posted
My son has had improvements but still has frontal headache pain all the time--for six years + -- and it's been worse lately. He's on a modified Cowden protocol and is taking Dr. Zhang's Artemisia along with other supplements. He's done lots of abx in the past and usually the herxes are worse than the sx. He has Lyme and Bart, has never tested pos. for Babs but of course may have that, too, hence the Art. I'm wondering if anyone with chronic daily headache has had noticeable improvement with any of Buhner's suggested herbs? I suspect that the headache is from Bartonella.
Thanks, Nancy
Posts: 688 | From Florida | Registered: Aug 2001
| IP: Logged |
I have Lyme, babesia, probably bart too, but my head gives me problems whenever I'm exposed to artificial EMR. Actually, even natural EMR bothers me now, thanks to the cell phone boom.
IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I have tried many herbs, but none of them ever touched my headaches.
My only relief came from a variety of strong abx that treat co-infections.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Nancy
I have been meaning to say hello and find out how you all are doing. You know my son has had the daily headache for the same amount of time. He did find relief from his 9 month bart treatment on daily rifampin & doxy and then zith added on weekends.
He is off all abx and also on a modified herbal protocol......samento, sarspirilla, astragalus and vitamins. We will see how he does.
The good news is he took a 3 credit college course over winter break in Ireland and managed without any meds or herbs what so ever.
He also is doing acupuncture weekly and chiro body work. He will graduate from college after 7 years.
I always thought that headache was babs undertreated, but it probably was bart. Would you consider doing co-infection testing with Fry labs.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I cannot speak to Bartonella or to the protocols you mentioned.
As your son does whatever he can to eliminate infections, in the meantime, cranial-sacral therapy might be of help.
the gentle type, not the "snap and crack" stuff. Using a D.O. (doctor of oseopathy) or a D.C. (chiropractor) is trained in this. Asking about their technique is a life-saver in this area, though.
Adjunct therapy: While not an herb, the mineral magnesium helps me a lot, as do fish oil capsules (mercury-free certified).
Magnesium is often overlooked for its great pain-relief, calming and detox abilities.
Magnesium/ Calcium / Zinc and other minerals in balance might be best.
Having a warm foot back with epson salt, too, might be helpful - and end with cool water over the feet to bring the heat back down from the head.
-
Avoiding fluorescent lighting might help a lot.
If you have any new perfume products in the house or car, you might discard of those - and if you have gas stove or furnace, be sure to get fresh air exchange a couple of times a day.
If you have any new vinyl products, that might cause symptoms, too.
If a gas stove, turning on the exhaust fan just BEFORE lighting, and just BEFORE turning off burner can capture some of the escaped gas - it's the stuff they put in it that is so reactive for some.
-
[ 24. January 2008, 08:08 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Neurol Sci. 2007 Jun;28(3):148-50. Epub 2007 Jun 30.
Magnesium as a preventive treatment for paediatric episodic tension-type headache: results at 1-year follow-up. Grazzi L, Andrasik F, Usai S, Bussone G.
Headache Center, National Neurological Institute C. Besta, Via Celoria 11, I-20133, Milan, Italy.
The objective was to confirm the long-term utility of magnesium salts treatment on a group of young patients suffering from episodic tension-type headache (ETTH).
The study was carried out at the Outpatient Headache Center at the National Neurological Institute "C. Besta," Milan, Italy, with 45 children/adolescents with ETTH reporting consecutively for treatment.
Magnesium pidolate (2.25 g) was given twice per day for three months.
Medication was not administered during the year of follow-up.
No other treatment was provided at any time. Patients showed significant symptom reduction.
Headache days decreased by 69.9%, whereas analgesics consumption was reduced by 65.4%. Overall disability levels improved by the greatest percent - 75.7%.
MIDAS subscores improved as well (question A=58.0%; question B=22.5%).
Although uncontrolled, these findings are encouraging and suggest that further, better controlled research investigations are warranted.
posted
Calcium increases my headaches, with or without magnesium.
That's because (cell phone) radiation is messing with what my body does with calcium - using it for clogging my arteries, killing my kidneys, etc...
IP: Logged |
cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
headaches are one thing I know a little about -- as someone who speaks from 15 years experience of constant headaches, I really feel for your son.
A few weeks ago I began the Buhner protocol. I think the resveratrol really made a difference in my migraines.
At the same time I began taking lots of EFA -- a tablespoon of vegetarian mixed EFA's in the morning and 2400 mg of fish oil capsules at night.
I believe the combination of the EFA's and the resveratrol has made a real impact on my migraines. The only thing that ever worked for me before was Botox.
Buhner talks about swelling of the meninges -- and I think that may be MY situation, given the huge results I've had with the resveratrol.
