Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I know I don't post here much anymore. I am actually doing pretty well. I do have a question though. Does anyone here get eye pain from Lyme? I get these pains that seem to be deep in the eye balls or even behind them. Its in both eyes.
No redness or anything. Vision seems fine although I squint more when it happens. Eye dr last year said I had Convergence disorder. I don't get this all the time-mainly when I herx or just have a flare up.
Just wondering if anyone else gets this. Here are my meds...I am not on antibiotics anymore since I see a natrapath lyme dr who does energy treatments instead:
nexium vicodin (at night only for pain) reglan (for slow stomach emptying)
Thanks. Hope everyone is doin ok here!!
Nancy
Posts: 1594 | From Colorado | Registered: Jan 2005
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posted
I get eye pain severe sometimes. Not real often, but when I do, it is several days in a row, when I am having other herx or lyme symptoms.
For me it is my right eye more then my left and it feels like pressure from deep behind the eye. Feels like it wants to pop out from the pressure, and on the eye ball itself, it looks as though I have a contact lense in...a little bulge.
It often is around the time I am having my worst slow empting symptoms...... which by the way started with lyme. My first destressing symptom.
Fantastic article. Realy helped me understand. Of course I have forgotten now, but something about different nerves in the spinal cord controling different parts of the body. Pressure on one causes bell's palsey of the face, another effects the gut motality, another vision and so on.
Side note: Strangely, one of the things that has helped me most with the slow empting: Low dose salt and C. I take 1500mg of each a day.
Glad you are feeling better! Von
Posts: 258 | From Washington State | Registered: Nov 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Lyme can and does affect the eyes in many ways. And, just as others, we may have eye conditions that are just typical of our age, etc. If you have an LLMD, you might ask for the name of a good LL eye doctor.
Dry eyes should always be treated with a good preservative-free drop. This will prevent much strain on the eyes and protect the outer coating of the eyeball. Very important to check out other treatment suggestions for that such as blinking often, etc.
I was curious about the term "Convergence disorder" - this is what popped up first.
Convergence insufficiency is a sensory and neuromuscular anomaly of the binocular vision system, characterized by an inability to converge the eyes or sustain convergence.
I came across this above flash discussion when looking for bell's palsey of the gut. It was great so I thought I would share. Von
Posts: 258 | From Washington State | Registered: Nov 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Thanks guys. I had another energy treatment today. When they muscle tested me they said that my eye pain was a result of herx reaction from the last treatment I had. So we'll have to see. If the symptoms don't dramatically improve by tomorrow I am to go back in. Right now the eyes just feel tired.
That is actually a good thing cuz it may mean that the little bugs are leaving that part of my system. Time will tell.
Thanks for the articles on Gut Palsy-ill be checking those out. My energy treatments help a lot with that as well but i do still have to take one dose of reglan at night (i take the liquid and not the pill form!) and it helps a lot. Plus it helps a little with sleep.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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tailz
Unregistered
posted
I get the eye pain, but usually when it happens my eyes are irritated, I have pinpoint pupils, and sometimes I even have discharge. I usually have a slight droop to the corresponding eyelid. It had affected mostly the left eye, but now it can involve the right eye too. Both of them now are perpetually dry, too.
Ironically, before I had dry eyes and knew I had Lyme, I tended not to blink very much at all. In fact, I'd notice myself often tilting my head back instead of blinking, perhaps because I didn't like to blink over my contact lenses. I didn't do this consciously though. My daughter told me I even slept with my eyes open.
I notice now though that it seems the actual undersides of the mucous membranes of my eyelids bother me, even the roots of the eyelashes. Maybe it's viral. This usually worsens late at night, so one of my bugs is very active in my eyes at night.
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I had very bad eye pain (mostly felt like right behind the eyes) before being diagnosed with lyme and co-infections.
It does go away with treatment! 18 months of abx has pretty much eliminated the behind-the-eye pain, except during herx-y moments after starting a new treatment.
Posts: 2557 | From home | Registered: Aug 2006
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posted
Am going to see a Lyme Literate Neuro Opth in March thanks to Nancy 2 who told me about her. It's going to be a four hour exam and from what I gather after talking to the receptionist this Neuro Op can diagnose lyme. Not that my WB showed anything different I just want to get a handle on my eye problem. Many systemic diseases manifest through the eyes. Lyme, candidiais, vasculitis to name a few. There is a whole list out there of systemic dieases which manifest through the eyes. I'm looking forward to this one I think. The Washington State Lyme Disease Patient Support and Resources Lyme Disease and Eye Conditions web site mentions eye diseases caused by lyme. Quite extensive.
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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posted
I successfully treat any eye symptoms by drinking Ultra mangosteen juice, an anti-inflammatory juice with 70 minerals added in the Ultra juice blend. A little bit each day, with water.
It immediately stopped floaters, eye muscle pain, blurred vision and sensitivity to light. Sold in healthfood stores and online. Also a strong version, Xango, sold multi-level. I have Lyme and no co's that I'm aware of.
Posts: 13116 | From San Francisco | Registered: May 2006
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im going back in to my lyme dr today. The eye pain is worse and I can't stand it!! May have to try the mangosteen juice too.
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I wonder why mine just flared up out of the blue right after getting treatment? Like a herx or something maybe? Weird
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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The first thing my doc thought when I mentioned this was migraines, specifically ocular migraine. I have had good success with Imitrex nasal spray if my relaxation/biofeedback response doesn't calm it down.
Migraine is common with Lyme, as with many chronic illnesses that affect energy level and circulation.
-------------------- Jerry Posts: 1 | From Pueblo, CO | Registered: Feb 2008
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
But it can last for days or even weeks without stopping? Thats what goes on when i get these. Makes me so mad. Even today i am having trouble.
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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