wish my son had been able to be proud of his parents for speaking up and helping others. I wish my son could feel that what he went through ended up helping lots of other kids, and one incredible doctor.
It just sucks. It just isn't right. I wish there was something more we could do. I know it isn't logical, yet I can't help but feel that somehow I have failed Dr. Jones and everyone else. I don't know why.
I guess it's just the overall let down, and the overall feeling of helplessness that is rooted in years of watching my child get lost. Maybe what I really feel is that I didn't do enough for my son these last four years; and now it's out there for everyone to see; reflected in the fact that somehow what we did wasn't enough to help Dr. Jones.
I hope I don't sound crazy or like I'm having a pity party here. I'm just sad. I hope somehone understands what I'm trying to say.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
It it now clear that the great Dr. Shapiro of Yale has wasted his entire career working on, researching, debating, and being outspoken critic of a disease that is as simple as Lyme.
Maybe he will tell us next that the world is flat.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
CaliforniaLyme
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posted
Tracy9, [email protected] was the email for Ira the guy who won the Cecil Teen Lyme lawsuit for 1.4 million!!! If you do have a case- The problem is the standard of care is SO low- but if you get NO treatment- and can document disability stemming from that- you can have a case- Tracy9, I am so proud of you!!! You stood up for all of us. Who knows what may happen on appeal!! Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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oxygenbabe
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Bruce I agree with a lot but not that the virulent form will be wiped out--its spreading.
I would get you guys the full text but that would cause me to vomit while I was doing it so I prefer not to vomit.
I'd like to hang and quarter them but I don't have time now ,.
Posts: 2276 | From united states | Registered: Jun 2004
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quote: Why don't they admit that the combination of one or more infections can change the outcome of infection to a much more complex infection? Why aren't they considering all of the other tick infections that are known to be passed with a tick bite??
Yes, why? I actually thought they would be smart enough to realise that the co-infections were a good way out for them to avoid losing face. Maybe that's what they are doing, keeping the co-infections up their sleeves for when the s--t starts hitting the fan. I thought they were going to say:
"oh! but we were not wrong, we were writing about "pure" Lyme and "pure" Lyme is easily cured with a handful of abx.
But now, if we are dealing with Lyme with co-infections that's different, and it might be harder to treat."
But they haven't, I think they might actually be as dumb as what they write. They are going to stick to their guns no matter what.
Nelly
Posts: 416 | From france | Registered: Oct 2001
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TerryK
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Yes, you are right Nelly - it would be a good way for them to save face! So frustrating that it isn't happening.
Really does make one wonder about the biowarfare angle.
Of course I suppose they could be as dumb as a post but that just doesn't seem likely to me.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Tracy9
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Nelly, I bet you're right; their "pompousness" has prevailed so far...so maybe they are still saving that one.
Frankly they really haven't had to use it yet, and the more they "win", they more pompous and entitled they become.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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lymednva
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quote:Although there is still widespread misunderstanding of and misinformation about the disease among the lay public, its clinical manifestations as well as how to diagnose and to treat it are now well understood.
I think he has that part backward! The "lay public," i.e. patients, have a well-informed understanding of and information about Lyme.
It's the ducks like him that are lacking it!
The LLMD's have figured out how to diagnose and treat Lyme, it's IDSA and Shapiro that have the misunderstanding!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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