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» LymeNet Flash » Questions and Discussion » Medical Questions » New to LymeNet

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Author Topic: New to LymeNet
ForestNymph
LymeNet Contributor
Member # 15109

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I thought I'd introduce myself before I start posting. Below my post is a link to the long version of my story. Here is everything in a nutshell:

I have had Lyme disease and co-infections for two years but I didn't know that was the reason for my deteriorating health until nine months ago.


I have been on several courses of antibiotics that were unsuccessful but I was never on them long enough as I was never treated by an LLMD.


During the last course, which was the longest, I ended up getting a systemic candidal infection despite taking probiotics from the beginning.


I was prescribed fluconazole but I still decided to stop taking the abx to allow my body to restore its natural balance.


I could actually feel myself getting weaker and I suspect the overgrowth of yeast was making it even more difficult for my body to fight the borrelia and co-infections.


I knew that in the meantime I couldn't leave my body defenseless so I started treatment with the Cowden protocol.


I think I have been on it for about four months. I no longer have that overwhelming feeling of my life slipping away.


However, I still have all the symptoms which continue to evolve. I know of a decent LLMD only an hour away. I am going to make an appointment in the near future to discuss antibiotics again.


I am going to ask him if I can take the Cowden protocol with the antibiotics to maintain balance so there is not a repeat of the candidemia.


  • My symptoms:

    Completely debilitating fatigue

    Swollen lymph nodes

    Low grade fever, sweats, chills and flushing

    Deep aching pain in arms and legs

    Constant severe nerve pain everywhere except my face

    Burning pain in back and neck

    Stabbing sensations in joints

    Joint stiffness

    Unexplained abdominal pain

    Clumsiness such as always dropping and knocking things over

    Mental fog

    Sound sensitivity

    Light sensitivity

    Touch sensitivity

    Lightheadedness

    Unsteady on feet

    Painful spasms in muscles that can last up to an
    hour

    Painful tightening spasms in hands

    Worsening of symptoms before and during
    menstruation

    Menstrual irregularity

    Unexplained ovary pain

    Rib soreness

    Anxiety attacks

    Crying spells

    Irritability

    Paranoia

    Forgetfulness

    Unexplained weight changes

    Loss of libido

    Twitching of the face and other muscles

    Continuous nausea

    Blurry and double vision

    Cognitive Impairment

    Shortness of breath

    Costochondritis

    Heart palpitations

    Aphasia

    Sleep disturbances: cycles of hypersomnia and insomnia

    Slight facial paralysis that comes and goes

    Burning headaches

    Knees swollen with extreme pain and strange rash

    Extremely painful locking up of knees in the
    morning

    Bartonella "stretch mark" rash

    Petit mal seizures


[ 18. April 2008, 09:06 PM: Message edited by: ForestNymph ]

--------------------
Infected in March '06

Lyme Disease, Bartonella, Babesia

Diagnosed June '07

Remission Since September 2011.

My Story:
http://lymelabyrinth.blogspot.com

www.myspace.com/psyche_entranced

Posts: 119 | From Florida | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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welcome; glad you found us.

i sent you a private message; can be found in my profile and also to left under HELLO! I wasn't able to read your solid block text since many of us have neuro lyme and can't comprehend.....


WELCOME, would you like a FREE copy of my newbie package of 118 pages info galore sent by a PRIVATE MESSAGE here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?

I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!

also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.

most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!

If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!

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Robin123
Moderator
Member # 9197

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Hi and welcome - this is a comment for one of your listed symptoms, that of blurred and double vision.

I found that drinking mangosteen juice instantly cleared up my eye symptoms. It's an anti-oxidant, anti-inflammatory juice.

I drink the Ultra brand, with 70 minerals added. There's lots of mangosteen blends. You can find them in healthfood stores and online. The strongest is Xango, sold multi-level.

If you try the juice, drink a lot of water with it too.

Posts: 13117 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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