posted
I haven't started treatment for Babs, but I have similar symptoms to the ones you describe.
Sometimes I have a choking sensation, but I haven't actually been choking on anything. Or sometimes when I drink or eat, it feels like something is stuck in my throat. It's an awful feeling.
My chest often feels tight. It circles around to my back and it makes it VERY difficult to breathe. The doctors tell me me this is connective tissue inflammation, but I'm skeptical. Sometimes my body feels like it doesn't want to breathe. I have to force myself to do it.
I always feel like my head is floating. Physically I'm here, but mentally I'm somewhere else, like it's a dream.
I also have horrible sinus pressure and pain in my cheeks. Random headaches, hot flashes, and chills.
I believe this all to be from Babs, whether it's during a herx or not.
Posts: 81 | From Central PA | Registered: Mar 2007
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks for sharing with me.
I vaguely recall the choking sensation and swallowing issues
From over a year ago.....but I was sooooo sick.
Whatever it is (not listed as possible side effects of either med),
I sure hope it is killing those nasty bugs dead!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
JohnnyB,
I am not sure. Just find that this symptom which I haven't
Had in over one year decides to make an appearance on my 5-6th day of mepron.
That is just a little too coincidental for me.
I figured if it was Lyme, then I should be at least having difficulties
Once a month or for the last 5 months on doxy/flagyl...
Unless the biaxin is hitting something else.
This disease and co-infections sometimes makes me crazy trying to figure out
Which symptom (for me) goes with each disease.
I still have the sensation today...but not like yesterday.
I am pretty sure I saw this symptom listed as babesia....
But don't quote me.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Geneal
During Babs treatment symptoms will worsen new symptoms will show up threw time --
This is completely Normal and to be Expected-
Babs Herxes are the worst - so be expecting it too -
Took 4 months before I had my first Real babs herx -It is no fun --OucH -
Make Sure to take the mepron with FATTY Food- Makes a huge difference in effectiveness -
Drink lots of warn tea --
You Will get Better--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Jay,
I was hoping to hear from you ......I know you have
Lots of experience with this bad bug.
I hope you are feeling better.
I've done malarone (4 x a day) twice for three months each.
LLMD Rx'd mepron this time. For 4-6 months!
Yeah!
I am still trying to talk him into adding art....but he is very cautious
About potential neuro toxic effects.
Thanks so much.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
That weird swallowing sensation is my least favorite next to migraines. I felt like I didn't know what to do with my tongue and as if there was a large lump near my trachea that felt like a blockage.
I don't know if it is Babs that makes that throat sensation, but I can tell you that anxiety compounds whatever it is to feel worse. Even by itself, anxiety can give me a different tightened throat feeling too.
I used to take a swig of liquid Benedryl when it would happen and then try to suck on a cough drop. At the time, I was on Rocephin and wondering if it was an allergic reaction. [also got the throat thing when drinking Pau D'Arco tea.] Cough drop just convinced me that I was capable of swallowing.
I think the Benedryl made me dopey enough to calm down. Invariabley the sensation would disappear until its next uninvited appearance.
Around that time I also had a lot of sleep apnea where I'd awaken gasping for air and unable to swallow. Wonder if there is a connection?!
Haven't done Mepron, because I'm such a light weight on Malarone. You are one brave mama!
Best,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks Wiseforit ,
Actually I am one desperate Momma'. Ready to get rid of babs for good.
I know what you mean about anxiety. At first I panicked yesterday.
I felt that food sitting in the back of my throat ready to drop in my trachea.
Then I realized I could do this.
Thank you God!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/