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» LymeNet Flash » Questions and Discussion » Medical Questions » Vitamin D

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Author Topic: Vitamin D
tickled1
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I'm confused.

My LLMD said my Vitamin D is low and will need supplementation. Then, I briefly read about Marshall Protocol that says to avoid Vitamin D and sunlight.

Does anyone know anything about this?

Laura

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sixgoofykids
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I think you need Vitamin D. I don't agree with the Marshall protocol.

In the warmer months, I sit out in the sun 15 minutes every day. I recently felt like I needed out in the sun really badly .... so I bought some Vitamin D and felt much better within a few days.

I know I should have been tested first, but I'm taking a low dose for a short time. I don't drink milk, so I have nothing that is vitamin D fortified in my diet.

Dr. Mercola sells tanning beds that are low EMF and high uvaB rays for vitamin D production. I would have gone that route had I not been on minocycline. I want to get one of these when I'm off meds.

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sixgoofykids.blogspot.com

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roro
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I think what the marshall people are saying is that if your vitD is too high, that can be bad too.

but it is much more of a risk to have low vitD. It causes all kinds of health problems.

lyme does have some kind of connection with vitD

I know for me, mine was very low. but when I tried to supplement before antibiotic treatment, it made me feel worse.

once I had started to feel better on the antibiotic, the vitD really made a big difference. I feel much better on it.

definitely take it if it is low. the risks of low vitD are much greater than the risk of high vitD the MP talks about.

it also might be a different type of vitD, there are 2 or 3 types

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tickled1
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Thanks for your reply.

Any idea what the theory is with Marshall Protocol to avoid Vitamin D and sunlight?

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roro
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I am not a doctor so I don't understand it completely, but it has to do with vitD being like a steroid

its not a steroid, but acts that way in the body. so it could stop you from getting better, by binding with the antibodies making them ineffective

this is not really how steroids work, I am over-simplifying, steroids work by suppressing the immune system.

vitD does not suppress the immune system, the MP says it just binds with the antibodies, making them ineffective against the infection

think of it this way. steroids are bad for infections because they weaken the immune system and the infection flourishes

but if you have addisons disease, you are LOW in cortisol. cortisol is necessary for many significant functions, including fighting off infections

so if you have low cortisol, you have to take a low dose of steroid or you wont get better

this is not how vitD works, I am making an analogy here. if youor vitD is low, you need to supplement it or you will not get better

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tickled1
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Thank you so much for your help!

It makes a lot more sense to me now. She wanted to wait until I leveled out on my antibiotics before starting me on any supplements because I had a really bad herx when I started the last one (ceftin) and I had to back off on it and am working my way back up.

I was waking up during the night choking and gasping for air and felt like I got punched in the throat and my voice was all strangly sounding. Also felt like circulation to head was cut off and had pain in my lungs.

She thought it was all inflammation due to herx. It did get better when I backed off. I also have to take antihistamine now in case it was any kind of allergy and because I was getting hives even before starting any antibiotics.

I will not be apprehensive to do the vitamin D now. Thanks!

Laura

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tailz
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I get sick whenever I take vitamin D, and I'm going to trust my body. I do not believe that a vitamin D deficiency caused my Lyme. I do not believe that a magnesium or calcium or any vitamin deficiency caused my Lyme.

I think my body is telling me to avoid vitamin D (and sunlight) to protect me from cell phone tower radiation.

Likewise, I cannot tolerate magnesium and calcium - especially calcium. It's the wireless boom. The wireless boom explains every health problem I have, yet nobody will listen to me.

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B R H
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I wouldn't even consider vitamin D supplementation if your 1,25-D (that "other" form of vitamin D) is elevated. Dietary vitamin D is converted to vitamin 1,25-D by your body. This conversion is normally a tightly regulated process. If your 1,25-D is elevated, your body has lost control of this process (via the disease - Th1 inflammation). Supplementing could just make matters worse by "fanning the flames" of inflammation. Too much vitamin D can actually make the innate immune system inept, allowing the infection to slowly spread. There are so many variables that these relationships aren't obvious by simple observation. Molecular biology (used by Marshall) objectively explains the processes quite well without having to deal with all the subjective variables. Clinical medicine is 20 years behind the insight molecular biology provides.
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B R H
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Many types of "radiation" can induce vitamin D production in humans. It's a matter of which provides enough energy to accomplish this. Sunlight is very high on that list but electromagnetic radiation from cell towers would have orders of magnitude less ability in that respect.

Have you had your vitamin D metabolites (25-D and 1,25-D) measured?

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Peacesoul
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Tailz, I'm like you, I feel unwell when I take Vit D, but oddly enough I feel great when I sit in the sun

Here is a great article about the risks of VBi D.
I'm not in agreement or disagreement with this, just wanted to share

http://www.sciencedaily.com/releases/2008/01/080125223302.htm

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tickled1
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Holy moly! More confused than ever. How about a high quality multi-vitamin with D in it? Good enough?

I think she said something about Grapeseed Extract. Any opinions on that? There's a bunch of others she mentioned that she said we'd go over at my next visit.

She also said she wants to be cautious when starting me on anything though b/c I'm so sensitive.

I tried natural calm (the powder magnesium supplement you mix with water) for anxiety and muscle pain and it gave me terrible headaches when it claimed it should ease headaches. Don't know why that happened.

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