posted
Hi Laurie I have the smae kind of reaction. Most of my symptoms are in my nervous system. I did IV Rocephin for three months and now doryx. The doryx sesms to be helping with the neuropathy a little.
Posts: 422 | From CT | Registered: Oct 2007
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posted
My main problem is neuropathic pain in my legs and arms. My hands are really sensitive to temperature as well. Recently I started feeling pin prick sensation around my torso when I stretch it. I guess I will be burning everywhere pretty soon. Nothing has touched this symptom for me. The head problems went away quickly for me. No joint/muscle pain here.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I have the exact same head stuff. My body feels great, but the head things have been there 24/7 since at least this past December. I have some tingling and zaps, but no burning pain.
Feelfit Posts: 3975 | From usa | Registered: Aug 2007
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posted
Most of my problems are neurological, though I had some musculoskeletal pain that seems to have resolved with time. I get a lot of vertigo and inner ear type symptoms, but I also have symptoms like you describe. The burning feels like someone has applied a hot iron to a part of my forehead for a few seconds. Also a weird numbness and tightness, kind of like your scalp is suddenly two sizes too small for your head, accompanied by a tingling feeling. My best guess is that it's caused by some kind of irritation/inflammation of the cranial nerves that send sensation from the face/head to the brain, particularly cranial nerve VII. In some Lyme patients that's the nerve that goes haywire and causes the stereotypical Bell's palsy.
Posts: 32 | From Massachusetts | Registered: Sep 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I am really concerned and frustrated because this is my daughter's biggest issue right now.
It seems there is incredible head pain/pressure, and it goes down her spine.
I think it wouldn't be long before it turns into some kind of encephalitis or meningitis. Just waiting for the fever to hit.
Went to see LLMD, he is testing for West Nile, because we live in a high incidence area, and she also has nausea with this.
I would love for her to get a spinal MRI
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
The head issues are the worst... I had all the neuro symptoms long before I had the joint and muscle pain...one of the reasons for the misdiagnosis of MS.
Just a heads up (no pun intended) about encephalitis - my spect shows that I am living with severe encephalitis - and I don't get fevers....just alot of other problems - pain, pressure, memory loss, seizures, vision loss
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
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cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Laurie,
My head feels pressurized at times, other times it feels like ice picks are being poked in different places.
The weirdest is, and this is the best that I can describe it, my head feels like my stomach would feel decending the highest point on a roller coaster....so yeah, kinda high, indescribable really.
My coordination feels a little weird with this too.
My SPECT Scan was normal, as was my MRI, my MRA showed funky blood vessels suggesting vasculitis.
LLMD said not to worry about the MRA because metabolically, my brain is working fine....
Sure doesn't feel like it!
Posts: 3975 | From usa | Registered: Aug 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Bitrex-
I also have the scalp too tight feeling...two sizes too small, pigtails too tight....or it feels like I am wearing a hat when I am not!
Feelfit Posts: 3975 | From usa | Registered: Aug 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Yup...neuropathy and headaches are my worst symptoms. Maybe we got bit by the same tick on LI?
Anyway, I have found that hitting not only babs, but bart has really helped. In fact, Dr. B once told me that more ticks on LI carry bart than lyme, so maybe treating co-infections would help.
Feel better
Posts: 1603 | From ny | Registered: Aug 2006
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I had all the neuro symptoms long before I had the joint and muscle pain...one of the reasons for the misdiagnosis of MS.![[Eek!]](eek.gif)
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