posted
I have just talked to my LLMD and he is concerned the doxy is not cutting it and recommended I go on IV due to the ongoing eye involvement.
I am in Ireland..I might as well have lyme in Botswana.
He is sending off my bloods to Igenex in an attempt to get a positive PCR that I can use to get treatment here. I doubt it since the Inf D doc here is a total Duck.
Even if I do it will be for 3 weeks at most and I doubt that will cut it.
He said to go off the doxy for a week before testing. He will change my reqimine after the results.
Worst case scenario can anyone tell me what it might cost to get IV treatment as an out patient in the US??
Is there a cheaper generic ricephin available now?
I saw a thread about that. Any advice would be much appreciated. I will do whatever it takes to get well again.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Hi there,
I'm sorry to hear of your predicament. A PCR is necessary? You've of course heard the analogy that catching lyme spirochetes in a urine stream is like trying to catch trout with a butterfly net...or something like that.
Anyway, I urge you to use the search feature to locate posts from a user named "dontlikeliver". She lives in the UK but travels to the US for treatment. I believe that she's found some practitioners and a testing facility in the UK and/or Ireland.
Sorry I can't be more helpful -- I don't swing by here very often anymore.
Cheers, Sue
Posts: 1307 | From TX | Registered: Sep 2002
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
O.K. this is my second attempt to type a response. I just typed a very long response for you and then accidentally erased it before I posted it.
I am a U.S. citizen that recently moved to Switzerland. I travel to the U.S. for my lyme treatments, and for my children's lyme treatments.
But I have heard from another U.S. citizen living in Switzerland that there is a good lyme clinic in Germany that supposedly was trained by Dr. B from the U.S.
They do long term treatments there, I.V. and such.
My understanding from folks here in Switzerland is that a ticket to London from here is cheap and only a one hour flight.
I don't know how that translates into a flight from Ireland, but it would definitely be cheaper than going to the U.S.
As far as health insurance, that is something else. Don't know what kind of coverage you have in another country.
Also, I did I.V. rocephin long ago in the beginning of my treatment (5 years ago), and have done everything else since then.
I am currently doing shots, and they seem to be just as effetive as an I.V. for me. And much easier as far as not having to maintain an I.V. line. Safer too.
Anyway, I guess there are a few things to think about here. Traveling to get treatment really sucks, excuse my French. But we do what we have to do I guess.
I hope that you find your answers, and if you would like to ask me anything else about traveling for lyme care, please feel free.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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