Topic: Massive Symptom Flare a couple of days after ending IV - explanations please!
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Does anyone have any other explanations for this phenomenon besides Dr.B's Bartonella-Like Organism (BLO)?
The LLMD that I've gone to for IV told me that "sometimes people experience a symptom flare after coming off the IV".
This makes no sense to me with relation to Bb. How can you get a symptom flare if the Bb has been eradicated by the IV?
Bb is a slow-replicating bacteria.
Would it be rebound inflammation? IDSA says Rocephin has anti-inflammatory properties. Is it possible that you could have rebound inflammation similar to with NSAIDs?
I want to bring up the BLO at my next office visit & I want to know what other possibilities for answers there are beforehand.
Thanks! Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
aren't you supposed to follow the IV with orals? Maybe its not too late, call the dr and see if you can get on orals
Posts: 615 | From maryland | Registered: Oct 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I WAS on orals! (Omnicef)
I had a horrendous flare anyway.
I wonder if Doxy will keep the BLO down also. That was the only oral that gave me any benefit at all. My symptoms have clobbered me on any other oral ABX that we've tried. (Amoxicillin, Azithromycin, Suprax, Omnicef)
I have to review the BLO info again & see if he mentions which ABX besides Rocephin can keep it down without eliminating it. I know that only the floroquinolones (pref Levaquin) should eradicate it.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Cysts are erupting spirochetes? because abx's have been removed.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Hmmmm....
Do you think that could happen because the Omnicef had less BBB penetration than the IV Rocephin?
Then why would he switch me to 250mg/day of Zithromax? I don't think I was misbehaving or anything.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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