posted
A good friend of mine has been dealing with mono for a long time now. She also has vomiting fits every couple of weeks.
Before this, she dealt with depression and anxiety for years and tried many meds that didn't work.
Now she is being treated for mono, but isn't really improving. She is also getting excruciating headaches. I'm starting to wonder if Lyme is the culprit, since she did grow up in an endemic area, but of course to me most things look like Lyme these days!
Any ideas?
Gena
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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posted
Mono (EBV) was a huge problem for me before I was Dx'd with Lyme. I of course, had gotten the fibromyalgia, then CFS Dx long before Lyme. My EBV was active for 2 yrs straight. My spleen hurt so much I could hardly eat (except ice cream ). I could always tell when my EBV was high (sometimes 2500+) by the swelling of my spleen.
So, I say yes......Lyme can CERTAINLY be the culprit there!! It was for me!
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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Alv
Unregistered
posted
that is exactly what happened to me before lyme became active
the sme thing for my son
The pediatritian --said is EBV --that is making him sick --little I knew that Lyme was behind it .
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My son's spleen was so large, the doctor told him to be careful skateboarding & such (no worries, he could barely do it for 10 minutes without burning out of energy) because he didnt' want to injure or rupture it.
Roxy
Posts: 31 | From PA | Registered: Apr 2008
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posted
Hi there. Whenever my daughter has a Lyme flare, her mono symptoms present... her EBV numbers have never leveled off in the past 4 years... UGH!
Posts: 24 | From co | Registered: Sep 2007
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My first severe "Lyme attack" was a bout of "MONO" when I was 17. Things have never been the same since. Was not dxd with Lyme until about 32 yrs later.... but had it all along.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
This is also how my dx came about......went through the CFS and Fibro route also
-------------------- TL Posts: 365 | From OK | Registered: Jul 2007
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I was dx w/high EBV levels (over 2000) also before getting dx w/Mycoplasma and then finally Lyme.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
Same here, I'm afraid. I got "normal teenage" mono that I never quite got over - it wasn't until a few years of searching that I ended up getting diagnosed with lyme. Before that, it was chronic fatigue syndrome.
Strangely enough I never had "hardcore" mono - no swelling of the spleen, no abnormal blood tests, no splitting of the tongue or swelling of glands... just fatigue. My current EBV titers are on par with someone who has "gotten over" mono, but not an active flareup. In other words, they're as low as can be expected (Once you've gotten mono, there will always be some immune response even if its not active)
I lack a lot of the "typical" lyme symptoms (besides fatigue, pain, brain fog) as well.
Posts: 690 | From East coast, USA | Registered: Jun 2006
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This is also how it started with me......and then came the CFS,Fibro dx......and eventually a decade later the Lyme dx.....Still have alot of Mono flares.
Posts: 261 | From Herx-ville!! | Registered: Aug 2006
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Ok, I think my friend BETTER GET A LYME TEST!
Thanks everyone!
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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I think that the reason us "lymies" have such high ebv is because our immune system is suppressed from lyme and cant fight these viruses. Ive heard that 99% of people are exposed to EBV and other viruses but when you have Lyme it is hard to fight it off. (Mine was around 2500 last time I had it checked)
Posts: 370 | From NJ | Registered: Dec 2007
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WildCondor
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Lyme disease causes normally dormant viruses to become active, as in the case of EBV, HHV6 Etc. It's very common. Once you treat the Lyme disease and you destroy the sources of bacterial infection, the viruses go back to normal (dormant) on their own. Some people need to co-treat with Valtrex, but for the most part, the viruses go away once the Lyme and co-infections are under control.
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![[Big Grin]](biggrin.gif)
). I could always tell when my EBV was high (sometimes 2500+) by the swelling of my spleen.![[Eek!]](eek.gif)
![[Smile]](smile.gif)
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Any info. would be
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