kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
My husband found out he had Lyme on June 26, 2007... He was at work and almost passed out.
He was treated for an Upper-Respatory Infection and when he wasnt feeling any better, his doctor did a Western Blot and it came back positive.
7 out of the 10 bands. He went on Doxicycline and then Amoxicillin...Being those didnt work he was sent to an infectious disease doctor who sent him for his first spinal in august 07,which came back POSITIVE! He was told that he has had it for about 2 years now.
He was then put in IV Rocephin and after a week or so he was admitted into the hospital for having a severe reaction. From there he was put in IV Penicillin for about 3or 4 weeks and then was cut short of the treatment due to an infected Picc Line.
That was in the begining of October and hasnt recieved any ABX since then.He finally recieved Workmans Comp around then and they've been NO HELP! He went for a 2nd tap on March 10. When i called the doctors office about 2 weeks later(yes i had to call)...
I was told that they didnt get enough fluid. We've been fighting for this 2nd tap since December because that was the only way his doctor even thought about giving him ABX.
So, when I found out that they didnt get enough fluid we were so upset.
I called the hospital and we were told that while we were waiting to leave the hospital after the spinal( on march 10), the lab and the radiology doctor knew the whole time that the fluid wasnt even enough to do the PCR test.
So basically, my husband was told by the radiology doctor on the day of the tap that there was enough, then the lab states that they told the doctor that there was never enough, and NOW they are saying it was my husbands fault and that the doctor terminated the tap... I felt like i was going crazy...
I then asked the doctor to have my husband get a second Western Blot so we could have some sort of a count to see if he was getting worse.
That test too came back 7 out of the 10 bands.
His doctor refussed AGAIN giving my husband ABX.
He said my husband has to now go for his 3rd Spinal tap and unless it comes back elivated than he said the only thing he can do for my husband is treat his symptoms with pain meds.
We know that these taps are unnessacery, BUT my husbands on Workmans Comp and he has to see "THEIR" doctor and do whatever they tell him to do.
2 weeks ago his job fired him...( he worked Parks and Recreation...AND HE WAS BIT @ WORK) So its horrible and its putting my alot of stress on my husband because now the only income he is getting is from Workmans Comp and they are only paying him 70% and are still giving him medical treatment for the Lyme and anything that came from it...Anxiety, Panic Attacks, Gastritis, etc. His workmans Comp Doctor had been telling my husband that he had "POST LYME"...for at least 5 months and now he's told us the TRUTH: My Husband has Chronic Lyme Disease. We found a site that really hit home for him...Maybe for some of you as well...
BUT he wants to see an LLMD. So, He either stays on workmans Comp and gets a 70% paycheck and no help for his disease or goes to an LLMD and loses everything with workmans comp.
If anyone has any advice or can just relate... We would TRULY appreciate it!
K&R
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
G to the support group page, call the local group and get name of a LLMD ASAP.
I think that's the one best advice anyone can give...oh yea, give him a hug too.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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daise
Unregistered
posted
Hi kreynolds,
See my post to your thread under the General Support forum. (Go to near the top of this page, on the right you'll see "forum home." Click and then choose "Support Forum.")
posted
i also never, ever turn in my llmd bills to insurance. i just use the insurance for the meds as long as they will pay for it.
Posts: 871 | From NJ | Registered: Mar 2007
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Sorry about the news. Can you elaborate on why they treated him for a respiratory infection? What were his symptoms? Did any tests reveal co-infections, e.g. mycoplasma pneumonia, bartonella...etc.
There is a positive side to this: he has a diagnosis and an income. Many folks in this community have neither one of these and struggle to pay their bills. There is hope to be found in your efforts and support!
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
Maybe you have done this, but I would call your state's Board of Insurance and ask what your rights are there. If you can get some leverage, you can usually persuade an insurance company to do what you want by threatening them with a report to the State Board of Insurance Examiners. Insurance companies do not want state boards to get involved in their business. Also, you might see if ther might be some help through the State Attorney General's Office. If all else fails, consult with a lawyer and sue not only Worker's Comp, but ex employer.
Posts: 177 | From God's Grace | Registered: Apr 2007
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posted
First, get an attorney for your w comp claim and don't get screwed around any more.
The wcomp system will pay for your attorney/reresentaion at NO COST to you. This is the law as W comp is there to protect worker rights-- not those of large employers who want to "reduce loss reserves" on open claims-- is the buzzword.
Next unless NJ has some strange laws you can go to any doctor you want--- it's not their choice, again read above.
The WC hearing board decides compensability and ongoing benefits, not the Independent Medical Examiner, hired for and paid by the employer/insurance company. Your atty can mitigate unnecessary tests and dr visits.
You can also apply for SS Disability.
Spinal taps are a waste of time, money and unnecessary pain.
Western blot tests once positive for Lyme antibodies WILL ALWAYS be positive for Lyme antibodies. This is now part of your husbands immune system.
GO TO A REAL LLMD, and get help, including expert medical opinion to refute the bs you are getting. There is two clear books of medical guidelines/treatment protocals for lyme.
LAST GET TESTED FOR CO-INFECTIONS; Babesia, Bartonolla, etc... took me 10 years to find out why in addition to 2 weeks of abx why I never got better.
It took me 10 years to find my way to a qualified specialist. Lyme is not a joke or quick fix. Your husband needs real help.
PS I have been unable to work for 1 year now due to Lyme.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
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