posted
Its been a real long time since I have be on here.
The part in his letter of Munchausen's Syndrome by Proxy brought back the memories when my son ws sick I remember the nurse asking if I Put the therometer under a lamp. When he was sick one of his symptoms were really high fevers and I would bring him to the er and of course I would give him advil so the fevers would go down so by the time we got to see somebody he probably didn't have a fever or it was lower than 107 thats how high they got. They thought I was crazy!
My son is now in his first year of college and I do like to forget that nightmare. I consider us lucky so far found Dr. Jones and his treatment worked. I am often reminded of this nightmare because I have a good friend whose husband is not lucky has even begun using a walker. I hear how the insurance doesn't want to pay for this or that. I really wish something more can be done for this man but getting back to the letter - when will the medical commintiy recognize this disease for what it is devasting in a lot of cases.
When will all the crap stop????
Frustrated Who has to get sick the President of US before something wortwhile is done for the people with Lyme Disease?
Posts: 121 | From Brooklyn, New York USA | Registered: Jan 2003
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bettyg
Unregistered
posted
suz, welcome back; thanks for sharing your feelings on dr. jones' case that is NEVER ENDING!
now to switch to a different subject, and you asked HOW TO HELP HIM/OTHERS.
go to ACTIVISM and read one of the posts from TINCUP on our 2 LYME BILLS IN CONGRESS.
make 3 phone calls, fax letters, and CALL YOUR STATE'S FEDERAL SENATORS AND HOUSE REPS to REQUEST A HEARING OF OUR LYME BILLS
AND FOR YOUR STATE'S SEN/HOUSE REPS TO "CO-SPONSOR" S 1708 AND HR 741 !! **********************************
yes, i'm shouting; a phone marathon took place on thurs. and friday; please call MONDAY EARLY!! keep this going.
our bills have been in congress for 10 years without moving OUT of committee to be voted on!!!
here's how you can help dr. jones/ALL LLMDS IN USA!!
get your FAMILY/FRIENDS/CO-WORKERS/CHURCH MEMBERS/everyone in this!!!
read phyllis mervine's post also about what other HEALTH BILLS are in this group of DECISION MAKING as to what bills will be heard and NOT HEARD!!!! it's critical!
thank you/all for helping ALL LYME PATIENTS & ALL LLMDS, ESP. DR. JONES!
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bettyg
Unregistered
posted
up as a reminder to continue to work on DEFENSE FUNDING FOR DR. JONES, KIDS LLMD IN CONN!!
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quote:Originally posted by Suz: Who has to get sick the President of US before something wortwhile is done for the people with Lyme Disease?
He already has been sick with Lyme and still nothing was done. Apparently he even had his aides consult with ILADS LLMD's.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
What type of treatment did Dr. Jones prescribe him? PM me privately if you want, if not that's ok. I'm just curious since I know he has a high success rate!
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