posted
I just got back the test-results from my GP. apparently it came back negative. as far as I understand it is normal to have a value between 0 and 1.15 my value was 0.26 my GP who has been rather supportive in my thoughts that I have Lyme but told me that this result makes it a lot less possible to be Lyme... I'm on Doxy for 2 weeks now, suffering quite a bit but he told me to stop after 3 weeks... not long enough right? hope to go to a specialist soon...
anyway... just curious about what these results mean. I had my tickbite in september
cheers Judith
Posts: 13 | From netherlands | Registered: Jan 2008
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posted
My value was .91 in March of '06. I was positive at that time. That test is worthless. I am still on meds. STAY on the doxy as long as you can. Lyme is a CLINICAL diagnosis.
Posts: 20 | From Platte City, MO | Registered: Jun 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I went five years undiagnosed with THREE negative Elisa tests. And sadly, this was in a time frame that I seriously believed doctors and if they told me I couldn't have lyme due to this test, I believed them.
But in the end, I ended up unable to walk and it was a horrid nightmare with a lot of pain. I saw an N.D. that suggested I should get more extensive lyme testing. When asking my G.P. for a western blot (which in hindsight I understand wouldn't have helped me much either), he told me that since I had three Elisa negative tests, one being in the ER, there was no reason to run further testing.
So as my situation got worse and worse, finally my N.D. took the blood and sent it to Igenex. It came back positive and he sent me to a LLMD. When my G.P. found out, in a nutshell, he fired us as patients.
I've been on treatment 14 months now and although I know I have a long way to go for letting it get so far out of hand, I also have major improvement in that I AM walking by myself now.
Sadly, my story isn't all that uncommon to what others are going through here. The Elisa test isn't even a good screening test and too many slip through the cracks with that.
My advice to you would be to go to the section of the b.b. where you can ask for doctor referrals for your particular state and location. I'm not a doctor and can't say whether you have lyme or not, but if nothing else, get it ruled out by a SPECIALIST. Not an Elisa Test.
Good luck.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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jamescase20
Unregistered
posted
Elisa means NOTHING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! NOTHING
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jamescase20
Unregistered
posted
Elisa means NOTHING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! NOTHING well it does mean your doctor is a comp quake
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