posted
I have been in for 7 months going into 8. I started a new regimine two weeks ago and it worked fantastic for about 2 weeks, I mean my symptoms were soooo diminished it wasnt even funny. I felt more like ME than I have
IN YEARS!!!!!!!!!
I had no tingling for over a week, my fogs were gone, my fatigue was lifting, my aches and pains were diminishing
then yesterday i started feeling a bit ugh and had a weird episode with my auditory/vertigo. Then last night had an extreme attack in my right leg. My entire leg from my toes to my hip went into spasm and it felt like it was even in the bone.
I was balling like a baby and almost screaming but my daughter was there and I didnt want to scare her anymore than I already was.
Ever since I have been going down hill. I have the creepy crawlies back, spasms in my face, stomache, legs - especailly the right leg that exploded last night, vibrations in my head,
lips. I am so tired and my head hurts, my back hurts, my leg hurts - so darn achy I want to take pain meds - I am struggling with
swallowing, my neck hurts,I feel feverish, for the first time in years I have pelvic pain and naseau waves, my cough is real bad and my ears are popping etc etc etc....
Is this normal in treatments or is my new regimine back firing on me?
I am so uncertain what to do at this moment it isnt even funny.
Any advice is greatly appreciated...
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Hey!
Hang on for the ride!! You sound like you are in the middle of a big herx! Awful when you're going through it, I know.
I'm sure you already know this but when the bacteria are being killed, your symptoms are intensified.
You said you just started a new regimen - what is it if I'm not being too nosy?
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
I was on DOXY for 6 weeks prior with no other abx or supps. Prior to that:
10 tx of IV was suppose to be rocephin whole time but they screwed up and gave me something else 6 out of the 10 - NICE - ALWAYS ASK!!! EACH DOSAGE!!!!
biaxin 1000 - ceftin 1000 - 2 1/2 mos prior to that
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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It sounds like a big herx. Hang in there, it should get better in a few days.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi CJ
Does sound like a herx --
You Have lyme and Babs???
List meds you have taken and are taking now- amounts and time - I am not clear on what you are taking--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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bettyg
Unregistered
posted
cj, just sending you some comfort on your big herx
yep, sounds like lyme and babs or bart...
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posted
Sounds like one bug got pushed down and another is coming out. These symptoms are so familiar to the ones I have. I know I have Babesia and Lyme. Is it Babesia? Symptoms that come out that fast are usually a co-infection aren't they? What do other people think? Does this sound like Babesia or Bart?
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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posted
oh this sounds like herxing, not relapsing I would say; but it also sounds alotlike bartonella symptoms, do you have bartonella? What meds are you on right now??
Posts: 347 | From sweden | Registered: Feb 2008
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My cos came back negative but know not to trust that exactly.
i am currently on
roxithromycin 300 twice a day bactrim 160/800 twice a day
i finally slept like a baby last night but woke and i am shaking from head to toe - my hands are trembling like mad
and i have noticed past few days especially, this comes and goes, i am so dehydrated cant get enough liquids
GROOVY2
sept/oct - 1000 biaxin - 1000 ceftin
dec - 10 IV treatments - fell backwards and got really bad again
feb/mar - doxy ramped up to 400 but couldnt do consistently
apr - roxithromycin ramped to 600 may - added bactrim ramped to 320/1600
FOR BART AND OR BABS
Should I be adding something else?????
My daughter is starting tx next week when school is out. I think she has Bart - feel very sure about it as she has the linear marks real bad
we have struggled as to if they are stretch marks but they change colors - tells me Bart I have been watching them for several months and
they flare so i probably do have bart.
will bactrim or roxithromycin hit bart?
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
bactrim hits barthard, possibly bart herx? roxy good f or lyme maybe bart as well? do not know. sounds like herxing to me. endure a couple of sdays and see if it clms down. I have exactrly the creapy crawlings on rifampin which hits my bart, really anoying.
Posts: 347 | From sweden | Registered: Feb 2008
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posted
guess i have been in denial...not wanting to belive or accept co's
be so much easier if it was just Bb
i do feel a bit better today over yesterday though. of course THIS hour that is
Thanks for replies and responses....so glad you all are here...
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
CJ My daughter had those marks. Behind her knees...weird, abdomen, waist. When she was first diagnosed, I looked up Bartonella and found the pictures, and, literally, fell out of my chair.
Ask permission from your doctor to back off a little, then work up to full dosage slowly.
Minocycline blew my daughter's head off.
Posts: 2903 | From AZ | Registered: Feb 2006
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