posted
Here is what the WB results from Mayo clinic were that I was given from my neuro:
Component ResultsComponent IGG WESTERN BLOT 1 Reference range: <5 Unit: band -
IGG BANDS DETECTED 41 Unit: kDa -
IGM WESTERN BLOT 1 Reference range: <2 Unit: band -
IGM BANDS DETECTED 41 Unit: kDa -
INTERPRETATION Nonconfirmatory: Specific serologic response to B. burgdorferi is not detected. Cannot rule out early infection during which low or undetectable antibody levels to Borrelia burgdorferi may be present.
..Ok...am I reading this right?...it looks like to me that I had one band come back positive...band #41..? which would indicate a flagella/tail. Wouldn't that mean something? Some sort of bacteria?...organism?...
Could it be anything other then something bad? Are there good organisms in our body with a tail? Does everybody have #41..or only people who are fighting something?
Posts: 514 | From . | Registered: Apr 2008
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes, Band 41. That's not "specific", but it's enough to send people to a Lyme Literate Medical Doctor to get further evaluation if Lyme disease is suspected.
Testing for Lyme is incredibly inaccurate and insensitive. Most patients have kd41 show up -- if any band shows up. It doesn't mean you have it or don't have it.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I also wouldn't trust a Mayo clinic Western Blot either.
Please pursue this with a LLMD or at least get your doctor to order an Igenex Western Blot.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Please do not trust a western blot from Mayo Clinic.
Mayo and other labs leave out two of the most important bands on a western blot -- bands 31 and 34.
They leave those out "just in case you were vaccinated against lyme disease."
Yeah, right. As if.
Now, obviously, if you HAD been vaccinated, you'd be smart enough to mention it, right??
So, call up IGeneX (website by same name). Have them send you a test kit. Test no. 188 and 189.
Get a doc to sign off on the authorization form.
Then have any lab draw the blood and mail it off on a Monday or Tuesday.
THEN, and ONLY then, will you have done a REAL western blot that looks at ALL the meaningful bands.
Please read the sticky above on Dr. C's explanation of western blots, all the way through. It will help explain why the Mayo Clinic blot you just did is next to worthless. Sorry !!! But really -- don't dismiss lyme based on that -- it's likely to differ greatly from a good blot.
And good luck!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
The number of people exposed is in the millions. the reason you can't get treated is they have decided that only early disease merits diagnosis and treatment.
The bacterium itself is the most bizarre human bacterial pathogen known, and is poorly understood. They don't know how many people are carrying a permanent relapsing brain infection.
You can't get diagnosis or treatment because they have to pretend it doesn't exist and use labels like 'post lyme' and 'CFS' etc. for those who manifest illness.
Look at what steere did in his 1992 study which is the foundation for the CDC serodiagnostic standard. He and others often look back on this and refer to a 'normal' control, but in fact the control was taken from sick people...MS sufferers, CFS sufferers, in sum, conditions which could have been caused or complicated by late Bb infection.
Moreover, he threw in 25 syphilitic patients which constituted 20% of the control. Hoever, syphilis itself has an annual US incidence of 3 per 100,000.
This statistical chicanery, which fudged the result at 41 kDa on Bb blot by many multiples, is significant, because syph serum will cross react at 41 kDa to Bb western blots.
It allowed them to 'swift boat' the importance of the reaction to 41 kDa, which is the earliest and most consistent human ab response to Bb infection, being present in all stages as opposed to the rest of the proteins which are variably expressed according to stage, tissue type, even temperature.
Flagellin {41kDa} is necessary for Bb to survive under all conditions, and is constantly expressed, including in late CNS infection. Yet they chose to swift-boat this response.
Why? it's for political and economic reasons. telling the truth about diagnosis and treatment results in mass panic and probable economic collapse/political revolution. it's likely a bioweapon.
North American disease is different from European disease...lack of CSF antibodies, for instance. A much larger range of serum resistance to host species in wild{allows Bb to infect a much wider range of species, important in disease spread and maintenance in wild}. The CDC has found that Bb 31 goes intracellular in CNS cells.
Telling the truth threatens the careers and livelihoods of the very individuals who control this issue and who have actively lied and deceived and otherwise operated a scientific propaganda campaign for the past 15+ years, profitting from the campaign as they went.
Lyme disease, which in the US also perhaps includes other pathogens notably a bioweaponized bartonella, threatens the entire establishment. if late disease was rare, we'd be able to get treatment.
Unfortunately, the EIS/CDC,DOD totally screwed this up and tried to make money off of the disease, making profitability their first priority as opposed to protecting the health of americans.
Think about this...allen steere wouldn't listen to Polly Murray in early 90's when she reported a big incidence of neuropsychiatric disease in lyme. She had to call Fallon.
Now, fallon has overwhelming evidence of a serious disabling relapsing brain condition which is not easily treated. Global hypoperfusion on spect/pet ain't normal folks.
Don't you think the CDC etc. should be breaking their balls trying to figure it out? Instead, we see nothing at all, only continued attempts to deny illness and obstruct treatment.
Obviously, they know what is going on, and have determined that the best course is to do nothing, to cover up, knowing that in doing so, they are condemning large numbers of people to perpetual diagnostic and treatment hell.
Think about it. It's a horrific scandal and I'm not sure how much longer these *******s can keep control of it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Thanks for the info.. I haven't dismissed anything based on my neuro.... quite the contrary.
I honestly think that given that I have over 95% of the symptoms; that this started like the flu; I had an elevated white blood count the first weekend; that I have an elevated protein level in my csf; that I have symptoms flare up come and go; that I have a fever come and go; and now that I had one of the bands #41 test positive...its all adding up...even though the typical hmo drs think otherwise.
I have the Igenex kit right now. Ive been holding off paying for it and sending it off because I know that my apptmt with my LLMD in July will entail the same test.
btw: I have a sister who just tested positive for lyme this week, I have a father who admitted having the bullseye rash a couple times over the past two decades, and I have another sister who has worse symptoms then me that they cant figure out...
...Hmm..you tell me there isnt a family history of lyme going on...!
Posts: 514 | From . | Registered: Apr 2008
| IP: Logged |
posted
and it's best to be off abx for 10 days to 2 wks prior to testing
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Augh, it's the dreaded band 41!
I, too, only had 41++ IgG come back positive and that's even with IgeneX.
Very upsetting, let me tell you. After a couple years, I retested with Lab Corp and that was completely negative. I would love to test with IgeneX again but at the time, have no funds to do so. Will have to wait to do that sometime in the future.
But band 41 is upsetting to me that that's all that came back for me, because 41 supposedly reacts with so many other things that it's just ridiculous. So for those of us with only 41, we have no idea what to believe... And to this day, after two years of becoming sick, I am STILL questioning if lyme and co's is what I have (though I did get a positive Bart test).
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
posted
I thought the only cross-reaction for band 41 was the possibility of a gum disease?
So if you don't have gum disease... guess what!?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Lymetoo - I used to think that too. I was told at one time earlier on that the only cross reactions were either gum disease or syphilis. So I was like, "Okay, then I definitely have lyme..."
But...
Nowadays, people are saying just about everything cross reacts with 41. Some people are even saying their LLMDs say that it could mean Bartonella which I just can't believe.
It's like everything cross reacts now... and it's gotten really annoying being someone that only had a 41++ come up.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
![[bonk]](graemlins/bonk.gif)
Printer-friendly view of this topic