LymeNet Flash: could this possibly be occurring without lesion formation in my brain

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » could this possibly be occurring without lesion formation in my brain

UBBFriend: Email this page to someone!

Author

Topic: could this possibly be occurring without lesion formation in my brain

adamm
Unregistered

posted

Just the steady decline in cognitive functioning that's been

occurring

pretty much since I got bit. Could this possible be from

hypoperfusion/neurotransmitter disruption. Or does it sound

more like something necrosis-induced to you?

Are there any classic symptoms that

indicate the presence of lesions?

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

Adamm,

It's nearly impossible to sort out everything. Just follow your doctor's orders, take the best care of yourself and rest body and mind. Rest is vital to getting better.

I don't mean to put off your symptoms, surely it's scary and confusing. I think many of us can say that we spent lots of time trying to pull this apart so that we could better understand it.

But by letting go and making a place for good rest, proper sleep and some things that can take our minds off this for a while - well, it might just be the best we can do for a day or so - or longer.

Much of what you describe from brain function can be a result of toxins - our bodies have a tremendous load to sort out. It can cloud up all systems.

Much of the way the body works is still a huge mystery even to the most avid scholars. We do know that rest can help heal.

Lesions, if present, have been shown to actually shrink and even disappear in many cases with treatment. Trust your doctor. It's a process.

We all have to actually work to relax a bit and give it time.

Take care.

-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Necrosis?

Isn't that tissue being "eaten away" literally?

I realize that you have been declining and that in itself is

Pretty darn scary.

Before diagnosis, I could hardly walk. Had great difficulty in speaking

Both in word recall and sound production.

I had swallowing issues, panic/anxiety attacks, joint pain,

Insomnia, etc. I have been in treatment for over one year.

I now know that some of my more morbid thought processes

Are a result of the Lyme. It just does that to me.

Now I recognize this feeling of impending doom and trepidation

As my Lyme. This has gotten better. I still have it at times, but

It has really gotten better.

Give the medicine and your body a chance to do it's job.

Hang in there.

Take a deep breath.

As a Speech Pathologist who has worked with hundreds of stroke patients,

GB patients, Closed head injured, anoxia, etc. patients,

I can assure you of one thing.

The brain is a remarkable organ.

When there is damage to one area (such as a lesion)

Other areas of the brain step up to the plate so to speak and form

New connections or take on new jobs (such as the one the damaged area was doing).

The younger you are the more "plastic" your brain is.

That means the existing connections or pathways, while

Maybe have been used for 30 years, are so set in stone

That new ones are not easily established.

Think of your brain as a central processing unit.

When you first start something like playing a piano,

Your brain has to "program" itself through all of the steps

From visually recognizing the music to finger movement, etc.

Then the brain finds the shortest path to all areas needed.

Speeds up the process a great deal.

If an area is damaged, it may take a while, but the brain

If stimulated with form new connections and go through the same process again.

That is one reason I don't opt for a spect scan.

I am functioning fairly well now.

Maybe able to go back to work this fall.

Speech wise.

I don't care what damage has been done. My question to myself is

Am I able to do these things that I couldn't a year ago?

Then my brain is compensating for whatever lesions or damage has been done.

Hang in there. I hope this relieves some of your anxiety. [Smile]

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

JasonK
Member
Member # 14071

posted

Adam,

Your not doing yourself any favours stessing 24/7.
Your in a llmd's hands and have some belief that things will get better. But you will struggle to make progress if you continue to worry about every single symptom. Good luck

Jason

Posts: 74 | From United Kingdom | Registered: Dec 2007 | IP: Logged |

map1131
Frequent Contributor (5K+ posts)
Member # 2022

posted

adam, you really need a chill pill. You ever needed a xanax? You do now. You are making/driving yourself crazy with worry.

I remember those days and how stressful it is not understanding what is going on in your body & your mind.

Anytime something pops up different with you, you need to try the search button on this site. Put in search for word(s) that you want to read more about.

Many many threads will pop up and you can read about your specific concerns. After you read what others have to say and what they experienced it will help ease your fears of.....

I'm not crazy, I just have lyme & company. After you don't spend your energy worrying about these things, you can spend that energy searching for medication or supplements/vitamins/minerals that might help your body with all these things.

You can't take rx's that help aaaallllll of these sx. Shop your nearest health food store and figure out what it might be that can help your body and immune system.

Treatment of lyme & company takes patience. Patience, something most of us did not have until we were faced with all of this stuff.

You are not going to find all the answers today. You might have to wait until next month, month after or even next year.

Patience my dear, patience. No stress!!!!!!!!!

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6478 | From Louisville, Ky | Registered: Jan 2002 | IP: Logged |

CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

posted

Or meditate*)!!! I meditate daily, every morning, helps me greet the day MUCH more calmlY!

YES you can have those symptoms without lesions!!

best wishes,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005 | IP: Logged |

adamm
Unregistered

posted

You know-I actually am going to start meditating!

I used to a long long time ago, before I got Lyme, but

now more than ever I need it.

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

Tai Chi or Qi Gong might be a fun way to get some gentle, meditative movement. Great thing about that is that is healing and diversion.

There may be a class near you - or a DVD. Both would be great. It's vital to have a good instructor in person and the spirit of a group. And the DVD at home can be used any time of the day.

There is a range of type from more meditative styles to martial arts so study the description if you go looking for one.

-

[ 30. January 2008, 03:52 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

heiwalove
Frequent Contributor (1K+ posts)
Member # 6467

posted

i second the meditation suggestion!!

and yes, you can have horrible neuro symptoms without lesions. i did. i could barely think at all, couldn't read, write, communicate, watch TV - and somehow my brain MRI came back normal! confusing as hell at the time, but there you have it. these diseases often make no sense.

--------------------
http://www.myspace.com/violinexplosion

Posts: 1848 | From seattle, wa | Registered: Nov 2004 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/