Topic: Limbs keep falling asleep-am I developing carditis or something?
adamm
Unregistered
posted
If so, how bad is it, and what do I need to do about it?
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
That used to happen to me. It's a sign of carditis? Posts: 2541 | From Northeast | Registered: Jan 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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There are many reasons for this. If it's bad and frequent, call your doctor's office. It's hard for any of us to know the severity of it.
But, for myself, it happened on and off, especially to arms. Sleeping with wrist braces may help if carpal tunnel is part of this. And watching your hand/neck/back posture for all activities to be sure you are not putting undue stress on nerves, etc.
Massage on the spine helps me. Only a licensed massage tx or PT should work on your spine. However, a friend could massage the soft tissue in limbs as long as they did not dig in too much.
Can you do some gentle yoga stretches twice a day. There are some good yoga books and DVDs from the library.
RESTORATIVE YOGA sort, not the power yoga stuff, though. Perhaps finding a class in your city or on campus - with the goal of relaxation of muscles.
posted
Adam, this happened to me in 2004/2005 and scared the pee out of me. Doctors at Lahey had no idea what was going on; I now know it was some kind of bacterial infection. My read now is that it was caused by mycoplasma pneumonia (tested pos. several times), but I wonder how many slow-growing CWD bacteria can also do this nasty trick...perhaps many.
To this day, I don't know if the infections were strictly confined to my nervous system. My fear is that is was neuro-vascular. And given the possibility of plaque build-up inside the circ. system, I've been researching enzymes for several years to detox the blood and dissolve fibrin-encased granulomas. It is now documented that CWD bacteria contribute to many circulatory issues, as you may know.
Happy to chat some time if I can help or offer support from a layman's perspective. In the meantime: have you had your bloodwork closely analyzed -- e.g. visual microscopy?
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
I get this too. It started when I was really sick from Lyme in 2004. It was so bad that I had to keep moving my legs and arms so they would not fall asleep.
It has slowly improved over the years and now I only get it at night. My hands mostly will fall asleep and wake me up. I wonder if this is lyme related too. Posts: 161 | From AZ | Registered: Feb 2008
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posted
Hi I just started getting neuropathy in my hands and feet about a year ago. As far as I know the only heart symptom I had up til then was palpitations and arrythmia but really havn't gone since it started to see a cardiologist. My LLMD put me on a schedule of Lyrica and Lamictal and it is gone now (except some upon waking) so it will go away with proper treatment.
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
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posted
So glad to see this thread. This is a symptom I have that is actually getting WORSE, even though I've been treated with doxy for one year now, and many, many other symptoms have gotten SO much better for me.
Like someone else said, this scares the S*** out of me - somehow, it feels like a worsening 'process' - I can really put up with just about any symptom if I have a feeling that I'm on the right track & it just takes time and patience to get through the 'episode'. And so many of the Lyme things seem to just 'come and go'. But this symptom is escalating for me, and it terrifies me. I actually used the 'terror' word last time I saw my LLMD (and even that wonderful doc is not a lover of such high emotionality!) - but he isn't so worried. Must not be too uncommon?
Would love to hear from others who have experience with this. I am being treated for LD alone, have never tested positive for any other co's, I hope we are not missing something.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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