posted
Hi I had to stop the IV rocephin at 13 weeks because it was eating my gall bladder...many stones and too many attacks. The doctor did not want me to take it out so he switched me to orals..ceftin 500 twice a day. Still on the 250 zith once, and twice mepron.
I cannot help feeling scared to death that the orals will not keep taking the neuropathy away or that my brain symptoms will come back.
Did any of you do well on ceftin, zith and mepron? I just want the neuropathy to keep going away. It went from a 10 to about a 4 on my pain scale. It is still debilitating at times and now the ceftin is making me tired. Any positive feedback
Posts: 422 | From CT | Registered: Oct 2007
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posted
I had a good experience with Cymbalta. It is an anti-depressant that seems to have positive effects on pain as well. At the higher dose it helps diabetics that have neuropathic pain.
It helped my pain/fatigue and did wonders for my anxiety/depression/brainfog. I won't stop taking it until I feel the Lyme is gone. It was a miracle for me! I still have pain but it is more manageable. I am on the 60 dose.
Posts: 23 | From East Coast | Registered: Feb 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Have you tried levaquin for bart?
Levaquin helped the most with my neuropathy.
Posts: 1603 | From ny | Registered: Aug 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
My neuropathy pain has gotten much better on doxy. It took over a year but just today I was thinking how great it is not to have the burning in my hands and feet and the skin crawling.
I hope orals work for you.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
My neuro lyme has improved noticably (40 to 50%) on oral abx. Took doxy & alinia for 12 months, ceftin & alinia for 8 months & now back on doxy & alinia.
When diagnosed, i had burning skin all over my body, constant muscle twitches in my calfs (very painful), floaters in my eyes, dizziness (scary), hyper sensitivity to sound and assorted other symptoms.
The muscle twitches have decreased by 80% in intensity & duration. The dizziness & hyper sensitivity to sound have been gone for 6 months (left @ the 1 1/2 year treatment time frame) For the 1st year, i thought i would never improve. But i have & it has all been on oral abx.
Also taking multi vitamin, cats claw, CQ 10, Vit C and used to take magneisum for muscle twitches.
So, based on my experience, you will start to improve on orals. May take awhile. Good Luck.. Hang in there.
Posts: 213 | From ohio | Registered: Jul 2006
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posted
had late stage neuro lyme could barely walk, no balance, felt like ants lived under my skin, weird sensations, vibrating, i don't remember it all. hypersensitive reflexes-you know how people love to slap/tap you on the thigh or backm made me nuts.
I was on oral antibiotics, 2 at a time for over 6 years continuous. I was fine for 4-5 years. Current neuro problem, undiagnosed.
Treatment-brain numbing, at least for me, but extremely effective. Lyrica, klonopin.
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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