posted
i didn't know that certain antibiotics worked for different symptoms
I woul dkeep treating for lyme and coinfections, and treat the sleep paralysis as a symptom. Take him to a neurologist.
They will probably do a sleep study. Meanwhile, maybe your reg dr can give him some clonopin.
Make sure he sleeps on his side, NOT his back.
Posts: 615 | From maryland | Registered: Oct 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I used to have terrible sleep paralysis episodes. So sorry your son is dealing with this, too. Very frightening.
It's hard to say for sure which abx helped the most with this, but I can say that the sleep paralysis episodes faded away during prolonged babs treatment.
I was on various combos that were hitting more than just babs. I think the sleep paralysis went away while I was on Ketek and Mepron, with a few others thrown in.
I didn't start mino until a few years into treatment. Even so, it gave me a huge herx. Could it be that your son is experiencing the increased episodes as part of a herx?
Hoping this passes quickly for your son, cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I had two episodes of waking paralysis (each lasting almost 4 hours).
For me, just being on oral ceftin helped.
Posts: 2549 | From never never land | Registered: May 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I dont have an answer for you, but you just triggered a memory for me that i had a bought of this last nite :-(
it is so frightening. Im currently treating bart right now, i dont know if it is linked to treatment or not, but I haven had this symptom since 2006 when i was very sick.
Do you think this could be a herx for your son?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Hi, thank you first everyone that has replied. From what I understand it is Bart related, because Bart attacks the CNS (not saying every other TBD doesn't they all do to some degree) but Bart predominantly does.
I recently started him on methylcobalamin B12 injections, which is very good for the CNS and helping w/sleep. I beleive it has somehow saved my own CNS from damage from this disease, at least I hope so.
He had the symptoms prior to his diagnosis. I believe he has LD for 10 years although not really symptomatic and then the sleep paralysis started about a year ago. Seems to happen when he is extremely exhausted.
He says it is becoming more intense on abx, so yes, I suppose it could be herx related.
He really is tough about it, he said he won't allow it to scare him, he literally has to lie there motionless and tell his hand to move and then his foot and then he said it is like "bam" everything comes to life. But yesterday the blankets were over his face he couldn't move them and was breathing in and out w/his face covered.
It worries me more than him. I was hoping that someone could tell me the "magic bullet" that specifically got rid of this particular symptom.
He has done Doxy, then Biaxin/Amoxi/ then Flagyl which was very rough, now Mino which he thinks is harder than Flagyl. Probably because it is really penetrating the CNS.
I hope this symptom leaves first...most of his symptoms are neuro, not so much pain, but brain related things, like bouts of depression, then sudden anxiety, then sudden happiness and on and and on...insommnia, nausea, sleep paralysis and shocking sensations here and there.
He recently detoxed for 2 weeks - felt good - but also felt symptoms returning and wanted back on abx asap.
Well thanks...this is a such a scary symptom (for me) to think he is having, I just can't wait until it is long gone.
I have had a lot of neuro stuff mostly relieved by the penicillins, amoxi, bicillin and biaxin combo's, I wonder if that would help....I just don't know.
posted
My cataplexy symptoms seemed to have ceased after a month of high dose tetracycline. I do maint. on Minocycline (for several months now) and it hasn't returned. I'd had narcolepsy/cataplexy symptoms...sleep paralysis and weakness with laughing and a few other things....for years. Most of them are currently resolved, along with the sleep paralysis. (Knock on wood).
The symptom is theoretically caused by inflammation in the brain causing a lowering of hypocretian transmitters. This is seen most often in narcoleptics and Parkinson's patients.
Good luck. Not everything works for everyone, but I know I am glad that I don't wake up unable to move anymore.
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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