(I am female and weigh about 140 lbs)
If that is your son's headache cause, then maybe the fish oil and resveratrol may help. I wish him all the luck.
Tailz -- I am a believer about EMR. I knew nothing about it until I tried neurofeedback (for headaches and insomnia). I discovered that whenever I held a cell phone to my head I would instantly get a severe headache, I mean instantly.
Because of the neurofeedback training, I knew that my brain was very sensitive to changes in electrical wavelengths. During my sessions I could see how sudden changes in the wavelengths of my own brain had drastic effects on my headaches and mood.
It may sound nutty to some, but it's a matter of how stable your brainwaves are, and how well you are able to bring your brainwaves back to equilibrium after exposure to EMR.
If you LIVE under EMR such as high tension wires, the changes to your brain, I imagine, could impact your entire hypothalmic / pituitary / neuroendocrine health.
Posts: 1173 | From USA | Registered: Nov 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
This is one herb that helps with pain and also helps sleep.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
My headaches went away when I discovered I was allergic to soy and cut it out of my diet. If nothing else works, you might want to talk to your doctor about trying a food elimination diet.
Many headaches are triggered by food. If your son is sensitive to a food he eats every day, that could cause a daily headache. The headache is not always right after you eat.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
I'm sorry to hear about the constant headaches. I was hoping you had found a solution.
J & J continue to have severe, constant headaches. Lumbar punctures reduced the headaches. This week, J & J started taking generic Diamox. It seems to be helping some.
We are looking for another neurologist. Jordan has an appointment next week and I hope this one will work for us.
Take care!
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
posted
Hi everyone, I didn't realize that this post made it on the board and so I had posted another one. The server was down and it didn't show up initially, so I'm just seeing it now.
Lots of good suggestions everyone--thank you. Some we have tried already and/or looked into.
Valleymom, I'm so happy to hear that your son is better...did the headache go away completely? Any relief would be welcomed, of course. That's wonderful that he went to Ireland! How long was he on the Bart tx before he began to improve? My son has such bad herxes that it's hard to stay on abx for very long. Yes, we had the Fry test done a few months ago and it was pos. for what looks like Bart., neg for Babs. Great news and congrats to the graduate!
Cottonbrain, I'm glad that you are having improvement from the Resveratrol. Also, the info about neurofeedback was interesting. We looked into a particular form of that and I know that it has helped some Lyme patients.
I will check out the corydalis articles.
Peggy, I'm so sorry to hear that J&J are still having the headache, too. It's kind of unbelievable isn't it? I hope that Diamox helps them - I seem to remember that they have had a problem with high pressure in the past. That wasn't the case with Max. Are they still doing any sort of abx treatment? Nice to hear from you.
Nancy
Posts: 688 | From Florida | Registered: Aug 2001
| IP: Logged |
The kids are taking antibiotics. Jordan is going to start Omnicef tomorrow. He has been on an antibiotic most of the time. Jake is on the Zithromax/Malarone protocol. He was off antibiotics for 1 1/2 years.
Peggy
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
Shosty
Unregistered
posted
I want to echo what Aniek said. I used to some on her with a different name, talking about our daughter, who was out of school for months with extreme headache. Pab and Blackmon were helpful to us. We tried a lot of meds, different aabx, therapeutic swimming, chiro, PT, etc. etc. We consulted so many MD's, none of whom could help in the end.
I suggest getting to an integrative medicine MD (Pref. one covered by insurance).
Ater two and a half years of her daily headache, an integrative medicine doctor put her on an elimination diet. He warned things could get worse first.
The second day, she went to the ER in agony.
The third day, I swear to God, and I don't believe in miracle cures, the pain was completely gone! It has never returned, either.
For her, it was caseine protein in milk, and she also doesn't eat gluten. It took a long time to safely add back corn, soy etc. but she has.
She still gets migraines occasionally, which neurolgists also could not help, at least not in ways that left her functioning. Her hormones were off, it turns out, and progesterone cream has reduced the migraines (different headache than the daily one) from 3-5/week to maybe twice/month, when storms are coming.
IP: Logged |
posted
Shosty, thanks for your post. I may remember you and your daughter, assuming that you posted under a different name at that time (?). I'm so happy to hear that your daughter is better!
We did food sensitivity testing after our LLMD ordered the test and tried eliminating those substances, but it wasn't helpful. I think that using the elimination diet is different though, isn't it? I believe it's done w/o the testing and just cuts out allergens and then slowly re-introduces them. We have not tried that.
The evidence that his headache is related to Bartonella has been pretty strong, but it's worth re-visiting other alternatives.
Nancy
Posts: 688 | From Florida | Registered: Aug 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic