posted
First I want to say thanks for taking the time to read this.. I want to try to keep this simple if possible.
Many times I get overwhelmed with the fact that I can't understand much of the medical information. So it would be nice if I could get my hands on some information in laymans terms so they can understand without having to have a translator or medical dictionary handy.
There have to be sites out there taht are well documented reliable, to the point, informative and helpful.
This is for some people in my life who are supportive but dont' understand lyme because of all the misinformation they are reading online. They want to understand and for that I am greatful.
They keep reading how you can overcome lyme quickly with abx.. I need to show them the side of lyme that most people arn't educated about.
The way it affects us. The difficulty in extracting it from our bodies and the severe symptoms it can cause minute to minute/day to day. That it will take time and patience but I can overcome this.
The day to day struggles and issues with symptoms and the inability to function. How severe it can be and why. I can't drive hardly at all now. My heart has stopped.
The way it goes deeper and deeper and can take over all the organs when not treated...
The negative effects of abx(I may have to do abx, but want them to know why I havn't yet)and why it is best to avoid them if possible.
Positive results of people treated naturally. I know a lady who was healed getting treated at the clinic I go to now.
Ok, I know this is a tall order. And a lot to read... Anything you can help me with here would be great...
Thanks sooooo very much!!!
[ 17. March 2008, 06:02 PM: Message edited by: Minnie Mouse ]
Posts: 59 | From U.S. | Registered: Oct 2007
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posted
Thanks! I hope I feel up to going through the information tomorrow...
Cheerio
Posts: 59 | From U.S. | Registered: Oct 2007
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bettyg
Unregistered
posted
minnie,
i'd like to suggest LYME VIDEOS; go to my post at top of MEDICAL; this was just started, but it's a handy way to see what you were discussing! good luck
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Columbia University site has excellent, easy to read handouts broken down in a few subject areas.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Columbia University site has excellent, easy to read handouts broken down in a few subject areas.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
When I get asked this same question, I direct folks to Dr. C.'s website. Many have printed his words for their extended family and friends.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
How's about a branch of the federal government, a department of the National Institutes of Health?
The Natonal Institute of Neurological Disorders and Stroke:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/