posted
Hello, I was wondering how did neuro weakness start for people here? Do you wake up one day and find it's hard to move a limb or is it a gradual process?
Thanks.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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adamm
Unregistered
posted
Like everything else, it's different for everyone.
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posted
I am wondering because currently my burning/pain is better, but I have some strange feeling of heaviness/tightness and some soreness in my calves.
Never had this before, it is always a bit scary when new symptoms pop up.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I've been in pain for a long time so I didn't notice when the pain became "nerve pain". I was told that I had fibromyalgia - so, I thought it was that. I didn't know what exactly was causing the pain.
I've just recently begun to get my mind around the fact that my pain issues are probably neurologic. My doctor gave me some samples of Cymbalta & it seemed to help my pain (it's an anti dpressant but it's also used for neuropathy). I guess that's why I realized that my pain was due to neuropathy.
So, I've been researching supplements to help with neuro pain. I think that over time the spirochetes die off & they produce a neuro toxin. This must build up & damage the nerves over time. I'm just taking an educated guess here.
It probably effects everyone differently depending on the strain of Lyme, what you've done to treat it, your own genetics, etc. For me, I have very bad lower back pain, pain in my neck & shoulders & the new one is scalp pain.
I started taking a supplement called NerveFix & it seems to be helpful. I think I prefer taking that to taking Cymbalta. I'm going to try some other supplements such as phosphytital chloine, acytil l choline, alpha lipoic acid, B12 methylcolbabine... (please excuse my spelling, I don't feel like looking everything up right now). You may want to look into lipid replacement therapy (NT Factor). I heard that may be useful, too.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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