LymeNet Flash: MEPRON experiences

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»	LymeNet Flash » Questions and Discussion » Medical Questions » MEPRON experiences

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Author

Topic: MEPRON experiences

laurie sm
LymeNet Contributor
Member # 14584

posted

My LLMD now thinks I might have babesia so he is adding Mepron to my zithromax.

It is the babesia that you can get in Washington state. CRAZY- I WAS there a few times years ago.

Has anyone taken it?? I would appreciate any feedback.

Did it help you??? Side affects??? ETC.

Thank you

Laurie

Posts: 256 | From long island, new york | Registered: Feb 2008 | IP: Logged |

Lymen
Member
Member # 6882

posted

Some nausea at beginning; pretty benign stuff in my experience.

Posts: 98 | From BC | Registered: Feb 2005 | IP: Logged |

tic chick
LymeNet Contributor
Member # 9156

posted

I've been taking Mepron/Biaxin combo for two weeks now and woooooooo..........haven't felt this bad in a very long time.

Kind of scary. thinking of stopping .
[dizzy]

There is more but this will do for now.

Herx?

Tic

--------------------
Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton

Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome!

Posts: 309 | From S.E. Mass | Registered: Apr 2006 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

Tic, sounds like a herx! Give it time before you give up on it .... if it's making you feel this bad, it must be killing something.

I took Mepron/Biaxin/Art for 9 months. It did a lot. Herxes are very hard.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

kelmo
Frequent Contributor (1K+ posts)
Member # 8797

posted

If we had to do it over, we would've started at 1/2 tsp once a day. It was hell on earth for my daughter. She didn't smile for six months.

We started full dose and she had hallucinations and suicidal thoughts. Her stomach hurt, then her spine.

It was hard...I'm mean really hard.

But.....it did it's job.

Posts: 2903 | From AZ | Registered: Feb 2006 | IP: Logged |

laurie sm
LymeNet Contributor
Member # 14584

posted

WOW- Everyone has such different experiences!

I just can't wait to try it and see what it does to me!!!

NOT!

Keep the feedback coming...

Thanks

Laurie

Posts: 256 | From long island, new york | Registered: Feb 2008 | IP: Logged |

Marcie
LymeNet Contributor
Member # 10070

posted

I started on Mepron yesterday. I have been on malarone off and on for almost a year now, just

one a day. We thought we would try Mepron to see if I needed a stronger dose. I only took a

1/4tsp and thought I was going to tip over. My balance was off, felt like I was going to puke,

and dizzy. Not sure if it was a side effect from the medication or herx. I did not think it

would have really effected me that much because I have been on the malarone, so maybe it was a

side effect. I need to call my doctor and ask. I am nervous to take it again, so I just took my

malarone today. I did herx realy bad off the malarone when I first started it. Took months

before I felt myself again. I hope the Mepron is better for you.
Marcie

Posts: 323 | From Michigan | Registered: Sep 2006 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

This is my first time with mepron/biaxin combo.

I did malarone prior 2 times.

I am almost at the end of my 3rd month of this.

Really bad herxes. The "I think I am dying type".

I never had that with malarone.

I have started to have a couple of good days here and there

Where I don't have night sweats, dizziness, air hunger, etc.

I used to take four malarone a day.

I think the mepron is easier to take due to only twice a day.

It doesn't taste too bad.

Bright side is it is such a vibrant yellow. [Big Grin]

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

laurie sm
LymeNet Contributor
Member # 14584

posted

Thank you everyone- Geneal-leave it up to you to see the bright side- the bright yellow!!

I am probably even more scared to take it now as I only had 2 positive feedbacks but I have no choice!

LAurie

Posts: 256 | From long island, new york | Registered: Feb 2008 | IP: Logged |

steelbone
LymeNet Contributor
Member # 14014

posted

Laurie

You will be fine....Think positive [Smile]

I have never tryed it. just thought I would give some encouragment [Smile]

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007 | IP: Logged |

knshore
LymeNet Contributor
Member # 13451

posted

I am taking it, but we have had to lower my dose to only 1/2 tsp. 2x/day instead of 1 tsp. 2x/day. I couldn't handle the herxes at the full dose. I know others who take even more than I was taking...I don't know how they do it! [dizzy]

My herx from it the second month, was so bad I was totally 100% bed-ridden. My LLMD does not think that is good for us, so he lowered my dose.

If it is too strong, call your LLMD to see if you can maybe lower the dose. Also, make sure you're not taking COQ-10, and that you are taking lots of stuff for detox.

It is tough stuff, but from what I hear it will work. [Wink]

Posts: 215 | From Student | Registered: Oct 2007 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

Laurie,

I was fine with it.

I actually remember missing a dose or two and taking it all at once.

I'm not sure I ever had babesia, but Dr. B had put me on it after months of Lyme and bart therapy to get me over the edge. At the very least, I was strained from all the drugs, and yet still tolerated it well.

I think my 5 yr old may be going on it soon, I hope he fairs as well as I.

You must experience it yourself to see. Don't accumulate anxiety over it, it will complicate the perception of wellness.

Hang in-

2 roads

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

laurie sm
LymeNet Contributor
Member # 14584

posted

Thanks for everyones input on the mepron.

I will be starting it in a few days and will see how it goes.

One day at a time...

Laurie

Posts: 256 | From long island, new york | Registered: Feb 2008 | IP: Logged |

hcconn22
LymeNet Contributor
Member # 5263

posted

Dx with Babesia and given Mepron & Zith for 3 months. Had a good response to reduction in leg pain and brain fog.

Now treating bartonolla.

But Mepron worked for me. Also per my LLMD my counts went way down.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004 | IP: Logged |

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