This got me thinking, as some of my symptoms are persisting despite trying everything. What if a course of steroids would send the remaining inflammation into remission? It's risky. Has anyone tried it during abx treatment? I think I would accept the risk if my neuropathy doesn't resolve or gets worse in a few years.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
| IP: Logged |
There are quite a few people here who will definitely tell you that their Lyme went NUTS after taking steroids or having a steroid injection.
They will show up soon!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Steriods sent me back years and made my infection 100x's worse. I would never touch that stuff again.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
posted
Oh, I know about the horror stories with steroids, hence my question. However it seems some people were sent into remission by their use, like in that study. It would be nice if there was a way to determine whether one would benefit from them - without trying!
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
| IP: Logged |
daise
Unregistered
posted
Hi Chamade,
The big red flags about steroids (Prednisone and others) are loud and clear. They do not belong in the human body--they wreak damage.
If you want to get desperately more ill, take steroids.
[NOTE: This does not refer to hydrocortisone. When, by testing, your body is low in cortisol, then you need to replace what your body isn't making, in order to heal from Lyme and TBI's. Cordef (hydrocortisone) is bioidentical to what your body makes.]
quote:Originally posted by feelfit: Does this include topical steroids for conditions like psoriasis? specifically betmethasone?
I can hardly imagine a psoriasis suffer not being able to apply topical steroids as psoriasis itself is a devastating condition.
Feelfit
That is what I'd like to know too. I used Beloderm cream (bethamethasone diproprionate) a few months before I was hit by the neuro symptoms...on an area about 10x10" in size. I've used this stuff a few years ago as well and don't remember any side-effects.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
| IP: Logged |
quote:Originally posted by chamade: That is what I'd like to know too. I used Beloderm cream (bethamethasone diproprionate) a few months before I was hit by the neuro symptoms...on an area about 10x10" in size.
That's very worrisome!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
quote:Originally posted by chamade: That is what I'd like to know too. I used Beloderm cream (bethamethasone diproprionate) a few months before I was hit by the neuro symptoms...on an area about 10x10" in size.
That's very worrisome!
I've googled betamethasone and infection and there's articles on how it can be absorbed throughout the skin and is contraindicated if there is a known infection. Great...so I might have done myself in and might be why my symptoms persist. I'll show the tube to my LLMD next time and see what he has to say.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
| IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
steroids only mask symptoms. They do nothing to get to the source of your illness. Sure shutting down your immune response system stops the pain temporarily but does it make sense?
Also, it only works until the source of your illness grows large enough to overcome the effects of the steroids. Now you have a massive problem that is nearly impossible to correct.
Find another way to feel better such as detox to help clear the body of the toxins that your immune system is reacting to. Kill as many bugs as possible to lower the overload to your immune system.
Eat as nutritiously as possible. If you are suffering inflammation, then go vegan for a period of time. That is the least inflammatory diet and it will give your immune system the fuel it needs to fight while you are starving the bad guys so they can't fight.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Well, I've been using that stuff since I was 17 and got lymed when I was 28. still using on scalp...guess that I'm doomed.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
daise
Unregistered
posted
Maybe one of you could post a thread with beloderm cream in the title.
posted
I had raised this question to my llmd and my llpt and both replied that steroids should not be used. (I have CNS lyme) Steroids suppress the immune system, not something we need to do.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I asked my LLMD about topical steroids today at my appt. He said that it would bother him if I were slathering it all over my body, but the ammt. used on my scalp and other small areas doesn't wory him at all.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic